Advocating For Myself

 The Wife and I were talking last night, mostly about the medical stuff going on for me. Specifically the lack of the new prescription from the Liver Dr. and the fact that when I have a scheduled paracentesis, they aren't giving me the albumin per doctor's orders. It's sad when I have to advocate for my own care. I had to point out this morning about the albumin, which they apologized for, and of course, I received three bottles of dosage today. Nothing new on the 'scrip since I last talked to the lady at the office. For once during this whole liver debacle, I would like 30-45 days where my medications are all available, require no prior authorization or special orders, and would have a chance to work on my body! The last five months the dosage(s) has changed, or added more meds, or toke off meds, or .... Sigh. Just month and some for my body to know how the chemicals are supposed to work, and the doctor would be able to get a better "reading" of what is needed. Sometimes, I just feel I can't win.

I did have the paracentesis this morning, and the total drained today was 13.2 Liters (approximately 30 lbs.) and I weighed in afterwards at 266.0 lbs. I'm down three pounds since last Monday. I know I overate quite a bit this last week, too. Had potluck dinners at the Post Friday and Saturday, and you know you don't go home hungry from them! Plus, just at regular meals, I might have an extra snack during the day, or get seconds of dinner (if available). I was surprised to see it was actually lower. So, now I need to concentrate on food portions, and types (to eat healthier) to get the weigh to keep coming off.

I'm up on an all-nighter it seems. Tried to lay down around 11pm, but the body and mind just were not having it. I passed on taking an edible, as I don't want to make my body start to rely on it each night. It is an assisting aid, not the main thing. Played some games. Watched a couple episodes. Decided to write in here to get it out of the way for the day. Have a General Aux meeting tonight, so thankfully no agenda, nor minutes, need be done by me. But I do need to work on the Riders for next Monday.

No idea for plans today. It is Tuesday. I got RM's Eggs O'le recipe yesterday, and I may go to the store and get the stuff I don't have, and try to make it tomorrow night for dinner. I have a Prime Rib in the freezer I need to use before it gets freezer-burnt, too. Need to look up a crock pot recipe or something. Thinking about actually grabbing up that book on Word and seeing if it has anything I could use and learn in it.

PeacE