Friday, August 21

A Day With the Wife ... Sorta

 Today I have a pretty easy schedule. Both are at Mayo in Scottsdale: a blood draw for some tests, and an ultra-sound to take a look at the stent from the TIPS. This is just a routine follow-up to be sure nothing has "come loose" or gone wrong. Both are in the 9 o'clock hour time frame, so I am thinking lunch somewhere with the Wife. She took today off work to drive me since the Youngest is out of town for a couple more days. After that, I see myself playing video games.

I think I am doing pretty good with my time I set aside each morning to do my praying, etc. It's the evenings I don't make time for review of the day and did I do anyone wrong, etc. I just do those in the morning. RM has mentioned she keeps a prayer journal, of those she is praying for (and if they are sick, or whatever) as long as it is something that isn't overly personal. I have thought about doing one as well, just to remember daily who to pray for, since my memory is still not the greatest. I might go to Dollar Tree and get a cheap notebook to try it out for awhile. IF it works for me, then I could upgrade the notebook. Or not.

I am probably about three chapters from finishing the book "Restore" that I have been trying to read a chapter per day in. I think it is an okay read. There are a few sections that actually seem to have some idea(s) that I was looking for. But I think most of it should be directed to an alcoholic, like in the AA program. There is quite a bit I wish I knew about (re)starting my relationship with God in AA than I did. This would be a good fill in for explanations of addictions with some stories as well. I think it will be a book I pass along to like my Home group when we meet in person sometimes.

Speaking of that, I guess we are doing a "private party" event Saturday. There is a speaker sharing their story this Saturday about noon at a church not too far from my house, about 35th Ave and Northern. I think it is someone the ones in my group know from over the years. Then afterwards going to lunch together at Wildflower at 7th St and Bethany Home. I don't know if I want to really go to Wildflower, it's not my kind of restaurant, but I will take a look at the menu before deciding. Then I need to decide if I want to drive that much. But I was invited to the grouping ... which was nice.

No true idea on how I feel today. With the recent TIPS, and doing the prep clean-out for the colonoscopy, I am not quite sure where I sit with just my regular meds and all. I'm not feeling bad, just not 100% myself.

And with that, I am out of here. I need to wake the Wife and we will head out in about 45 minutes.

PeacE

Wednesday, August 19

Talk About Not Wanting To Drink

 I am on Day 5 of the week countdown before the colonoscopy. You know what that means ... things are about to get really busy here soon. I have been drinking the Miralax stuff the past couple of days (stool softener) and yesterday when I had my regular BM, I thought I was done, but a whole 'nother round came out of equal amount. Surely the tubes are clean! I know they are not, completely. But here I am am whining to you, and drinking this morning's cocktail. At least it is unflavored - even if two years ago I liked the lightly flavored orange (I think it was) version.

Met the new PCP yesterday. I think I like this guy. I gave them an update medication and dosage spreadsheet I have, so they could update their file. I explained Mayo is pretty much in charge right now. He agreed to step back and let them go. He took a lot of notes while asking me questions. After about 10 minutes, he looked me in the eye, says you are more informed about your situation and what is going to happen than any patient I have seen in quite awhile. How about we go 6 months and touch base then? I was like Sure! And I was done. I do go back 10/19 for the last two vaccine shots still though.

After that it was finding something for breakfast low-fiber, and soft. I opted for a couple burritos from a 'Berto Bros. - what? Chorizo, egg, potatoes, and cheese is soft! I barely ate one. I have the other to eat half of for breakfast (more like lunch) today. Have my drug screening labs to do today. Hoping for test results by end of week, to see if that Nicotine is Negative... Followed with a paracentesis next door at 9am. I think they'll drain 5-7 L today. New doc's orders to be turned in as well.

Okay, I have to do my quiet time and then leave. Y'all have a good 'un, ya hear?

PeacE

Tuesday, August 18

... and So I Beat Them Up.

 I really did. I beat both the Youngest and the Wife up from bed this morning. Not hard when one seems to sleep most of the day, and the other doesn't need to be up for work this early. I woke at 4:30am, right on the money. I laid there, trying to go back to sleep, to no avail. Got to thinking about what appointments I have this week, etc. and decided I might as well get up and shower, then get the day started.

Only have an early PCP visit today. Some new doctor that NOAH has assigned to me. Evidently they think I need to update them on what's going on. I'm taking in a list of my current medications and dosages, then telling them if they want lab results, to contact Mayo. I made it so my PCP has access to my file. I don't want to do lab/blood/urine workups twice a month for the same things. Plus, there isn't much my PCP is able to do at this point. I do have an appointment in October to get the third and final vaccine shots for Hep A & B. I think I should go to Walgreens here soon and get the flu shot as well.

The VFW Riders. Sigh. I was told last month that there were to be elections this month. And that was it. No clue-in, nothing. So we started out with that last night. Our President needs to step down due to online schooling he has going on until December, and possibly next semester as well. Okay - so the Vice moves up, and we elect a new Vice Pres. No, because someone holding a position now, may want a position we elect. So our Sargent-At-Arms became our President, the Pres. leaving office moved to Vice, and we had a new Rider join up that got the Treasurer position. With the new bylaws and procedures, we also needed to elect an Auditor, that quarterly goes over the accounts with the Treasure, plus will travel to another Chapter to check their records. Similar to a Trustee. Well, no one jumped at it, so they wanted to leave it blank with a future election to come when we have someone that wants it. No, I said. I'll do. I'm a Trustee for the Aux, so am learning how to do all this anyways. Plus, it prevents problems later, and if nothing else, has me as a place-holder until someone takes it over. The Treasurer and I are going to learn the Treasurer position together, as National gets things going...or when they do. So I now have yet another title. Sigh.

I received a message yesterday about some lab work being needed for Mayo. This is the monthly drug screening basically. I looked at the Doctor orders and see that the usual one for alcohol is on there. Then, written in gold filigree, was the word, NICOTINE. So we finally get a test of it, and hopefully it will come back Negative so we are able to move on. The lab is tomorrow, so will be end of week before I see results.

And that's all I got today.

PeacE

Monday, August 17

There Was A Time ...

 ... when all that is going on in my life would have put me on a different stage than the one I am on now. I may not have quit drinking. I may not have sought medical treatment. I never rekindled my relationship with God, got support from others. I would have been a bear to live with so I probably would have lost my Wife and my family. Ugh! It's like sticky slime sticking to me just wasting the time to think about it.

But I didn't make those choices or many others that could have negative impacts on my life. I'm happy (inside more than out) to expand the relationships I took for granted, and return the love given. I'm slowly getting better - even pre-transplant - and we know that is important. I'm doing my baby-walk with God, again, as I re-learn how to follow Him.

Not much to share today. I had an episode about midday yesterday where I suddenly got the shills, sweats, nausea and "shakes". I immediately went to food, and just a small bit got rid of the nausea, but the other signs were there. I went to the bedroom and left the Wife know what I was feeling. Then I laid down. Ended up napping for a couple hours versus just resting. I did feel much better though. After thoughts are the worst, but we did check my BP, which was way low (After my nap) so we attached that that was probably the issue that started things. Next time I need to remember to check the BP and Glucose.

Today starts my "Shit Week", in other words, colonoscopy preparation. I've had the meds for about a month now. I sat down yesterday and went through the instructions - Whew! They have like five or six different ones based on what meds you can take, can't take, etc. Mine seems quite regular (regular ... ha ha). Colonoscopy is next Monday. Have the Ultrasound on Friday to check the TIPS area, and some bloodwork.

I have the Riders meeting tonight. I need to get the Agenda out today. I admit, I have not touched it at all, mostly because there are some things going on I don't have the info for. Supposed election for a new Director because ours is stepping down? Sigh. This group is becoming more of a problem than I thought it would two years ago.

Alright, I got to get something actually done.

PeacE

Sunday, August 16

What I Want versus What Really Happens

 Sunday Morning Comin' Down .... oh, now I got to post a music vid....


Okay, I hope that earworm is gone for the day. But it is Sunday, and I woke early, but I feel pretty well rested. I did nothing yesterday but play games on the computer, then lay down for awhile (not sleeping), and repeat. Today is my pillbox refill for the week, and there are some fairly big changes. I went through it all, and updated my spreadsheet so I can print it out for the new PC I see on Tuesday. I'd rather not, as he is getting nothing but an update. But it is a "new doctor" at the location I go to, so it is what it is.

So seeing how this is kind of the first day of making sure my dosages are right with the changes that were done, will need to watch how I feel. Of course, everyone is supposed to watch me signs of HE (Encephalopathy) as it is possible to increase after the TIPS. General signs are confusion, lack of focus, altered character ... just to name a few. Supposed to watch for jaundice as well, but that has been watched for since day one.

Though I feel mentally fresh and awake, inside I still feel a bit fatigued - not sure why. Could be the body adjusting to the changes. If not gone in a couple days I will contact Mayo to check about it. 

For all of you that read here (all two of you) thanks for the prayers and support. Keep them coming until this whole transplant thing is done.

I'm off to do my quiet time.

PeacE

Saturday, August 15

Well, Mark That Off the To-Do List

 It is Saturday and I am home. I actually came home yesterday, after the one night of observation as planned, I was just too tired to do much. I put my phone on do not disturb and had some naps, a little computer time, more naps, dinner, then bed. Slept good being in my own bed/pillows, and no waking up every couple of hours for BP check or whatever. Doctors said the procedure went very well, and was able to be done without any complications. The results of the procedure will take longer to see, as it has to do with the ascites build-up in the abdomen. They did drain 7L while I was under anesthesia, so am "starting dry". Two days is a bit early to tell if it is building up again as fast as before... I do have new Dr. orders to be able to get a para when I need one. 

It is just one of my characteristics that probably needs to change, but I am getting irritated at the Wife. A little. The seemingly constant question "Are you feeling ok?" or "Do you need anything?" is driving me nuts. I have restrictions - not to lift more than 10 pounds for 2-4 weeks, but no others that I know of. I'm not invalid. And I don't mind her asking, but it seems more frequent than it needs to be. Like I said, it's probably just me.

So that being said, I am going to be napping a bit this weekend, to rest up. Monday I start the cleansing procedure for a colonoscopy. I may need a good dinner this weekend. Where would I choose? Hmmmm....

No joke today...I'm too tired.

PeacE

Wednesday, August 12

T-Minus 24-Hours

 At this time tomorrow morning, I should be called back beyond those doors that block off the waiting area and lead into the workings of the hospital. Nothing I haven't done before (going through the door) for blood draws, CTs, MRIs, consults, and on and on. But this one is a little more involved. I am sure it will be wheelchair to a room, change into a gown, and from then on I am in a bed. Who doesn't want to lay in bed all day? Me ...

The first part of the procedure is going to be a normal routine for me. They will do a paracentesis to drain any excess abdominal ascites prior to the procedure. At some point after that, not sure of the timing, I'll be wheeled into an OR and knocked out. Then they insert a catheter through a vein in my neck, and guide it to the liver. They will create a channel between the Hepatic and Portal veins, with a mesh stent to keep it open. If things go fine, that's generally about it. 24-48 hours observation, then home. Average time of procedure: 2-3 hours. Once home I am on restrictions for lifting. I also have to watch out for further signs of Hepatic Encephalopathy, skin turning yellow (jaundice) and swollen legs. Since I have HE already, the medication I am on may cause it to not worsen.

So, sounds easy-peasy, right? I would think anyone gets a bit nervous though when they have to have a medical procedure done. I know I "accepted" whatever comes with this whole transplant process, and to do my best to meet demands of healthcare staff. But I can feel some anxiety starting already this morning. There will be lots of little prayers today, I am sure.

RM & PT are headed out of town today, through the weekend. With RM's birthday this past Sunday, and their anniversary coming up the 14th, PT *ALWAYS* wants to go somewhere out of town, just to do basically the same thing they do at home. My opinion, and not too far off mark, I am sure. I pray for their safe travels. Rm has asked at least twice about pushing their trip date off to another time, so she is able to be at Mayo for my procedure, and both times I told her no, to go. I do expect her at the actual transplant though.

My Older Sister called me yesterday. She wanted to apologize for not being able to make it for the procedure (she is in NM). I wasn't even expecting that ... even said so. She stated she will be here for my transplant though. She offered up prayers, which I gladly asked her to continue.

RM sent a BIM package home with my Wife yesterday. BIM is Because I'm Mom. She had mentioned something about it in her blog, but I had no idea what to expect. The jar of salsa was for the Youngest. But RM sent a box of some beef jerky (mmmm) and another box. I instantly went on alert. What would she send me that needs to be in a box? Well, I was busy when I got home last night (had Aux meeting) and forgot to even look in the box until this  morning. Now I believe it was last week, RM had sent me home with a study bible to help me work on my getting into the scripture and studying. It was one she had used before, but was not her favorite choice. I honestly have not had a chance to use it. Well, in this box she sent, it has a brand new, leather Jerimiah Study Bible. This one is her current favorite to use. As I read the daily devotional (she had sent that home last week as well) I followed up the verse in this study bible, just to see what it offers. I am impressed! I think this will be a great tool in my walk with God, and I am able to still use the other if I need clarification or something. Of course, RM included a personal, hand-written note, which made me tear up (but not cry!). Thanks Mom!

Well, today will be a bit busier than usual for me. I am getting a haircut, need to fuel up the car, need to wash said car (in and out), and have lunch. I think I am going to go to JTs Gyros over on 35th Ave & Greenway. I love their shwarma. Other than that, I'll just be grabbing a few things to put in a backpack to take. Tablet, phone, chargers, medical journal, note journal. Think I will forego the bibles for this trip.

And that's it...

I'm looking into essential oils. Which one is it that calms other people down? Chloroform? It's Chloroform isn't it?

PeacE

Tuesday, August 11

We Interrupt This Blog Post ...

 ... to take a pause and get some other things done. I have my CT today at about 12:50pm, which being in the middle of the day, really ruins things. I'll have time for my AA meeting at least. This morning I need to work on the minutes I have been putting off. So let's pause here until after the CT.

That was a lengthy pause. After the CT yesterday, the blog had slipped my mind completely. I think it has to do with doing it in the mornings and all. Either way ... CT went fine as far as I could tell. Lasted about an hour. I have the test results, but don't understand the mumbo-jumbo - even with the 'patient friendly' version. I wasn't whisked off anywhere, and they haven't told me anything negative, so that means I am good to go for Thursday. I swear they track me! I was home barely 10 minutes from Mayo when they called and went over the time schedule for food/water for Thursday. I'm going to be hungry coming out of it, but don't know what type of food I will eat (soup or solids). I think I'm okay with regular food as long as I feel up to it.

General VFW meeting tonight, but it is a special one for me. The Youngest finally okayed joining the Auxiliary!! Mainly it is to drive me to meetings, and be able to sit in the meeting versus out in the car. Besides, it might lead him to do some volunteering. At least he will get to see a portion of what I do for my "jobs" with the Post. I'm paying for his first year, as it is not terrible ($45). I printed off the app and my Dad's DD-214 last night to turn in with it all (I joined under my brother). Youngest will probably not go with me tonight, but will have to next month just to be inducted and receive his podium book.

Posting is going to be sporadic this week since I have the procedure on Thursday. Hopefully will be back on track by Saturday.

"When someone says "Stop!" I never know if it is in the name of love, Hammer Time, or if I am to collaborate and listen.

PeacE

Sunday, August 9

I'm Tired

 Yesterday started off nicely. I woke, did my routine, felt fine to drive the 30 minutes to a VFW Post for our District meeting/training. I headed out with plenty of time. When I got there, I was getting my stuff from the car: put on my VFW Riders cut, which I haven't worn in awhile, grabbed my traveling office bag and locked up. I started to put the keys in the inner pocket on my vest, and found something: a pack of cigarettes, with three left in it. I guess I hadn't worn the cut in awhile! I had no strong craving/urge to smoke, and they would have been 'stale-tasting' I am sure. But I put it back in the pocket, so share the tale with RM and the Wife later. 

I guess I misunderstood a bit about these new trainings we are doing at District meetings. We still do our regular spilt Aux/Post meeting, then break for lunch, then start the training. I had plans and let my Aux Leader know I couldn't stay for the training part. My plans were to run by RM's, drop off her birthday present, visit a little, and head home with dinner at Olive Garden at 5pm. Well, I-10 runs within a quarter-mile of the Post, and unbeknownst to me, they closed Eastbound at like 8am (after I was at the Post). So traffic was terrible. Between the freeway detour, and the street I was one being one of the closest E-W through-streets, it was going to be a pain. In the first hour, I made it a quarter mile, but had managed to change streets to the one I wanted at least. This one ran N-S, but every mile is a through-street, and they were all backed up as everyone had the same idea to go over and catch another freeway. I decided to just stay on this street, as I believed it would go up to RM's. Of course not. But by then O was able to hop over to the 101 and head to RM's like normal. One hour, forty-five minutes it took to go about 16 miles. I could be at the Daughter's house in Tucson in that amount of time!

Well, I gave RM her present, visited for a bit, had my iced tea. I love how she always has iced available for me. I think it was about 3 when I headed home. Went to dinner at 5 with the birthday boy from yesterday (Middle Son). Youngest Son came as well. Oldest Son met us there. And of course, Doc, my grandson, was there. Reminds me I got a couple pics to send to RM, not good ones, as I hate doing pics. By the time we got home, I was almost falling sleep on my feet from being so worn-out. Between the traffic, sitting in the heat (even with a/c), and just stuff in general, I was wasted. So bad, I slept until almost 9a today. I know I needed it.

Welp, I gotta get out of here and get stuff done.

Don't be ashamed of who you are - that's your parents job.

PeacE

Saturday, August 8

Racing the Clock ...

 That's a bit how I feel this morning. Woke up an hour earlier than usual (unintentionally) to start getting ready. I have a VFW District 3 training to attend today. It is all the way down in Tolleson. That sounds far, but by freeway it should only take about 30 minutes. It starts at 9am, and had it in my notes it ends about 1pm, but have seen other things that say 2pm. Either way, I am there all morning.

Yesterday was the Middle Son's 24th birthday. The Wife had the day off work (low census) and we invited him and the family to lunch at Seafood Harbor - my favorite Chinese buffet place close to home. He turned us down (the audacity!). Last night the Wife asked about inviting Middle Son again for tonight for an early dinner somewhere of his choosing. We are inviting the Oldest son and his GF as well. I'll hear updates from the Wife today about it all.

The Wife and Youngest have an appointment today with the Bank. I know we have been slow about it, and he has not pushed about it, and he doesn't have paychecks to deposit, so we never got around to setting up a bank account for him. Normally he could go anywhere, anytime to set one up, but he, like his brothers, want it linked to our account - in the way that the Wife (Not even I) can see the account, mainly in case we need to help them with some cash or something, it is easier to transfer the monies. Plus in this day and age, with everything starting to go cashless, he needs a card with money in an account. He is leaving for Cali in about a week and a half - ya never know ...

And with that, I need to get off here and do my quiet time before heading to the training.

PeacE

Friday, August 7

End of Week Rambles

 I'm a bit scatterbrained this morning. I slept well, even if I did wake about an hour early. I started my day: measured blood pressure (114/62) Beats/Min 75 Glucose 103) then took my medications for the morning. I got comfortable (in an office chair) and started to read today's chapter in this book. It started into 'forgiveness' and how it helps us, versus solves the problem. We don't have to forget the reasons we are giving/receiving forgiveness, but to truly forgive means counting it as resolved in our minds, and we shouldn't let those hurts/grievances affect us anymore. HE even leads into the next chapter to go more in-depth, by simply asking: Who do you need to forgive?

Yeah. I just zoned out for like 20 minutes. I wonder if it is the encephalopathy messing with me today.

So I think that is going to cut this short today. I actually shared on social media yesterday. I had to shout out to myself. It's not the bad kind of pride to want your achievements mentioned. Yesterday marked 11 months sobriety. I also stopped smoking over a month ago. I have lost about 100 pounds since September. Do I want any of that back? Heck no! So I am working on keeping it, and making it more of a lifestyle than a habit. Aside from all the medical, I do feel better as a body.

With that, I am out. I sat here zoning for too long...

"Do not touch" has to be one of the scariest things to read in braille.

PeacE

Thursday, August 6

To The Guy That Discovered Milk ...

 ... What were you thinking at the time?

Even my mind doesn't want to delve into that line any further. But don't we all reflect at some point point, and ask that questions: What was I thinking? This role-reversal I am going through, from being so much of a pessimist to being an optimist more often, has me asking that question so much, I try to just put it out of my head when it stops by. I promptly say to myself, 'Self. Too bad. What's done is done'.

I'm running a bit later than my usual this morning (considering I slept until the alarm went off). I don't know where I got behind ... my quiet time? I'd like to think so, but truthfully I do not know. I do know I am quite tired today. The previous night I had mentioned I felt like I only napped. This smart ring actually told me it recorded no sleep pattern. So it must have registered the night as naps. So up at 4am yesterday.

Had the paracentesis at 9am. They did me dry at 9.8L. When I got home I weighed myself for a true weight, and I am down to 243 lbs. Then I ate a 5-meat Italian sub from Subway. The Wife had made meatloaf (with mashed potatoes on the side) the night before, and there was plenty of leftovers. I had some more of it last night for dinner. There's enough for lunch today as well. I forgot how much I love meatloaf!! I have ordered at restaurants, but theirs is usually tasteless, some kind of grey color, and just not good. But home-made? MMM, MMM, GOOD.

Like last month, the para brought on some muscle cramping. Particularly on my sides, just above my hips, and it HURTS! Way worse than a leg cramp (which one can sometimes walk off) as I cannot get it to stop until it wants to do so. Walking out of the hospital it hit, and thankfully there were some chairs at that part of the lobby. I had to sit about 10 minutes for it to go away. Now I look like an old man, hunched over, free hand grabbing my side, almost shuffling with a cane as I exit. Through in some tears that might have fallen, I probably looked like I should go back in! But I got the car (thank goodness for valet), picked up a prescription and lancets, my sub, and headed home. The rest of the day I stayed in, dealing with twinges of cramps, and the 'readjustment of organs' that always happens.

Nothing on the calendar today. Well, except bragging it is my 11th month of sobriety!! Hard to believe it has been almost a year. Even harder to imagine that I truly have not had more than a couple cravings for drink in all this time. I'm also over a month of no smoking. Those urges still visit me daily, but I am getting really good at getting rid of them.

This past week or so, I have started texting RM every morning. Before, I hardly ever called or text on my own. But it feels good to just text how she is like a ray of sunshine, and then I share an affirmation - my 'Today's Tidbit' which is usually some little funny. I type in Love you Mom while thinking of giving her a hug, and send it. She says she loves getting the texts, though I think it is more that she hears from me, because before I hardly communicated. Well, I was going through some of the few notebooks I have stacked up in here, mostly from the IOP, and came across my Funnies book. I had unofficially the sharer of the day's funny at the end of group each day. So I would scour the internet looking for decent, clean one liners or affirmations we could relate to, and wrote them down. So I thin k I will close out each day (for awhile anyways) with one each day here...

My doctor told me I was going deaf. It was hard to hear.

PeacE

Wednesday, August 5

Acceptance - The Sequel

 Tuesday in my AA Home Group a speaker usually joins us and shares their story (about 15 minutes) and either from their experiences or whatever, they pick a topic that we bounce around the group in discussion. Today's follows my previous post ... Usually it is something like 'acceptance of your faults', etc. but today it was just the word 'acceptance'.

The problem with being in a group you frequently see, you get 'tagged' from others in the group to talk. I have noticed a trend that most regulars will call only on other regulars. Personally, I try to bring in someone that is fairly new (to AA or to our group) but not like this is their first day new. Well, I don't know how my brain works, but when I wrote about acceptance, I think it was more situated around the medical/death scenario. By 11:30am, it was in a new place. I got tagged, of course.

Acceptance. For us it has a wide field of coverage throughout our lives. Acceptance of our drinking problem. Acceptance of a Higher Power. Acceptance of our faults. Acceptance in group - never been to an AA meeting I did not feel accepted. Except a couple times years ago (another story, another time). The list just goes on.

Some of it is hard to get through. Like me, I am working on issues with my acceptance of a Higher Power (God). I have accepted my drinking problem. I have accepted the wrongness of actions while I was drinking. I have accepted I may be attending meetings for the rest of my life ... needed or not. And I try to be accepting to others. Greeting people (even in zoom), thanking them for sharing (if they did). I try to never speak out in irritation because of a difference of opinion, or exclude/snub others even online.

I'm going to let that all marinate there for the rest of the day and night. Maybe I'll add more in the morning.

Welcome to the pre-morning, when the sun has yet to peek its bright self over the mountaintop, and scorch the Valley into a mild version of Hell. Yeah, I am up early. I woke around 4am and just could not go back to sleep. So did my quiet time, and now am getting the day started. I had even set an alarm for 30 minutes prior to my usual time, to allow me time to sit with God, since I have a paracentesis this morning. At least the time isn't being wasted.

Ended out yesterday with the House/Entertainment committee meetings. I have a couple days before I need to be sure the minutes are done and into our Adjutant, as there are points to bring up to the general Post meeting next Tuesday. I spoke to our Commander (who is also Treasurer for the Riders) about the voting that was to take place at National Convention, making the Riders a separate VSO (Veteran Service Organization) like the Auxiliary are. Verbally, unofficially, he said yes it passed. He had a picture of what the new unified patch will look like, too. I need to reach out to our state leadership to find out what is the next step we need to do to get all this started. State may be waiting instruction from National. I emailed out to the Riders the basic 'unofficial' information, the pic of the new patch, and listed details for a dinner the Riders are doing this month. No, RM, it is not a regular Riders Dinner. On 8/15 the Aux. had to cancel their steak fry due to members being at the MIT conference that weekend. The Riders are jumping in this one night to at least have some food available. It's just hotdogs/hamburgers with an added twist: I won't be there. I informed them all. I gave the info of who has signed up to help, who is bringing some food, a list of things we probably still need (cheese slices maybe, condiments depending on what is in the fridge at the Post). Then 2 days later is the Riders meeting, which I will need to try to attend. Hopefully I will be able. The TIPS is being done 8/13.

The Wife had meatloaf going when I got home. I haven't meatloaf in forever it seems, and this of course did not disappoint. She even added a layer of mozzarella cheese to the middle. Side of mashed potatoes...mmm, mmm good! Then she also added some of the juices from the pain on the mashed potatoes.... It was soooo good! I saw how much was leftover, and glad to see I might get two days out of it - as long as no one else touches it.

I got to nap a bit in the night, and here I am. Hope you have a great day!

PeacE

Tuesday, August 4

Acceptance

 One the definitions of 'acceptance' is: the mental state of taking reality as it is. Reality, and how it is. Almost a year ago, I started learning more about acceptance. When I was diagnosed in early September that I had a diseased liver, and if I didn't stop drinking, it could kill me literally at any moment. The percentage of my liver that was still able to function (and not destroyed by cirrhosis) was pulling some major overtime, which was not helping anything at all. The staff in the ER that first visit gently said I should contact my PCP, and get appointments with a GI, and a liver specialist. When I saw the PCP, she added on a general surgeon, as I had an umbilical hernia already going on as well.

All of that was pretty much in the first two weeks. I have been thinking hard about what was going on; what are my percentages of dying if I do nothing; what will I go through if I do nothing, or yet, if I do start with orders from the doctors. Yes, the morbid thoughts of dying were forefront in my mind. I had stopped drinking voluntarily back when the basic diagnosis came in, and actually a few days before that, because I wasn't feeling good. What if I didn't stop? I knew that if I had one, it would turn into a hundred. The only time I said no to alcohol was when I ran out cash on me, or closing time, it seemed.

Though I have joked for years with bar buddies about being a drunk, because Alcoholics go to meetings, I started thinking about that. Doctors were asking if am going to join, if I was going to stop drinking. I had to tell them honestly that I did not know. I was contemplating my life, and realizing how bad I had lived mine for around 35 years. It's literally sobering. I didn't want to be going to meetings (had a bad couple encounters at AA before - story for another time), so I decided I would do it on my own. By this time, I was seeing doctors, starting a medication regime (to stop symptoms so they could find the true problem). I did not need the surgery for the hernia - as long as it wasn't leaking fluid, and caused no pain, that Dr. said they would fix it during my transplant.

That was the first definitive time I heard anything about a transplant. Before, I was under the impression with decent medical care, I may not need that extreme. I also was STILL waiting to see the liver specialist. When I finally saw him (in December - 4 months later) more medication was added to my list. I returned for a follow-up in January, and though some things had improved, others had not. HE adjusted a dosage of the medication he had prescribed. In February, the specialist admitted it was time to call in the big guns. He reached out to Banner's transplant facility, for them to call/evaluate me for transplant. Banner called, and denied the opportunity as the costs related to the procedure and years of after-care would be extensive and financially draining to me (they were not on my plan - but their hospitals are - the transplant works separately of hospitals and has it's own rules I guess). I became depressed. What do I do? A few days pass, and I get a call from Mayo Clinic and they complete a basic phone medical history. They needed to pull reports on my ER visits, and all the doctors I had been seeing. They stated I need to stop drinking (still had not drank since 9/6) and to stop taking the THC gummy I did at night to help me get to sleep. In March, they took me on as a patient for the transplant procedure. 

In one of those early consults with a doctor on my transplant team, they went over the odds both ways, of having versus not having, the transplant. We discussed basic life with after-care. Again, reminder to not drink, stop taking the gummies (no probs) and since I was a light smoker, they said I may be able to get through it all without having to quit (that turned out to be false). It was at this time that a decision had to be made to do the transplant route, suffer through symptoms and live out my days, limited though they would be, or do nothing and die at an undetermined time.

Death does not scare me by any means. But what does is my family and how they would go on without me. How much hurt and pain I would cause with my death. I had young grandchildren ... I wanted to see them grow up. I didn't want to leave my Wife alone. I thought long and hard, then decided to toss in the proverbial towel, and follow the transplant route - NO MATTER WHAT.

A couple requirements were needing to be completed prior to even being considered for the waiting list, was an Intensive Outpatient Program (IOP) minimum of 8 weeks. The next day I had found a place, and started the next day. Another was I had to attend an AA Meeting a minimum of one time per week, for the next three years minimum. I went to AA, found out there are Zoom meetings now versus in-person (though they still do those as well). I threw my attitude into the trash, and went to a meeting (online) three days after being informed of the requirement.

Where am I going? Well, I accepted it all. Accepted the chances of dying. The chance of recovery (better than the dying ones). Lowered my walls and accepted the IOP. By the end of my 8 weeks, the fellowship of group had felt so good, and I learned quite a bit while attending. I had been attending one AA meeting a little more than others, and started joining more often, then asked to join as my Home Group. I know go an average of 5 days a week for learning, experience sharing, fellowship. Though I don't cravings, and really have not had any since I quit in September, I still am supposed to follow the program steps.

So many other things I have had to learn to accept: How I wronged others in my drinking years. How bad did it destroy my body, other than my liver. This is ALL going to be Lifetime Changes, and there is no turning back, just failure and death. I accepted it all. And now I am working hard at accepting Christ again (my Higher Power). I lost faith and now am filled with doubts about me and God. I'm reading help books, I am trying to glean knowledge from the Bible. I'm praying. Many in AA said that their Sponsors would tell them of their struggles, to 'fake it until you make it'. I'm not doing that with my relationship with God. I'm trying to correct ME to be the person I should have been all these years I wasn't.

Wow, that was a bit more than I wanted to throw out there, but I guess I felt the need. I am not worried about people knowing about this medical stuff. I've accepted it, they can too!

And with that, I am out of here before I ramble more ...

PeacE

Monday, August 3

I Almost Done Forgot ...

 ... to write in here today. I was going through the morning routine but when I got to the part where I write a post, I didn't even think about it and went on with whatever I do next. I was like, 'Whoa!'. So I backtracked and here we are. Sitting and staring at the screens between us, waiting for me to come up with some significant ramble to entertain you.

I mentioned yesterday I think, that at the birthday party on Saturday, my Brother and I caught up a bit. While we were talking about my medical stuff (I believe it was the TIPS), I had said something along the lines of '...and eventually get rid of this lump' and he sort of pointedly looked at my stomach. So I lifted the edge of my shirt and showed him the umbilical hernia I have going on. He about freaked at first, then he whips out his phone and begs me to show it again so he can get a picture. I asked why he would want a picture of my 'inside-out' belly button, and his reply ... that thing has a nipple on it! SMH. I tried to explain it isn't a nipple, but the actual bottom of the belly button being pushed out. HE wouldn't see it any other way though and kept on about the "nipple". Needless to say, I don't know how many beers he was in, and he never did get a picture. My Brother is an idiot at times ....

This week is not too crazy. House/Ent Comm. meeting on Tuesday. Para on Wednesday, Middle Son's birthday on Friday, and a Dist 3 training meeting on Saturday (VFW). Next week will be the busy one with a CT, and the tips procedure.

I did finally get the minutes for the Riders done, and the Agenda for the House/Ent Comm. yesterday morning. It only took me like 4 hours. Sigh. But it is done and out of the way.

Looks like I need to place an order at the grocery. I am out of soda. I'd prefer to get like a gallon of tea, but the fridge is too full to support two gallons, plus the milk. Sodas I can counter after opening. I think the Youngest is out as well.

The Wife made a quick stew last night, and I even admitted to her, it had to be one of the best renditions she has made. The potatoes and carrots were cooked to perfection - nice and soft, yet firm enough to stay in shape. I think she used one of the smaller pork tenderloins for meat, so nice chunks there. It was spiced wonderfully (even if I do add more, and hotter, after a try a few bites. I suppose I need to get off my butt and do a dinner again. I was trying for once a week, but this past week I have been fatigued for some reason. That started about Thursday, and still lingers. I think itis just yet another symptom of the medical stuff going on, or worsening. I don't know. 

I did message Mayo regarding the standing doctor's orders I have at Banner Hospital for my paracentesis. I could schedule my own as need for therapeutic reasons, but limited to the 10L max drain. It expires 8/20/26. So I asked if it needs to be extended, could it be extended, what are we going to do? The reduction of fluid build-up to is supposed to decrease, does not happen miraculously overnight, and I may need to do some paras for a bit afterwards - hoping that the length of time between increases, and the drainage amount decreases. I hope to have an answer today.

Yet another prescription to get today. I have one other I am waiting to be filled, and that will be all of them this month. I also need to get some more lancets for the glucose testing. Maybe after I pick up my store order.

PeacE

Sunday, August 2

Geez ... Pick Something Already!

 I have started recently to do a 'quiet time' for reflection, meditation, and time with God. Why? Well, because I see others doing, or claiming to, it and how much it helps them. RM has been doing her morning time with God for years now, and I think that is what pushed me into doing something of the same. I haven't done Discipleship training. I don't have a daily devotional to study a passage of the Bible each day. Right now I read a chapter (they're short) in this book RM recommended, followed with bringing my Bible out. Most days I am turn about reading the Bible. I have argued with myself that the best place to start is at the beginning. But part of me rebels, and would prefer a more methodical, devotional, teaching way of doing this. So I would just randomly open it up, and read some of the passages from that page and maybe a page or two further. Do I always make sense of it? Not a chance! Sometimes do I get 'lucky'? Sure! Even a blind squirrel is able to find a nut every now and then.

This morning I decided I would focus on reading a book of the bible. Doesn't matter how much of a chapter(s) I read, but that I do it. I decided on Psalms. In the process of finding and placing my Faith, I thought this might be a good starting spot to learn how to lift God up, share his praises, and still learn. As I started this morning, I felt better - more focused, more in-tune with what I was reading, able to apply myself to it better (I think). Then lastly comes Prayer.

Is there a perfect outline/formula for prayer? If there is, I don't know of it. I give praise, for what I have seen and what I have not seen. I ask for guidance to do His will. I ask for forgiveness for my wrongdoings, and the help to "forget" them when given up. That one is hard. Relinquishing control over things is just hard for me. I think it is a carry-over from when I was a narcissist (my drinking days) of having/keeping control. 

Somewhere in all this, I started texting RM each morning. I toss out a GM!, a daily affirmation, or positive vibe, and an I love you Mom! It's good I stay in touch better. Especially when I have questions of a spiritual nature, RM is near at hand. Plus, I think she likes the attention (smirk).

Went to a birthday party for a good friend yesterday and even the Wife went with me (finally talked her into it). Tons of food! Smoked brisket, shredded pork, chicken, ribs... and that was just the meat! we ate, and visited briefly one on one with the Hosts. After a couple hours, both of us were ready to go. There was just too many people. Every room was crowded and standing room only, plus between the heat, and something I had ate, was making me nauseous. The Wife's social meter was buried in the red she told me on the way home ... where I did get sick, but felt better after. My Brother and SIL were there, so I visited a bit with him. We haven't seen each other in a while, so he caught me up on his kids' issues, and about the granddaughter living with them. Then actually asked about how I was doing, so I shared where I was at with my medical. I may need to use him for a colonoscopy appt. later this month, if the Youngest doesn't make it back from his trip in time. We briefly talked about phone habits - he prefers calling people to update them on things, and just talk. I hate talking on the phone. You have me on the phone, it's going to be short, with info that I needed quickly. Otherwise text me, and I'll get back you in some form. So my Brother tells my Sister he doesn't talk to me because I am mean on the phone. Eyeroll. What made him think that? (Duh!)

After I finish this it is a work day. I need to do the Riders minutes, and the Agenda for the House Comm. I did hear last night, unofficially still, that the Riders did have a positive vote to become a separate entity/sister organization to the VFW. Still nothing from leadership at the State or National level have sent anything to me. The website does not reflect any changes. I know it was just last weekend, but still. Sigh what can ya do?

With that I am out of here!

PeacE

Saturday, August 1

Mired in Muck

 Personally, I have been struggling these past few months with the whole 'Higher Power' issue that is part of some steps in the AA process. We are to recognize our Higher Power - It can be anything we are told. But I think the belief they want you to establish is that there is a something else there that controls things, and not some idealistic Big Bang theory. They have said your Higher Power could be anything, you just have to believe in it. Well, based on how I was raised, I knew there was God and his opposite, Satan. Though I have not followed, worshipped, or practiced any religion since my younger teen years, I wanted to get to this second step of admitting my powerlessness with alcohol to a Higher Power. But I held back (maybe am holding back) because I feel something isn't right.

I'm sure that anyone that has attended any basic Christian church, knows that John 3:16 verse that everyone throws around. 'Stone Cold' Steve Austin made it a big thing in his wrestling career. It covers everything in one verse - God's love for us that he gave his son, and if we believe in him, we will have eternal life (salvation). But what if you carry so much doubt, so much that you, to the core, believe that God could not accept you back after things you have done. That placing Faith (not seen) which is Trust, to an entity that is supposed to help mold you into their form (attitude, etc.). I used to call myself Agnostic - would only believe it if I saw it. This went from miracles to rare occurrences. In this day and age of cell phones, we see too much of it, as well as probably ten times worse stuff (the Devil has media in his pocket).It's easy to NOT to want to blindly place faith in/on an intangible. But I used to do so. Why can't I now?

I know questions roll through my mind about it several times a day. I'm not good enough. How do I know He wants me back? Do I just drop back in where I left off? I'm an adult now and it has been many years, how does this affect things? So many questions that lean to self-doubt. In a sense, I am scared to release control of all things, and let something I cannot see guide me. I have other thoughts of what I remember as parts of the Bible having read before, but even RM has not been able to find a reference to what I am thinking - is it really there? Or am I being manipulated by the Devil, to increase the self-doubt issues I am having currently.

In several shares of other AA members, I have heard that many of their Sponsors told them to 'fake it 'til you make it' when it comes to a Higher Power. I have done that for jobs, but never on something like this. I don't want to be a fake Christian. I want to be able to completely give myself to God, but I don't want to give up the control. 

My. I am going to stop there. Seems I have more issue than one in regards to this. In the meantime, I will read any book that I think will help me understand the type of person I am, and what I need to do. I will read passages from the Bible. And yes, though I am not oral about praying, I do pray as well. May he guide me to His will for me today.

PeacE

Friday, July 31

If The DEA Knew ...

 ... about the amount of drugs (prescriptions) I have picked up (legally) this week, I am sure I would be border-line arrestable. Well, maybe that isn't totally true, but I feel like it. I have already been up to the pharmacy twice, and have yet another order ready for me to pick up. I am not complaining by any means. I 'need' these per Mayo, to get by until the transplant. I trust them, as I have no choice, really. I have no knowledge that would lead to a different route. I recall this past Wednesday, while with the nurses as they prepped my albumin drip, they had asked my plans. I said I was getting a burrito from Al Pollo Loco, then picking up some drugs - I got a hard look. 'You mean prescriptions, right?' they asked. I convinced her that yes, I meant prescriptions ... then when she turned away I rolled my eyes. This nurse wasn't one of the ones you could joke with, and I had not seen her before. Oh well, such is life.

I was left home yesterday evening, unsupervised, and you know that isn't always a good thing. But I tried to make it one. I found another online AA meeting and decided to attend. It doesn't hurt to get out there and try different groups. I wasn't too sure about this one. I did know two people there, as they are in my home group, but otherwise, knew no one. I wasn't really 'welcomed' in, though that doesn't matter to me. Just an observation. There was a good topic of discussion on Faith and Acceptance, and I heard some good shares, but overall, the group mentality to me just wasn't clicking. I may try this group again another time, and see if it, or I, have changed.

Yesterday evening I was teasing with RM. I had some notifications go off on my phone, and I went to check them. I accidently opened up the Circle 360 app that RM and I share a circle on. I noticed it said she was not at home... Curious, I looked on the map as to where she was. She had been sitting at this location for 22 minutes, in a neighborhood area that has many shops and restaurants. Thinking she had recently finished her workday, PT must have wanted to go out to eat. From the map in this app I could not tell what restaurant they were at, but texted her anyways: 'Oooo, what restaurant are you eating at?'. No reply came. I shrugged my shoulders and figured she may not have heard my text, or was busy and would get to it later, which she did about an hour later. Turns out it was Denny's, so I had pretty much guessed correctly.

Nothing really planned today. Meeting at the usual time. Yesterday I went to Mayo's Transplant support group. They had a couple in-hospital pharmacists there to answer medication questions (of their capability). It was interesting, and I learned the names and some side effects of the anti-rejection pills I could be taking for the rest of my life. They briefly explained how at each medication change, they review our labs, what we take currently, how the new dose/medicine could react with those. Overall it was interesting. I took some notes, but I am not sure they will do me much good - I'll get what they give me.

And with that, I think I will close this off today. Remember, having a shitty day does not make you a shitty person.

PeacE

Thursday, July 30

'is A Slippery Slope ...'

 Back when I was in the IOP, I was told that by another patient. We were in "group" and I forget what the actual topic was, but I had mentioned that I still occasionally went to the bar to visit friends. This other patient was about my age, had some experience in psycho-therapy (as a therapist/counselor). He believed that all I was doing was tempting fate, that I would fall back into the drinking habit just because I was around alcohol. I politely sat through his verbal opinion about me, then promptly ignored it. Alcohol does not define me. I wouldn't go if I could not handle myself and I refuse to let it define me.

Defining oneself ... there's a topic! In fact, it was the chapter I read today. I'll be thinking on this one for awhile. What does define me? Am I in the process of changing that with all the other changes I am making? If it does, or even if it doesn't, what does define me? A lot of time for self-reflection on this one I think, plus conversation with God.

I feel better! Did the Para yesterday afternoon. Drained 4.7L, and from the u/s looks like they got pretty much all the fluid that was there. I "felt" like I was more drained. Of course I am now going through the couple days of letting the organs re-adjust to where they should be and unflatten themselves. It hurts a bit at times, and I tend to walk hunched over in the middle, but it is only for a couple days. I need to check with Mayo about the Dr. orders on file at Banner. Seems they only go through until later this month. I know with the TIPS, the lessening of fluid won't be instantaneous, but I believe I need the orders to even set an appointment. I got the lab results from the screening I had just over a week ago. I don't know how to read these things because of the names for stuff. I mean there are like 3-4 different cholesterol ones...etc. I didn't see any that specified nicotine. I did see a test result that I was NEG for alcohol (duh).

Today I have an extra Zoom meeting. It is one Mayo provides for transplantees, regardless of the organ. Most of us in there are for a combination of Liver, or liver and kidneys. Today they will have a guest speaker to field questions pertaining to medications related to all this, as they are a pharmacist there at the hospital. I might learn some useful stuff.

VFW National Convention was last weekend in Reno. I have not heard yet if it passed to make the Riders a 'sister' to the VFW (like the Auxiliary is) or not. Neither official word, or rumor. My Post Commander did a FB post that showed a back patch that read VFW RIDERS GROUP, and I know one of the factors involved was being able to create one Unity patch, instead of separate ones for POST/AUX. If I haven't heard anything by this weekend, I'll have to get the minutes out either way.

Don't give up. If the hair around your butthole can thrive in a challenging environment, so can you.

PeacE

Wednesday, July 29

I'm So Excited!

 If you cannot feel the sarcasm from that title, you don't know me. Today is "Hump Day", pr Wednesday as many know it. Which means I have a paracentesis scheduled. Today's is at 1pm. I pretty much already know what is going to happen: 10L of fluid will be drained, I'll get three bags of albumin IV'ed into me, and out the door I go until next week. Two weeks from tomorrow is the TIPS Procedure that will hopefully lessen these appointments, if not remove them completely.

Yesterday, the Older Sister sent some cryptic texts to family members. Her Son (my Nephew) is currently serving in the USAF, and is stationed over in New Mexico (I forget where). Allegedly he informed his Mom that something big is happening tonight [Tuesday] so everyone should top off their fuel tanks. I blew it off, as I don't feel he has enough rank/clearance to know something of this supposed level. This morning, I woke about 5:30am and remembered her text to me. I got up, and I have yet to see anything major on the networks. Iran did some surprise attacks last night on US Forces in the Middle East. US And Saudi Arabia attacked back. Russia supposedly hit a refinery or something in the Ukraine. Those are about the only ones I see that MAY Affect a need to top the tank. Maybe I am not looking at the future issues that may come from these events, but still...

The Family Drama going on with my family has settled somewhat. It is still there, and some things still need to be dealt with on a more immediate basis, but it is on hold for now. Still don't want to get into the details. As Patriarch of the family, I want to go in and bash heads together and force ultimatums, even though I know that is the worse way to do things. I have been trying to be the calm one, supporting and providing where needed. Sigh. It is so tiring for me, and being in this medical condition it just is not helping anything. But kudos to the Youngest, as he has stepped up and been helping quite a bit.

Had my quiet time this morning. This book I am reading ... it is weird for me. I can't remember the last time I read a book like this. I call it a self-help book, but it isn't really that. Nor is it a devotional of what I think one should be. IT got interesting, it lost my interest, it dragged me back, and losing interest again. It is like the author begins talking about something that I actually feel is important, then  - SQUIRREL - and the rest of the chapter is over. I'm only about a third of the way into the book. I will stick it out, but I inwardly grimace when I pick it up each day to read some. Not your fault RM, we all interpret things differently and I have a purpose while reading it, just as your did, though they are different.

Positive Affirmations and Daily Reflections. Back when I was going through my IOP, each day we would journal for five minutes, listing 3 things we're thankful for, 3 things we will accomplish that day, and a positive affirmation. These were not shared with group, unless one wanted to do so. I usually sat there and twiddled my thumbs, because by this time of the morning, I had already blogged (my journal so to speak) and as I waited to Join the Zoom meeting, I would do the 3/3/PA they wanted. Looking up affirmations on the Google is crap. It seemed that site after site pretty much just copied each other, and none of them moved me. Pinterest wasn't much help either, but I did find more interesting ones. I think I shall start texting RM one a day from my journal. There aren't many, some are crass (like me), and some are funny.

Welp, I think I have shared (over-shared) enough today. Four hours until meeting, so I need to go find something to do.

PeacE

Tuesday, July 28

The Battle Continues ...

 Yesterday I wrote about a small bit of Family Drama that is going on right now in my family. Let's just say, that after I posted things went even 'further South' and The Middle Son ended up at our house for the day and night. Later this morning, he'll ask the Youngest to drive him back so he is able to get his Jeep so that he will be able to make it to work tonight. Without getting into details, we are treating today more like a normal day, though he does not want to speak with his partner (at least right now) as he is still angry at them. Heck, I know I am, too! I found out why his partner texts everyone but myself and the Daughter - she doesn't like me. You know I don't have any worries about that, as I am definitely not a fan of this person, but it explains several incidences to me.

That being said, I am pushing it to a back burner and letting it sit and simmer. I spent a good part of the afternoon yesterday avoiding temptations. First I really wanted a drink. I had already attended my Home group meeting, and I was seriously debating just getting online into any meeting to take my mind off the wanting a drink. I did not attend another meeting, but I was able (with God's help) to push the thoughts away. Of course, while I am fighting this one, the cigarette desire kicked in as well, so I was getting double-whammied. It all got kicked away, and this morning, I am able to sit here and think of both without craving it.

Tomorrow is my only appointment I have this week, and it is a paracentesis at 1pm. That'll be about 2 hours long. They'll drain 10 liters, leave fluid in there, get me three bags of albumin, and send me on my way. I have a para scheduled for next Wednesday as well. Then it is the week of the TIPS procedure. So two weeks out... I want all the best results that this is supposed to provide, but I will take ANY good it could help with. Fewer paras. more time between them, less fluid build-up. I was notified through the portal that I had new test results in, so I went and looked. It only listed a NEGATIVE for the alcohol test. I thought this drug test was to include the nicotine and THC as well? I don't know, but there was only this one result on the report. I think I should message the Team and see when are they going to test for that, as it is the factor of getting on the list. It's been almost 3 weeks since I stopped smoking.

Sounds like RM is going to have a good day today. She is actually going into the office (across town) as one of the execs is retiring. She is bringing some food, plus plates, cups, etc. She'll help with set up and clean up. And she will socialize!! Free to talk to co-workers without PT hanging on her every conversation. I'm happy for her. I try each day to send her a 'Have a great day!' text, to help bolster her for the day, and I know it helps me when she wishes the same back. One of these days I need to search through her tags on her blog for issues that she may have more insight on that I am dealing with as well.

Quiet time is done this morning. The testing have been done (118/71, 71 bpm, 118 glucose) and the pills swallowed with the one liquid prescription I have to take. I guess I am somewhat free until closer to 11am which is my meeting time.

Have a great day!

PeacE

Monday, July 27

... And So It Starts ...

 The work week, for many, starts today. That glorious day most people whine about, Monday. Though, I have kind of starting liking Mondays. It's that start of the week to go through my calendar and see what is happening this week with appointments and other events. I sort of prepare my mind set for things that I may have to be at/do. That was taken away from me this morning.

I woke early, at 6am, and decided to go ahead and get up. I read in my book, I spent some time in reflection. I was praying when the Wife comes in the office. Seems the Middle Son and his partner are having [another] big fight. The Son is at work. She is allegedly sending him multiple texts and disturbing him at work. He is getting angrier and saying things I don't think he truly means. Needless to say, this is not the first (or second) time this has happened. It always begins with HER contacting everyone in our family except the Daughter and myself. She threatens to leave (with or without my grandson) and though it usually seems to happen on weekends, the Youngest and the Wife will rush over to help calm them. I'm usually informed of what is going on through the Wife. 

You would think there would be a point where "Dad gets involved", but I cannot. Through my bad decisions and lifestyle (the drinking) it has affected my relationship with my Middle Son the most, and unfortunately, he is the one most like me. That includes the drinking problems, as in, I have one, it might as well be 100. 

I'm going to stop there. You don't need to know anymore about it, and I don't want to think about it. I told the Wife this morning to just reply to the partner: no, we will not help you get a hotel room to get out of the apartment. Then I told the Wife she should add, you are both adults, start being one. I'm tired of these events happening. I mean, as parents we help them out as much as we can, financially at times to make sure they don't bounce payments, etc. But with the Son the only one working ... Okay, gotta stop again before I leave eraser marks all over the page and white-out on the screen.

So my prayer time was interrupted, thankfully I was nearly done. I had a moment to add this event on, too. Some mornings like today, I think I need a therapist on-call for me. I need to yell and scream and point out how "I am right" about this, and be judgmental about everything and everyone. I do have one, and I have 'hit my knees' at least more than twice since this started this morning. I take my blood pressure reading first thing every morning. I wonder how bad it is now, seeing how I am more than little angry, and so many other things.

Hope your day starts better than mine ...

PeacE

Saturday, July 25

We Are On A Negative Approach ...

 ... that is sort of my feeling this morning. The past few weeks, overall, I have felt fine. A few bad days here and there, but no major bad issues. That changed a little last night. Yesterday I had noticed I was just completely exhausted all day. I even took a 3-hour nap late in the afternoon. When I woke from that nap, I was feeling kind of 'blah' all over and as the evening went on, it got worse. By about 9pm, I was groaning. I felt nauseated, could only dry heave. I felt like I was burning up, but the thermometer only showed me at 99.5, so not as bad as I felt. I started aching all over. I decided the best thing was to just go to bed, and see how it progresses. So, I did. I was wakened several times in a short span there around midnight. Each time I still felt terrible. 

I began to entertain thoughts of going to the ER, but realized that they would not be able to do much for me. Maybe some meds for the nausea and a paracentesis for pressure. Probably Tylenol for the low-grade fever.  Then be sent home 8 hours later with more medical bills, alleviated symptoms, but still not fixed. The Wife's alarm went off at 6:15am this morning. It does everyday. I don't know if she just can't figure out how to shut the weekend days off or what ... I did the trip to the bathroom, trying to analyze my body and how I felt this morning. Not feverish. Check - good. Nausea: down from what it was, and pretty much about the standard level of it I have each day - good. Tiredness? Oh yeah, still tired. Morning nap in my future maybe, though I have group meetings this morning. I am sure it is no big deal if I miss them, but I would rather not. So overall I am back to normal now.

I did my quiet time this morning. Read the chapter on "Drowning". This author seems to reference the AA program quite a bit, which is fine with me, as it gives me another reference point. I admit, my interest is up more today than it has been the last couple days about reading this book. For my Bible reading, I skimmed over the last few chapters of the OT, but nothing really stood out to me today.

My calendar is free pretty much all this week. I know I need to do the minutes from last weeks meeting, but I just haven't felt up to doing it yet. I don't see it happening today either.

PeacE

Friday, July 24

Was It A Good Time?

Yesterday I did go to the impromptu gathering of a few from my AA group. Though I had not been to this Valle Luna restaurant before, it is part of the chain, and similar to the one I would normally go to a bit closer to my home. There was about 15 of us in total (a couple brought spouses) and we had a great time. This was nice to get to know a few others, the ones I was able to talk with, on a more personal level. Also a chance to see the difference between in-person and on zoom camera. I was surprised by a couple... I was a bit surprised at this restaurant a bit. I guess when one gal had called about a reservation (if needed) they did not bother to inform her they could do separate tabs for each of us. So as we sat down, we were informed the tabs would be by table, or the whole group all together. Immediately I hear some side conversations about 'not have any cash on me' and similar, so how is everyone at a table to pay with their card? I understand a bit how the business side of it goes: large party, easier to do it this way than individual tabs.

...so I picked up the tab. For everyone in our group. The total actually came to less than what I had mentally calculated, so no problem there. I did it discretely (I thought) by letting the server know to just ring the group as a whole and bring me the tab. Well, when she came to me with the tab, everyone else was getting antsy for their 'per table' tabs, and see I just covered everyone. When asked why, I simply said, because it made it easier for everyone. There were a few that said 'I'll get you back' and a few that refused to let me pay, so gave me money towards the tip, which was fine. I finally just told everyone if they wanted to pay me back, pay it into our AA Group, as we survive on members donations only. Several said they would do that.

Why did I pick up the tab? I don't know. Financially it was not a burden at all, and it did make things easier for the server, and for us in the end. Did I have some menacing plan behind it? No. I wasn't looking for accolades and praise. I felt the urge touch my heart to do it, and it was out of my mouth before I realized what I was doing. God working through me? Maybe. I would like to think so. I wouldn't do this to be prideful (Proverbs 16:18), or to try to impress anyone. Nor try to upgrade my 'social status' with these peers. Only because I felt moved to do it. And here I am ruining it feeling the self-doubt, and possible judgement others may have towards me (positive or negative). Things to work on with God ...

I woke early today - about 5:20a. That call the bladder makes is not one I let go to voice mail, and I just couldn't get cozy back in bed. I thought, awesome! More quiet time this morning, and I utilized it. I read a chapter in the book I am reading. Today's was Day 6, and again, I felt I am not going anywhere with this book. But I do feel it is starting to get to the point, but it may be a couple more days yet. I did my random Bible-page flip and came up in Ecclesiates 7. I read through the whole chapter, as the Franklin Jensen bible has sections sub-labeled, and this one was 'Practical wisdom'. I am sure I am taking it out of context, but this verse stood out to me: 

Ecclesiastes 7:15 - I have seen everything in my days of vanity: There is a just man who perishes in his righteousness, and there is a wicked man who prolongs life in his wickedness.

The phrase "Only the good die young" keeps going through my head. As I think about that, I feel it to a degree. I shared before recently that my younger Sister was expecting a girl, and that I was to be an uncle (again). I was excited! My hang-out time with RM last Friday, I believe I even mentioned it to her. Then that evening we received bad news. She had miscarried. Saturday she was going to Indianapolis for a D&C. They took the option to hold her for a few after she was removed. A couple pictures were taken (of the babe, not anyone holding her). Obviously not being complete in growth development, the picture looks a bit ghastly, but a parent's love ... I feel so much anguish for her to have to go through this. My Daughter had miscarried a couple times before my Widget was born, but they were early enough this process did not have to happen. But my heart is in pieces at what my Sister is going through.

I think of friends that I held dear that have passed away. In fact, yesterday was my buddy Don's birthday, and he left us around 10+ years ago. And Smitty just before him. True, both were about 15 years older than I, but they were my friends.

Sigh. I am getting down in the dumps... So I will leave you with some Billy Joel. 


PeacE

Thursday, July 23

Party Time!

 It's Thursday and I don't have anything on my calendar (medically) that needs to be done. But I have that 1pm  luncheon listed! It will be a different kind of experience for me, meeting a group of people I have only seen/heard through the computer. Our support fellowship will carry through I am sure, and it will be just the same as us chatting online before/after meetings. I believe I am excited more than anxious, and for me that is good.

My friend Jeff called me the other day. About a week ago was his birthday, and I had sent him a text, that he responded "thanks" to. I didn't hear back for any plans, some I was guessing he was spending the evening with family. Well he called this week, and we talked. HE wanted an update to where I am at, which I gave. He said he just went to the bar on his birthday. I said you should have called me. I can go and have soda for a couple hours... But that was then. Either way, we are going to try to meet up for lunch next week.

I did a drug test yesterday. Vial of blood and a urine sample. I am praying it shows my nicotine at 0, so my case will be reviewed next Wednesday. Worse case is I have to wait until next month for the next drug screen, and repeat. Different sources say different things about the time-frame for nicotine to not be detected on a drug screening, and also the amount you smoked can affect the results. I was a light smoker, so hopefully it will clear out of my system faster. Will wait and see.

Had a paracentesis yesterday. Drained another 10L, but had to leave fluid. I estimate by weight it is probably about 2-3 liters. I feel better today. Yesterday I was so uncomfortable from the ascites build-up, I felt fatigued (I fell asleep during the para once they had the catheter in), nausea and of course hungry, because I had to fast for the lab work just before the para. Afterwards I swung by Walgreens for the Wife's prescriptions, then CVS for my special order one, then to Subway, where I had ordered through the app, then home. That sub was so good after not eating all day.

In my quiet time this morning I reached chapter 5 in this book. I was starting to lose interest in this book because it felt like it was going stagnant. But I guess that was just the "intro section (5 chapters of it?) as now it looks like it is moving along to 'Step One'.

And with that, I am outta here!

PeacE

Wednesday, July 22

Feeling Pretty Miserable

 The past couple of days I have begun to feel uncomfortable. The build-up of the ascites feels like more than usual this week. I do go this afternoon for a Paracentesis, where I am quite positive they will drain 10L and leave fluid in the abdomen area. It's becoming the story of my Life, at least it feels that way at times. We could create a calendar system based off my paras.

I also have a blood draw/urine test today. Mayo gave me the orders yesterday for the drug screening, and I have only 48 hours to schedule and complete, otherwise they count it as a "positive" result. I don't want that!! So mine is scheduled at 11:30a right next to the Banner I go to for the paras, and I set the time to allow me to get from one building to the next (parking) and make my 1pm para. I am so bloated.... the Wife has started pregnancy jokes.

Tomorrow will be an interesting day. My AA Home group is doing an impromptu luncheon at Valle Luna. They usually do a luncheon once every quarter, but this one isn't the sanctioned one. What is nice, is that they invited me. They even said it was by invite only... Does that mean I am part of the 'Cool Club' now? I don't know, and if that turns out to be what it seems to be, I'll remove myself. I don't want to put myself separate from others - we are all in the same boot about sobriety. Not one of us is better/higher than another. I used to really dislike having to go to events where you "know" no one, and you have to go around and introduce yourself, etc. I found out over the past few months, it isn't so bad. And these people already know me through the Zoom meetings, it will just be an in-person meeting. The best part is it is more on my side of town, and fairly close to home.

I slept in an extra hour this morning, and I feel better for it. Yesterday I was feeling so bad, I actually took a 3-hour nap in the afternoon. Hoping with this extra sleep, the draining today, that things will get back to where they were where I was not so tired. It is still three weeks to the TIPS procedure for me. Sigh.

I have been reading of a morning in my quiet time the book 'Restore'. Today I read chapter three, and it was sort of about control. Trying to control people through your image, or works. How we "fire" God because we have control of things. I had to re-read a couple sections of it. In my mind, it kept flashing a neon sign sign saying "Not Needed" as I felt the chapter didn't really do anything but give examples, then say one needs to let God have control, not you. It was like 4-5 pages of repetition and nonsense to me. I hope the remaining parts of the book are not this way, because it started off pretty good. And this is strictly my opinion.

Welp, I need to figure out what 'flashy' shirt I am wearing today. Already got a pair of the shorts RM bought me. They are elastic waisted so work great for when I go to have paras. Got a hair cut a couple days ago. I'm starting to look pretty good, if I could get rid of this huge belly and keep it away.

And with that, I am out of here ....

PeacE

Tuesday, July 21

Proverbs 16:18-19

 I'm 'off-schedule' a bit this morning. When the alarm went off at 7am, I was still feeling sleepy tired, so laid there in bed. I dozed off (as expected) but woke after about 20 minutes. Then I decided it was time to get up. I feel more awake than I did without that cat nap, and hoping it carries through the day, not getting so tired like I have been lately.

Today's post title is somewhat intentional, yet, unintentional at the same time. How can it be both? Well, while doing my quiet time this morning I read chapter 3 of 'Restore' and as one of the things that I do, is grab my Bible, whisper a prayer to guide me with the Word, then open it randomly. That's no way to study the Bible! Well, I'm not studying it (at this time) I am just looking for some small bit that points me in the direction I need to go that day. It could be a fault I need to work on, it could be better worship habits, etc. Today's excursion took me to this verse selection from Proverbs (I read all of chapter 16 and these stood out). There is even a story attached to it.

If you don't know, several months ago I had some issues with the Director of my VFW Riders Chapter. Basically it was my (and other members) dissatisfaction from this Director's way of wanting to do things, and several of them were definitely out of procedural order, or the process the VFW uses to process, etc. I felt a little bad about it, but I had gone to our Post Commander and explained my concerns. After a couple months, the Director stepped down (to our relief) due to "personal reasons". He is currently still a member of our Chapter, and offers up some good advice and ideas, which I do listen to. It was all about how he wanted to do things that I disagreed with.

Last night was our scheduled Riders meeting. Things went fine. After the meeting, he approaches me, and we start talking about some of the flyers he sends me to forward to everyone. Mostly different rides around the Valley. I only send out certain ones (usually because of the charity). Then he mentions that he contacted J.M. (President of AZ Riders) and invited him to come to our next meeting at the Post. I turned and faced him. To make sure there was no mistake, I made eye contact. "M. though I like the idea, and your initiative to 'get it done', you are NOT the Director, and therefore should not be making official requests without approval from Leadership, mainly my self and the current Director. This is in regards to ANY communications, of an official capacity. IF you are friends just chatting about the status of the Riders, or ideas that would be nice - fine. But this is not that, and I request that you reach out to us with the idea, and we may have you be the contact."

His mouth dropped open. "Kapish?" I asked. He stood there flapping his gob with no sound, then grudgingly said he understood, and that I was right. At that exact moment, I felt some disappointment, more that I should have to chastise a person that should know this stuff, yet continues to bypass as he sees fit. On my way home a short bit later, I realized more of what had happened, and I got a bit giddy. I put him in his place! I actually 'shut him up'! It's about time he got his hand slapped for going overboard! All these type of thoughts were rolling across my mind.

Getting ready for bed last night, I shared with the Wife what had happened. I even admitted that I know it was wrong to feel the Pride I did in this encounter. I wanted to brag! I wanted people that know what has been going on, know about it. It'll be, 'Remember back when Ralph set that guy straight?!' I told the Wife I felt prideful, and I know it is wrong to be that way, but it is still there. She had no advice for me. SO this morning I have placed this issue before God. I'll not speak of it again, except to share with the current Director, so he is informed of the possible visit, as well as what happened.

    "Pride goes before destruction and a haughty spirit before the fall. Better to be of a humble spirit with the lonely than to divide the spoil with the Proud."

Okay, I am out of here. I do have a draining tomorrow, as well as a drug test (found out this morning). I wonder if 2 weeks is long enough to show 0 for  nicotine....

PeacE


Monday, July 20

A Nice Weekend ...

 ... was had by myself. I don't include anyone else in it, as it is my feelings and I am not forcing everyone else to believe they had a nice weekend just because they were doing similar things as I. I spent a couple hours Saturday morning with my meetings. I have been invited to a non-regular luncheon for Thursday with my AA Home Group. It is supposed to be about 10 people or so, but I think that list has grown some more. I'm not worried. I have been meeting with many of these people for a few months now. Plus, it is at Valle Luna over on Cave Creek. Who doesn't like some good Mexican food? I did realize last night though, that I would miss the Mayo Transplant support group due to the timing of the luncheon. Oh well. Sometimes being with people 'in person' is better.

I blew off the Agenda yesterday, so that means I need to get it done this morning. I will work on it as soon as I am done here. I don't think there will be much to add/change, so shouldn't take long.

Hmmm. I can't seem to come up with anything I need to write about, so I'll just leave this here.

PeacE

Sunday, July 19

Staying Focused

 Things are 'off' this morning. Actually, it has been most of this last week. I have been becoming sleepy at odd times, even when I feel I slept good the night before. Most days it starts about 5pm, but some days it has been random through the day. I try not to take a nap so that I will sleep good that evening, but my body disagrees. I will nod off - in my office chair, on the bed, whatever. I went to the Post last night, thinking of hanging with friends. I was feeling this sleepy feeling. While sitting at the bar, playing a game on my tablet, I nodded off - twice. I decided it was time to go home. My friends hadn't shown up anyways. I did go to bed about an hour earlier than normal, and feel well rested this morning, just mentally foggy. 

It could be the HE (Hepatic Encephalopathy) might be increasing a bit since the ascites has - which could mean the meds I take for that may need to be adjusted. My guess is they will just wait until after the TIPS Procedure, because that is supposed to affect this and more. Good or bad, won't know until it happens, but usually most are good (from what I was told, and heard from others). That's still about three weeks out ... Glad my next Para isn't. I am bloated up big again this week already, and with them only being allowed to drain 10L, I know there will be fluid left again. Oh Lord I pray that the TIPS will work and drastically cut down on the ascites build-up.

Heard some bad news from my little Sissy the other night. She is 12 years younger than I, and everyone (including her I think) were surprised when she ended up pregnant a few months ago. She is 42ish, and our first concerning thought was the age factor and delivering/having a baby. Technology has advanced enough, that 42 shouldn't be bad, as long as everyone stays healthy. Well, Friday they found out she had miscarried. Yesterday, they went to Indianapolis to have the D&C done, because the baby was that far along. I cannot imagine how she feels, but I know I am grieving. I was happily telling RM on Friday during our visit that I was proud to be an Uncle again... I don't know the whole name they had picked out, but we knew it was going to be a girl, and her first name was going to be River.

Today is ... Day 11? of no smoking. I'm starting to lose track of the day count as we go along. Still getting urges, especially around areas where I used to smoke. Last night, I vaguely remembering having a dream/vision of smoking (more than I did in real life) and it was okay to do so even with my liver issues. I was like a comic character with the cigar stub in the corner of the mouth, and like 6 cigarettes in different phases of being smoked in the rest of the mouth, giving some kind of evil grin. No idea what brought that on, but I remember it.

I'm a bit worried about RM this morning. I guess Friday her vehicle wouldn't start. From her description, and even her deduction, it was the battery, and it needed to be charged. The Youngest has this issue with his car occasionally because he doesn't get out and drive much, or start/run it for a bit every few days. Either way, as RM took it to the repair place they go, she noticed her A/C wasn't working either. Time goes on, they go back to pick it up, and the A/C still is not working. I guess she has to take it back in on Monday and leave it for them to figure it out. Weird that it would suddenly quit working with a battery issue. But I am worried about her, as any driving that now needs to be done, will be PT, and even RM mentioned just the drive to the services for a friend that passed, she was terrified by his driving. Prayers to her these next few days until she gets her car back. She is already thinking of ways to get stuff done, but without the need for PT to drive them. Like probably watching their church service on youtoob, versus actually going. Stay strong RM!!

The only thing I really need to complete today is the agenda for the Riders meeting tomorrow. From what I remember from last month, there won't be much on there, so shouldn't take long. Then I'll have to find things to keep my entertained. When I finish this, I'll be grabbing up my book and reading some of it, and spend a little time with God. Probably do my Home AA group at 11am. More than likely it will be a video game in there too. 

PeacE

Saturday, July 18

Let's See What Falls Out of my Gob today ...

 Yesterday I woke about 45 minutes before my alarm went off. I went ahead and got up, as I had plans that morning, and I might as well get things done. Around 7:30 I headed to the City of Sin to visit RM while PT was out of the house. I always enjoy sitting down and catching up with Mom, even though most of the major daily events we share through our blogs, but here we have time to talk in more detail about things happening. We chatted and I drank my iced tea (I love Mom has tea for me seemingly all the time). Around 11:00 or so, PT stumbled home (almost literally) and I visited just a little more. By then Mom and I had moved to the kitchen (from her "work room") and she was making some cookies (oatmeal raisin). Of course we each got a warm one from the first batch, and it was so nice and gooey! I finally excused myself near noon, as I had set the groceries to be picked up between 12-1.

Swung through El Pollo Loco for lunch. I love their queso guac chicken burrito, and the Youngest likes their new loaded queso chicken quesadilla. And a large horchata drink for me. Unloaded all but the soda I bought, and decided I had a couple hours or so before I needed to start dinner. Then I played video games. Around 4pm I started up the makings for baked ziti in the crockpot. By 7:30, it was ready for the last 30 minutes of cooking (where I add the pasta and cheese) and I did. It was SO. GOOD. Everyone liked it, said to keep it for future easy dinners. I'll send over the recipe to RM this morning, as she stated she loves baked ziti, and let her know of any changes/substitutions I used.

Nothing much to do this weekend. I need to work on the Riders agenda tomorrow, for Monday's meeting. I have a couple hours this morning to hit up both my AA groups online. Then it will be video games, I am sure. I shared a post on FB to my Wife that the discount grocery we like to shop at has 'restocked the freezers' and one picture showed many bags of Sonic tater tots. I jokingly threw out that I love Sonic's tots, and we should get some. The Middle Son's girlfriend made a comment she would be up for going along with us to the grocery, bringing along Doc, the grandson, if we were willing to pick her up. It would give the Son some extra time to sleep (he works nights). I did verify that the Wife saw it, but do not know what she will want to do today. I'm all for letting her go with the girlfriend, but I do want to see my grandson. Decisions, decisions.

I finished up 'Day One' in my new book. The last couple pages were a bit repetitive to me, as it talks about 'naming our demons' (admitting our faults) which is Step 1 in the AA program. This book may contain many similarities, as it seems many times, this 12-step program layout works very well. I'll just grit my teeth and move along, even if I feel I've read a section before (from the AA Big Book) because if I just learn one thing in this reading, that will help my relationship with God, it will be worth it.

Heavy thoughts this morning.... I need to finish up my "quiet time" and get a couple emails sent this morning before the meetings. Y'all have a good one!

PeacE

Friday, July 17

I'll Do What I Want ...

 .. used to be my attitude over a year ago. Whether it was going to the store, or going to the bar, or what excuse am I using this time to get out to drink. I see what a narcissist I used to be. Controlling, demanding, 'me-first'... That has all been changing this past 10 months, and I have not heard one complaint about it. Sure, I don't see people I once hung out with daily, but at the same time, I am not tempted by drink. Plus, if they were true friends they would understand and support me through this journey.

Sigh. Just felt I had to get that off my chest.

RM shared yesterday about their jaunt down to see PT's doctor. I, of course, shared with the Wife, who, like me, found it somewhat funny in a non-laughing way. Honestly, there isn't much to say, or laugh, about the situation. I have used a cane for years, originally for my knees and back pains, but with the large weight-loss, and other medical, it is more for balance now. I don't know why, or how, someone could be so prideful as to NOT want to prevent falls, just because using a cane, or in this case a walker, under doctor's orders. PT just doesn't want to be seen as old, even though he is 89. <shaking head> I just don't get it.

I'm up a little early this morning. Not like last night - but still early. I was laying in bed in that 'comfy zone' just slowly going over some things in my head. The Wife's alarm went off, and I decided I might as well get up. I need to move up my morning routine, as I am headed to Sin City, I mean Sun City, to visit with RM this morning. It's a morning of the week PT is out of the house to as late as 11:30am. I don't know how busy she may be for work, but I texted her last night I was "thinking" of coming by this morning (pre-warning) and RM replied 'Yea! Keep thinking'. I took it to mean yes, still plan on coming by, but thought this morning it could have been sarcastic (my Mother? Never!) like saying "as if". I did put a timer on my visit. I do have a pick-up at Fry's today near my house for between 12-1pm.

It is a Friday night. The Youngest has made supper the past couple of nights, which is always good tasting and very much appreciated. I have been slacking, and not keeping up with my personal goal of doing at least one supper per week, to help a bit. So, yesterday I spent a couple hours looking around the interwebz for recipes for the crockpot and came across a few good ones. Out of those, I singled it down to one for tonight, then ordered the groceries I would need for it. Going to try a baked ziti.

Nothing on the calendar this weekend. I do need to get the Riders Agenda done and sent out. Our meeting is Monday night, then I'm done with meetings until next month. I added three more paracentesis appointments through 8/19 for now, and will see how the TIPS Works after that date. I may set more appts in a couple weeks, just in case I need them.

Okay, I need to do a couple more things before getting on the drive to visit RM...

PeacE

Thursday, July 16

Talk About Being Up Early ...

 Mr. Bladder woke me at 1:05am this morning. This is a normal occurrence, at least the getting up a couple times in the night. But today is a bit different.

Having the Para yesterday does wear me out a bit, and last night, as we were doing pre-bed routine (which means me on my tablet playing a game or two) I started nodding off a bit early. I gave up fighting it and crashed - and woke at 1am wide awake. I figure if I watch an hour or so of dumb videos or something, I'll get tired again (which I will at any point) and then return to bed. Overall, right now I feel a bit worn out still, but otherwise fine.

I try to update the people that need to know, about my medical stuff. Usually it just a quick test to my family chat group, and to my Sister, Brother and RM chat group. Just quick things like yesterday's paracentesis - how much drained, my weight, etc. I think it was back in December or so, That RM mentioned my Uncle L (her side of the family) had been asking about how I was doing, and I decided to create a basic document that I add updates to about monthly. This I send out to other family (more distant family (uncles/aunts, etc.) after thinking about it. Aside from my blog here, I don't share on any social platform my medical stuff. I figure I will tell who needs to know, and who don't need to know, well, the are SOL. My point is, this morning (already!) I had a reply from my Uncle L (whom I email the updates at RM's request) just saying they are thinking good thoughts for me, and are behind me in this stage of my life. It was kind of just a generic one-liner, but coming from him, it meant a bit more. We were never 'close' as I grew up - living with my Dad prevented a lot of that with RM's family. So even despite that 'gap' he has always inquired after us kids when he talks to RM. Don't know where I am going with this now, but just know it was sort of touching for me. I gave a quick reply to acknowledge it, that he will probably see in just a couple hours (he's back in Indiana).

Need to call today and set a couple more Para appointments to cover the time before getting the TIPS done. Next week, or the week after, I'll call for 2-3 weeks appointments after the TIPS, just in case it isn't working as well. It will take a bit of time to see any changes that are going to last. Here's hoping for the scenario where I don't have to do Paras at all! But I ain't holding my breath. It's one of those Serenity Prayer things - like many other things right now. 'Accept the things I cannot change, Courage to change the things I can, and the Wisdom to know the difference'. 

Okay, well, I ran out of anything in my head to ramble about, so have a nice day.

PeacE

Wednesday, July 15

Pre-Warning: It's Loaded and Ready to Fire!

 Since last year ... around July I think it was, I started getting an umbilical hernia. Yep. Just like it sounds. A type of hernia at the 'belly button'. In my case, it was a result of the build-up of ascites in my abdomen (before I found out). Well, over the last year this hernia has gotten slightly larger. It protrudes like a bubble right at the umbilical site. Currently, it has gotten to where if I cup my palm, and lay over the hernia, it fills my hand. I did see a specialist about it back in October. He said it is nothing to majorly worry about. Since I was having liver issues, that when they do a transplant, they are easily able to fix 'while they are in there'. There is no fluid seepage, and no pain, so no emergency to treat it. I'm okay with that, expect now it is like a stubby cannon ready to fire - like those fire hoses on the river boats for the Fire Dept.

Well, speaking of fluid build-up, it is Para Time again today. I got the primo time of 9am this morning. I feel like we are going to hit that 10L max drain limit, and leave fluid in there again ... but I am so uncomfortable right now. I mentioned to the Wife last night that I am actually anxious - excited anxious, not the worry one - to get the TIPS done. IF it is able to help this issue ....

One of the books I ordered finally arrived yesterday. It is 'Restore' by Vince Antonucci. RM has just finished it, or is near the end, and has shared some days with references to this book. It looks like a 30 day devotional (and it may be) but not having started it yet, depending on the length of the chapters, I may do one, or split it. Either way, reading the cover synopsis, and the chapter list has me excited to start it. I have a little time before I leave for my Para, so I am going to read now.

Okay, I am back! Just home from the hospital getting the Para. Drained 10L, left some fluid. Seems this is going to be the weekly thing now until I do the TIPS procedure 8/13. So I am feeling a bit drained (see what I did there?) and tired. Always am after these for a day or two. No other big news to share.

I started on 'Restore', and I admit, at the beginning it is a bit hard to put down. Almost done with Day One, and I had to stop for the appointment. Maybe I won't do it as a devotional, but just read and make notes daily.

And that's all I got. I need to eat my lunch from El Pollo Loco!

PeacE