Wednesday, September 9

Day at the Mayo

 Sounds artsy-fartsy, huh? Like, 'A Day at the Louvre', except it wasn't. Got through my appointments yesterday and had some positive changes and news. My MELD score went to 18 (worsening). They did increase my diuretics back up a little to fight this edema. They also stated that my case will be reviewed in one month, after a similar of appointments!!! We are close!

Today I have a draining at 1pm. Due to my size with all the fluid retention, I have no clue how much they will drain. I am thinking10L and some ... but really can't guess. Just get some of this pressure off!!!

I am totally distracted by my medical stuff right now, this will be short today....

PeacE

Monday, September 7

It Was A Day ...

 Turning 55 years of age is not a huge mile marker like 30, or 50, and so on. I truly was not expecting any big shin-dig, or some major surprise party (thankfully! I hate those). I pretty much did nothing all day. The birthday posts on social media started coming in. a few family/friends via text. One call from the Daughter and the Granddaughters to sing Happy Birthday to me. One call from my best friend back in Michigan - though I didn't answer it. I was in the process of going to bed (8:30pm? Yeah, I'm over 50). Think about then there was probably around 60-70 posts from HS friends, to current friends, and so many others! I did reply personally to many of them yesterday, but will be doing the final ones this morning. I heard from the Middle Son via text. Never heard from the Oldest Son, and the Youngest, though living at home, never said anything either. Oh well.

Today is Labor Day, and I have nothing planned. The Wife has to work. The Youngest has a friend in town from out of state, so no idea what their plans may be. I'll probably do my Homegroup meeting, then play games the rest of the day - no I won't. I didn't do the minutes yesterday...oops! I just pulled out the laptop so I can start on them next.

The Wife and I were discussing my medical last night. I need to be sure to bring up the edema in my legs. It is worse than when I started a year ago. My legs are so sensitive to touch, yet itch all the time. The swelling is bad, too. Look like two large lumps of meat. Compression socks seem to help a little, but I don't see much difference. I think they should increase my diuretics, but I am not a doctor.

Welp, got other things to get done (minutes) so will end this today.

PeacE

Sunday, September 6

Well, That Didn't Go As Planned ...

 I wasn't planning on making the obligatory post that it is my 55th birthday, and that I was pretty much going to try to NOT do anything productive today ... but 4:38am had a whole 'nother story. When did did get so much control over me? When I began losing track of it, or because I gripe about needing more of it? Either way, though there are several choices of things I could do at this insane hour, I figured I would put a shortie up.

Yesterday was a good day. Tiring, but good. I met up with one of my besties, Jeff, just up the road at a pub we used to go to occasionally. He had invited several mutual friends, his Dad, me ... not sure who else ... to come up and watch opening day for College Football. One of the first games on was Baylor Univ. and Auburn. His nephew plays for Baylor now, and got plenty of play time, as well as his name mentioned on television a few times, just that I saw. That kids is a Hoss!! Huge Defensive End! Well, Baylor lost by one, but I didn't see it. I made it to halftime, and let him know I was taking off. It had been a couple hours already, and I had previously let him know that was my limit before I start getting fatigued. Well, it's part true. That and being the only sober one there at halftime was not much fun. We made tentative plans for lunch soon.

I had mentioned mutual friends ... I personally had not told any of them except my buddy my medical stuff (he's my bestie, c'mon!) but I guess he had mentioned it to some of the guys. As I was telling Jeff bye, they kinda gathered round and would shake my hand, give me a hug, and say something like 'Hope everything goes well'. All of them. It was kind of a weird feeling having these guess that I know, but are more his old HS buddies, take an interest in me because of a liver transplant. It was touching, don't get me wrong. Just felt weird.

I was tired. I had nodded off for a few seconds a couple times near the half, but that could have been boredom as well. I sat there in the car (waiting on the a/c to get it cool - it was like 104 out) and decided to get moving. I had told the Wife my tentative plans for the day, and if they were to get done, I needed to get going. I went and got some hairs cut. I feel so much better now. Though, I had not seen this stylist at my location before, and if I do, I'm not going to use her. She took seemingly forever to just do a "0" on the sides and back. I am usually in and out in about 10 minutes ... this dragged into a half hour. They aren't paid for the time, but for the customer ... so no idea why she was so slow about such an easy trim. From there I headed to the VFW. Tuesday I had been told they were doing an impromptu birthday thing for one of the ladies that helps out a lot. I was told about 5pm. So I am there early (my normal) and playing games on my tablet. The Post had their dinner starting at 5pm (pulled pork sandwich, Slaw, ranch beans, dessert - $10) and I was famished. I bought and ate, all while still waiting for this shindig to happen. By 6:30p I told my friend Stacey (who was doing it) that I had to head home. I was beat. The gal's husband hadn't even left to get his Wife yet, and knew it was going to be even longer. So I was home say ...6:30'ish? Maybe 7pm at latest.

Crud. I just remembered I need to do the Minutes from Tuesday's meeting today. Guess I will work on that at some point. Needs to be done and emailed in today.

I played a video game I have been working on for awhile. In bed by 10p, and up too early. Refilled my pill boxes for the week. I had confirmed yesterday the 5 appointments I have on Tuesday. And now? I am off to check the mail, etc. before playing some more games.

Thanks in advance for the birthday wishes.

PeacE

Saturday, September 5

Holiday Weekends and Posting

 In the past several years, around mid-August I would throw out the "big invite" for my Birthday celebration. Always on the Saturday of Labor Day weekend, usually 12p-4p (which led into later times as well). Come by, have a drink with me, catch-up, share memories, or just say hi. How long have I been doing this? Five years? Six? And before that it was by word of mouth. Either way, my Birthday coinciding with Labor Day weekend was nothing more than another excuse to drink, get wasted, do stupid things (like drive home). That Era has ended and falls to memories and recounting of experiences to share.

So no 'shin-dig' for my Birthday. This year, I am fine with that. I'm not really in the mood for any crowd (more than 8-10 people) anyways. My medical stuff would turn into the main topic that everyone one wants to know about, as so many people do NOT know. I've kept that circle down to close family and friends, and I don't post anything publicly on social media about it. Here? Ha! All two of you running to the News station yet to get a reporter here? Thought not.

Today I am doing two meetings (AA/Live support) and my Home Group. In both I get to announce that tomorrow (my birthday) is also my 1 year of sobriety. And yes, I am going to ask for a coin! A year ...wow. That's the start of all this liver stuff. The start of making new friends. The start of learning how to take better care of myself through diet, exercise, and mental exercise. The start of learning to fall in love with God again, and improve relationships. So many good things in just one year. 

No post tomorrow. I am enjoying the Day!

PeacE

Friday, September 4

Grading Complete!

 Welp, only one person physically replied to taking the test, but I am sure the hordes all read it and made the same decision. It wasn't that hard. I skipped posting yesterday. I woke feeling sort of blah, and decided that a nap was in order, so back to bed it was! Last night I didn't sleep well, and I feel like am lagging a bit this morning, but I will get through the day - with maybe an afternoon nap.

I've been wearing a pair of compression socks I had lurking in a drawer, for the past three days ( I know, they need to be washed). The fluid in my legs has decreased a bit (maybe almost half?) though it feels like there is fluid still built up in my thighs, and I have pitting up and down the whole leg. Side effect of the TIPS, I'm told. My abdomen is still distended as well. After draining the 12.5L this week, it didn't go down like before. The Wife says it feels like there is fluid between the skin and all that, but I don't know. I'll hopefully have someone look at it Tuesday.

The Youngest came home the other day and said his check engine light had come on. I thought about giving him a dead-pan look and saying "So?" but I didn't. We are headed to Autozone here in a bit to see what they find on the OED device (codes) and hoping it only a maintenance type issue, or need new air filter. Youngest said he thought he felt a small decrease in power, but otherwise didn't notice anything. Maybe the O2 sensor needs a good 'blow out' on the freeway.

Other than that, I gotta go. Busy morning for me today.

PeacE

Wednesday, September 2

Pop Quiz!

 Didn't think there would be a test today, huh? Well ... SURPRISE! I will make it a bit easier for you and make it a multiple choice question. There is only one right answer. Write in answers may get extra attention if it is really good. If you are correct, you don't get anything except the satisfaction of being right.

This morning, about 6:45am, an incident occurred in my home. The bedroom, and narrowing that down, my bedroom. Whilst in the stage of blissful sleep (took a pill last night) I ended up doing a nosedive off the bed. Why?

A. I just rolled off the bed.

B. I was dreaming of sky-diving, and adjusting my angle of descent prior to pulling the cord.

C. The chow bell was ringing and I didn't want to be last, but lost my balance.

D. I had to use the bathroom desperately and hurried from the bed, only to slip and fall.

E. I wanted to show my Wife how I've fallen for her.

F. Other (Write-in answers welcome.

I'll answer at the end of the Post, and tomorrow post the scores. Might have to grade these on a curve...

Finished my quiet time this morning. I feel fresh and renewed with the Spirit! I think my regular AA group has a Big Book study today, so that will be good. Nothing else planned for the rest of the week, just the medical appointments on Monday. I need to write Mayo this morning about the two diuretics that they slashed down once I had the TIPS. Also, the PA at AZ Liver won't renew either of them, so need Mayo to take that over as well. I found and wore one of the pairs of compression socks yesterday. Allegedly you are to sleep with them on as well, but sleeping with socks on has never been my thing, so by 10pm they were off. I noticed this morning (as I was checking for any cuts) that the swelling has gone down a good bit in both legs - Magically overnight it seems. Now yesterday, the draining  was 12.5L and they said they got it all. But my weight, after only one small pitcher of tea, was 281lbs. Now last dry weight was a couple weeks ago and was 251lbs. Where is this 30lbs at? Fluid in my legs? So I checked my weight this morning, and I am up to 284lbs. But I know for sure the fluid in my legs went somewhere overnight, well, a portion of it did. I might wait a day or two and see what happens before reporting it to the doctors.

Yesterday's paracentesis was late enough (1pm) that I didn't finish the 4 bags of albumin until about 3:30pm. I debated getting something to eat, but wanted a dry weight check when I got home. Also I had the House Comm. meeting at 5:30pm about 4 miles from the hospital. So I just went to the Post. We finished up the meeting early, and I booked it out of there. RM had texted at one point (I had the phone on quiet) asking if I was ok and didn't I have the para that day. I told her yes, and would get the regular family update out when I got home. Which I did do. Before I left the VFW, I checked in with the Secretary of the AUX (I'm Asst.) and asked if she needed anything from me. She said not then, but would be cc'ing me probably this week sharing information and other records for me to hang on to or help with. Joy. I also need to do the minutes ASAP as they need them prior to Tuesday. And my Youngest attends his first meeting on Tuesday! I'm excited.

Today is National VJ (Victory over Japan) Day from WWII. Also coming up is on 9/11 the 25th Anniversary of the event, and 9/18 is POW/MIA Day. The Auxiliary has a birthday later this month as well, but I don't have the day in front of me.

Welp, I'm shared out this morning. Talk at ya next time!

Oh, and the answer was "A"

PeacE

Tuesday, September 1

Count Down!

 I am literally counting down the hours to my paracentesis today. It is at 1pm. So, it is only practical I wake at 4:30am, to be sure I am awake in plenty of time. No, but that's what happened. Which is fine with me. I feel rested, and I get to extend my quiet time a little longer. I did get in two books yesterday that I had ordered. "Drop the Rock, which concentrates on the fundamentals and reasons for Steps 6 & 7 in AA. The other is "Drop the Rock ... A Ripple Effect" which is sort of a second book that tells how to use Step 10 to use Steps 6 & 7 everyday. I am not that far along yet, but I can read ahead and prepare for it.

I should have a third book coming soon "The Overthinkers Guide to Making Decisions: How to Make Decisions Without Losing Your Mind". Sounds like a spoof, eh? Well, it is a real book and I ordered it. 

Ugh! The pressure in my abdomen is terrible. The swelling in my legs is terrible. And as I ordered, or made sure was on auto-refill, my prescriptions with Walgreens, the two they are having issues renewing are the two diuretics. I see they are still listed in the Dr. at AZ Liver, and he is probably not happy with me. They had called about a month-two months ago, trying to schedule me to come in for some lab work (they do it in-office). I said no. I get enough done at Mayo, and they can contact them for that info versus me doing it again, and paying it (my insurance anyways) again and overall wasting my time driving there, etc. Besides, he was the one that referred me to Mayo! HE even said he was stepping back and letting Mayo have full control over my treatment and care. Now they pull this crap. Anyways, they won't renew it (probably without an appointment - not happening. I'll just add that on to my message to Mayo today, that since these two prescriptions are what the Radiologist changed (and I think need changed back) and I need some anyways, Mayo can take it over.

Seven hours. I decided not to do my regular AA group this morning. It ends at Noon, and I want to be already on my way to the hospital. I am almost always early to things, and this is no exception. It'd be nice if they are running a little ahead of schedule as well. I did try a new group the past week at 8am, strictly a book study/discussion, and turns out I knew about 3/4 of the people there from other groups! It was like walking in on the same meeting! But their book study is pretty good, and there isn't a "tag" session to have people discuss whatever the topic is. I don't mind sharing, if I have something. Seems lately quite a bit of discussions are geared more around the later Steps, and I don't know anything about them aside of what they are. So I usually pass with the "I'm still new in the program enough I have not made it that far".

Welp, I would love to waste more time here this morning, but have pretty much ran out of things for now.

PeacE

Monday, August 31

Popping Balloons

 That's kinda along the lines of how I feel this morning. Tomorrow ... para tomorrow and get drained. Ugh! Then I will message Mayo and let them know how much was drained, then explain about the swelling in my legs/feet. Going to try to get a decent picture as well to send. They are worse than when I started with Mayo. I feel it is because the adjustment in meds, but I could be wrong.

Today's meditation/reflection was on criticism and judgement, how we should refrain from both. I believe these are two of my more major faults I have going on. I am always quick to judge, stereotype, decide where you would fit in my "pecking order". I also like to comment on how badly someone has done something, or how they could have done it better. One of the things I shared with RM, and she smiled and was shaking her head in agreement, was about learning as a parent to let go of your children and let them make their own decisions when they are an adult. I have been working on it with the Youngest the most, not playing '20 questions' if he takes off and goes somewhere. The other two boys, well, sometimes I just want to give them my say so about some issue they are going through, but I shut my mouth and tell them if they want my opinion or experience to ask for it. After instructing the directing them for 18 years, it's a hard habit to break.

God and I spent some time going over those two defects, plus some others, that I asked to be removed from me. So I got some work cut out for me.

I really don't have much today. I'll do my AA Home Group at 11am, followed by their monthly business meeting, which doesn't last long. Then I guess it is computer surfing and video games.

PeacE

Sunday, August 30

Givin' A Holla Out to ....

 Meditation for the Day

One secret of abundant living is the art of giving. The paradox of life is that the more you give, the more you have. If you lose your life in the service of others, you will save it. You can give abundantly and so live abundantly. You are rich in one respect — you have a spirit that is inexhaustible. Let no mean or selfish thought keep you from sharing this spirit. Of love, of help, of understanding and of sympathy, give and keep giving. Give your personal ease and comfort, your time, your money and most of all, yourself. And you will be living abundantly.

This was in my "Twenty Four Hours a Day" book for today. As soon as I read it, I realized, this is RM. Now Mom has been this way for several years, though I honestly can't say how long ago I noticed it. But she is the Giver. She even admits to her love of giving things. She bakes, especially around holidays, and gives it away. She takes time (and a some food) to a couple ladies she knows from her neighborhood. She has made room in her schedule to help me at times (though I try not to ask too often). Even I am presented with gifts she 'inadvertently picked up', or because she just saw it and thought of me. I know she does that for others as well. It really makes me proud of her, and makes me want to give as well.

You're the best, Mom!

I think I have talked about giving before in an older post. The nudges I have had and acted on, the feeling of elation inside because you helped someone in someway. I believe this is truly God giving those nudges. To teach us to share? To help the other person in some way? No idea, only He knows His Plan. But I have found out, it is getting easier to give as I grow in my spirituality. I think the "want" to do it is just inherently part of the package. Even AA supports the giving, as Step 12 is to help other alcoholics find the program and help them on their path of recovery (actually spoken about before the meditation on today's reading). Have I helped any alcoholics? I don't know. Maybe something I said clicked with them and they went off to do it. I am too young in the program to be any type of Sponsor for anyone, so my giving is in experiences and sometimes, that is all someone needs without it being crammed down their throats.

Yesterday I did go down to the Post. I saw a couple guys I hadn't seen in awhile. I did get the minutes and agendas done that needed to be done, emailed them out. I'm caught up on that until after Tuesday's meeting. I was back home after about three hours. Then I played video games most of the evening. The Wife did a store run, and ended up making (maybe just re-heating) Salisbury steaks and mashed potatoes. It hit just the spot last night!

No major plans today. Tuesday is my paracentesis, and I am ready to drain. I haven't been since the 19th due to scheduling conflicts. I know after the TIPS procedure that there could be some side effects. One is random drain amounts for a few weeks, as the body adjusts to the "bypass". Some slight swelling in the feet and legs from fluid build-up (not ascites). My legs are well loaded now. So much that it feels like the skin is just going to split open. Yesterday, I could barely get my slip-on shoes onto my feet. The 'pitting' and edema goes to nearly halfway up my thigh. The Wife says I need to let the Dr. know, and I will, on Tuesday, that way I can let them know how much was drained as well. I think the Radiology doctor changed my diuretics too much after the TIPS. She cut one from 400mg to 100mg, and the other from 80mg to 40mg. I think if we put the one back up to 80, and do about 200 on the other, it would help ... but what do I know? I'll mention this as well when I message the doctor. The edema is worse than when all this started a year ago.

And with that I will close out and get on with my day.

PeacE

Saturday, August 29

Relocation is Important Today

 I have 'blown off' the duties of my VFW positions for the past week or two. Why? No reason, just that I am being distracted at home. Trying to work from my desk, the temptation to just 'do another meeting' or play video games. Or even the worst - facebook scroll of death. I'm just too distracted. So this morning I mentioned to the Wife that I was going to do my two regular Saturday meetings, then head up to the VFW so I should be able to focus better and get the work done. The last few months I have only been up there for meetings, so maybe it isn't bad that I spend time there.

Well, I got an answer to my nice inquiry about my medical case and care plan. They scheduled in a CT-Abdomen  on the morning of 9/8, as well as the already scheduled bloodwork, nurse and doctor consults. They need to get the updated figures from the bloodwork and the CT to bring my case to the review panel. So, I am on hold until 9/8 for sure right now.

Had a great lunch with RM yesterday. We both had salads, and spent a couple hours talking about different things. I regretted somewhat that we had to end when we did, but she was on the clock. As always though, too little time spent together. I'm looking forward to the next one, though have not even set a date as of yet.

Welp, I am in a meeting, so I am out of here....

PeacE

Friday, August 28

Is Your Day Going To Be Better Than Mine?

 Welcome to another Friday edition of my ramblings. I truly think that is all I am giving you today, because not much else has happened the last couple days.

This morning I have my yearly diabetic eye exam. That has gone fine the past 2-3 years, and I see no changes to that happening this year. Afterwards, I am headed further West to the City of the Sun to spend part of the day with RM. I know she was see-sawing about just taking today off work, and I don't know what she decided, but I will be out there mid-morning to visit while she works. Then it is off to Red Robin for lunch. I have been waiting all week for salad! Then we have another stop that needs to take care of something before returning back to her place. From there I will probably head towards home.

I might stop and get my haircut on the way home. I haven't decided. 

After I finish writing here, I will be writing a message to Mayo Clinic. I have not heard anything for a few days, and want to find out what is going on. I waited this long, so when I write the message, it isn't aggressive and demanding. I just want to know the status of things, because as far as I know, I met all deferments, thus should be up for case review, and make the list. Sigh.

I just finished up a small water. Now I am craving cold water to drink with no stopping. I hate when I feel that way, because nothing makes it go away, and I have to force myself NOT to drink so much water. Especially right now as I am pretty full-up on ascites that won't be drained until 9/1.

The Wife stopped last night on her way home and picked up Church's Chicken. I normally am okay with them, but am not a chicken dinner kinda guy anymore. I don't mind chicken sandwiches, but the whole leg, thigh, breast thing I could just do without. It's messy. Well, last night, getting a family order, they were 4 pieces short of the regular, and it would be 20 minutes until it was ready, so instead she got 4 pieces of their 'hot and spicy'. I had 2 pieces and Youngest Son took two. I was not impressed. Wasn't spicy. Was really greasy - more than chicken usually is. And even now still sort of sits on my stomach not sure if it should be processed or thrown up. I've been trying to stay away from greasy stuff since my bile duct, gall bladder and all that is somewhat compromised as they work with my liver. Don't need to cause extra problems.

Welp, I should get dressed, get that message off to Mayo, and then get stuff together for my eye exam and going to RM's. I make it sound like a long trip ... but when you are older, there are certain things you need to take with you everywhere you go...

PeacE

Thursday, August 27

Car Dreams

 I think many of today's men (in my age range and more) and their childhoods, with memories of playing with Matchbox, or Hot Wheels, cars. We all had our favorites, too! I could not begin to guess the percentages of men that went on to become car fanatics: restoring, showing, driving - you name it. I ring this up because I had a car dream last night.

I had just woke up from a late night of carousing, so it was around mid-day. I was getting dressed and throwing clothes into the trash (they were worn, ripped holey jeans) until I found something appropriate to wear (shorts and tee). I grabbed my keys and hollared to the house (and the Wife I presume) 'Taking off! Taking my dream today!'. I walk out into the 5-bay garage (oh my goodness, am I rich?) and stride over to a gold colored Saturn. Yes, like the one I drove years ago. She shined in my eyes, and I felt my heart racing  knowing how her motor would feel as I cruised.

Now why a Saturn, no idea. But important in the dream is that it had a door lock system consisting of three electronic buttons. Well, different combinations would have the car do different things, like auto-start. Well, as I reach through the open window, and hit the switches, the car starts, then dies. I do this several times. I check the gas gauge - empty. No gas cans around the garage. I get in, and pressing the start thing on the electronic panel, I finally get it running and coaxing to stay running. I'm  off to the gas station. I get there, pay, hook up the pump, go inside. As I come out someone next to my car says he don't like the look of it and points. The driver front tire is held on by only one lug and is tilted to undrivable, but I get in, start it up and lean to the left. The car shifts up on that wheel so it is straight up, and I drive off.

That was it. Is there some deep-seated mental story behind it? I don't recall thinking about the Saturn yesterday at all. Some more of the dream is coming to mind now, but not enough to put it into words. Maybe it is just some random mind release whilst sleeping. Just weird.

AS of right now this morning I have not heard from Mayo Clinic. I do not know if they just did not have the time to put my case together to present yesterday, or they found more that 'needs to be done'. They have always called me in the past. Maybe I will just have to wait another week. Sigh. God is teaching patience with this.

I only have a couple zoom meetings on my agenda today. Tomorrow is the eye appt. then lunch with RM.

PeacE

Wednesday, August 26

When You Feel It Working

 This morning I am feeling pretty good. I believe my body got a caught up quite a bit and I don't feel as tired. I also feel God working in me today. I did my quiet time, and as I prayed, I just 'felt it' on the mental inside. It gives me more hope that I am not a lost cause, and I still have a purpose in God's Plan. Now to apply in life and keep the positive changes in practice.

Today is Wednesday, which means that Mayo Clinic does a review of cases that are up for the Waiting List. Mine has been there twice, both with the vote that there were some deferments (things to complete) to do prior to being on the list. This last round was only a Negative test result on the tox screen for Nicotine, which the outside lab gave results on Monday. I sent a message through the patient portal, to let Mayo be aware the results were in, and it cleared my last deferment. Tuesday morning I got a generic reply that they will review the results on they are final, and they turned off the availability to respond at all to the message thread. That in itself made me very angry. Either way, all I have heard from Mayo is a couple emails yesterday that test results were in, and I would look. It had to do with the colonoscopy bloodwork, or the report for the procedure. Nothing on the tox screen. So as of this moment, I have not heard anything about it going to review today (this week). Perhaps I will get a call this evening informing me otherwise. They usually do call when a decision has been made after a case review.

This last week I have had some of the side effects of the TIPS start to show up. My feet and lower legs have swollen a bit due to fluid retention. "Liver Spotting" on my arms is happening more. That's the red markings like when you bump your arm too hard, or I get them from needle sites from the IVs. Sometimes I get them from just scratching an itch. Also am getting some bruising that I know not from where it comes. Right now it is fading fast, but who knows if it will come back. I haven't noticed any increase/decrease in the encephalopathy factors - I probably wouldn't remember anyways.

My schedule is clear of appointments until Friday morning when I go do my yearly diabetic eye exam. The past 2-3 years have been fine, and I expect no change this year. Then with my eyes dilated I am heading on out to RM's to visit, have lunch, stop at the bank, before heading back home for the day.

All my candies are in! I have hard candies, jelly beans, and spiced gum drops! The "twenty four hours a day" book arrived yesterday as well. I need to learn to read descriptions better. This little hardback is literally smaller than my phone, but each page does contain a prayer, an AA Though of the day, and a meditational thought. I will add it to my quiet time reads and see how things go. I finished "Restore", and although it wasn't overall really what I was looking for, it did have some good information. I am just not sure what to do with the book now. I have very limited space to keep it. Maybe I will hang on to it a bit and see if I come across anyone that could possibly benefit from it and just give it to them. I am flipping back to the other book I had started, "Demolishing Doubt" and see where it goes.

I think that is all I have today.

PeacE

Tuesday, August 25

Results Of Our Actions

 I am tired this morning. I should clarify, I am sleepy-tired this morning. I do not know if it is maybe some residual effect from anesthesia, or just the body needing more rest (or both). Either way, there is a nap somewhere on my clear schedule today, be it this morning, or afternoon. Probably afternoon, as I would like to make my AA group this morning.

I also feel pretty fat in the tummy. It's not pressure related like the ascites build-up (though I do have that going on) but I think from eating yesterday. Being allowed to eat less restricted than I was for the cleansing, I might have ate too much throughout the day. I know I do not feel hungry at all currently, and I usually have to eat something with my meds or get nausea. Not today. So I'm just sipping on a beer (c'mon, it's root beer).

More for Papaw's stash should be arriving today. The package today is spiced gumdrops. Also a devotional specifically geared towards alcoholics called simply "Twenty Fours A Day" I bought it in hardback (thrift books only had paperback). I'm hoping it fits my needs I feel I need at this time in my quiet time with God.

I finally did decide to do a Prayer journal, listing specific people and their needs, except those that if someone were to read, would be sharing with people I shouldn't. Those I'll keep in another place. This way I will remember better what I am praying for for that person. With my memory issues, that is important.

I had a message reply this morning from Mayo regarding the lab tox screen results. I instantly got angry and prepared to type out a scathing reply, then stopped. Their reply was basically "Thank you for letting us know you completed the appointment. We will review results when they become official". Generic. My name wasn't mentioned, nor any particular of my case. I think this is the first time since I started with Mayo, that I feel they have let me down. This reply felt like someone that did not read through the last part of the email chain, that the appointment was done and they were contacted LAST week to watch for results; I was letting them know the results were ready and they needed to get them to try to get my case to the review this week as this was a final issue; and though it sounds bad, I really felt this was someone that was lazy and was just throwing out generic replies to maybe a large amount of incoming messages to "be caught up" in their work. Sigh. I sighed. I did not reply anything, but I prayed for patience. This is moving at God's speed, and it will happen when he wants it to happen.

With that said, I think I am out of topic today.

PeacE

Monday, August 24

Papaw Has The Goods

 A few short nights ago, I was awakened early, and like most times when I am wakened that early, I was pretty wide awake. I did the usual ... go to the office and to get on the computer - to try to find something that makes me sleepy. I noticed the Daughter was still online in Discord, and in voice chat, so I decided to pop on and say hi. I guess she is up late/early with her youngest (my Widget) as she was awake. So as we both played a game on our own, we talked a little bit. I mentioned that I thought I was out of hard candy, which I could have whilst not eating for the colon cleanse. I mean, c'mon! Papaw always has candy on him!

I think the last time RM "ran something" up to the Wife's work it was a box of beef jerky strips. I think it was that same time she sent a cannister of the hard candies like I remember having sitting in a bowl at Grandma's house. I called it Granny Candy, and loved it because it was a hard candy that sometimes had a sweet filling in the middle of the piece. It was a brand name that had been around awhile. I think RM picked it up because of some discussion we had, or my monologue about it. 

So, long story longer ... I was looking to see if I could buy this candy in bulk, at least larger than the cannister RM had bought (which was gone and empty already). After a brief skim through Google, it looked like Amazon had some of the better deals, so then I searched there. I found a 5 lb. bulk bag of hard candy - a mixture of Jolly Rancher brand fruit candies, starlite mints (red & green) and the little individual wrapped fruit ones. All for about $20. Into the cart it went.

Now I was looking at candy, and knowing I was "out" at home, I started craving more. I looked up spiced gumdrops. Mmmm, little pricey for 5lb. and could not guarantee freshness (so they aren't dried/aged hard as a rock). Uh oh. Jelly beans. Just regular mix of jelly beans - none of the Jelly Belly flavored, or 'gourmet blend' bags. But got a 5lb. bag of regular ones of the standard flavor variety. They are smaller than regular jelly beans, but it'll work. Haven't tried them yet, as it isn't a hard candy approved for the cleanse. BTW - first two cups of the drink is down this morning, two to go.

Hmmm, guess I was wrong. I did order the spiced gumdrops and have a 5lb. bag being delivered tomorrow. As well as a devotional book called "Twenty-Four Hours A Day" and  it is a meditation book for those in recovery offers daily thoughts, meditations, and prayers for living a clean and sober life. We have used it before for discussion topics for my AA meetings, so I went ahead and got it (hardback). I did check the thrift books site RM uses, but they only had it in paperback.

So Papaw is once again stocked with candy (I don't eat it much at home because of watching my glucose being near diabetic). Plus some daily reading to go with my quiet time. I have had several questions pop up in my mind that I wanted to ring to discussion at lunch on Friday with RM, but I was no where near a notebook to write it down (sacrilegious!). I need to get better at jotting down my notes - I had gotten out of practice with not going out much. Well, worse case is I remember it later and just email ask her. I know she would love to be able to answer some questions with her experiences/interpretations.

Well, it is 4:30am, and I officially am done with the colon-cleanse drink. Nothing to eat or drink now until after the procedure. I am not expecting them to find anything that would hold me up from the transplant list. I am still waiting the results of the tox screen I did last Wednesday. Would love to get a call later this week letting me know I finally made the list.

Have the day you deserve....

PeacE

Sunday, August 23

The Squirrels Got Me

 I forgot to call last week and start setting up some appointments for paracenteses. I guess when I reach out tomorrow (when I can) I'll have to see how far out they are right now. I do have ascites build-up already, but not nearly as much as usual at this time (that make sense?). I figure I set one for each week for now, I can cancel if needed. Like I did before basically.

I got sidetracked with all the prep for the colonoscopy tomorrow morning. I have not had much in solid foods. I have gone through some broth though! I heat up a 2-cup mug in the microwave, then add a packet (about a ketchup packet size) of siracha, and just a touch of a multi-spice I like ... and voila! So good! I'll be having more today! The Wife had went to the store yesterday, and I actually gave her a mini-list of some items I wanted/needed. Broth was at the top (we were out at home) and I git some other things for lunches this week, or snacks. Almost wish I hadn't because last night I kept wanting to get into some of the stuff, but no solid foods!

Today I have taken the pills they said to take. I need to mix the 64-oz jug solution (for drinking this afternoon/evening) and had at least a couple trips to the bathroom just while trying to write here. Maybe TMI ... I don't care. I need to weigh myself just before leaving for Mayo tomorrow morning, and compare to what they get, and that will be my weight.

Still waiting to see results from the tox screen this last week. Fingers are crossed.

Friday this week I get to meet up with RM for lunch!! Friday I have my yearly diabetic eye screening, and their offices are about 1/2 way between RM and I. There will be eye dilation, so the plan is for me to continue out to her place, and visit a bit before heading to lunch. Then back to my car (eyes should have adjusted back by then) for the drive home. I think we decided on Red Robin, for salads, but don't remember for sure.

Youngest should be back from his 'California Adventure' sometime this evening. I hope so. He is the one to drive me tomorrow morning to my colonoscopy. I should double-check with my Brother, as I asked him to back-up if needed. I need to be sure he is available still, and then let him know by tonight if I need him. 

Okay, I need to get out of here. I still have meeting minutes to do, and agenda, as well as play my video games and void the system all day.

PeacE

Friday, August 21

A Day With the Wife ... Sorta

 Today I have a pretty easy schedule. Both are at Mayo in Scottsdale: a blood draw for some tests, and an ultra-sound to take a look at the stent from the TIPS. This is just a routine follow-up to be sure nothing has "come loose" or gone wrong. Both are in the 9 o'clock hour time frame, so I am thinking lunch somewhere with the Wife. She took today off work to drive me since the Youngest is out of town for a couple more days. After that, I see myself playing video games.

I think I am doing pretty good with my time I set aside each morning to do my praying, etc. It's the evenings I don't make time for review of the day and did I do anyone wrong, etc. I just do those in the morning. RM has mentioned she keeps a prayer journal, of those she is praying for (and if they are sick, or whatever) as long as it is something that isn't overly personal. I have thought about doing one as well, just to remember daily who to pray for, since my memory is still not the greatest. I might go to Dollar Tree and get a cheap notebook to try it out for awhile. IF it works for me, then I could upgrade the notebook. Or not.

I am probably about three chapters from finishing the book "Restore" that I have been trying to read a chapter per day in. I think it is an okay read. There are a few sections that actually seem to have some idea(s) that I was looking for. But I think most of it should be directed to an alcoholic, like in the AA program. There is quite a bit I wish I knew about (re)starting my relationship with God in AA than I did. This would be a good fill in for explanations of addictions with some stories as well. I think it will be a book I pass along to like my Home group when we meet in person sometimes.

Speaking of that, I guess we are doing a "private party" event Saturday. There is a speaker sharing their story this Saturday about noon at a church not too far from my house, about 35th Ave and Northern. I think it is someone the ones in my group know from over the years. Then afterwards going to lunch together at Wildflower at 7th St and Bethany Home. I don't know if I want to really go to Wildflower, it's not my kind of restaurant, but I will take a look at the menu before deciding. Then I need to decide if I want to drive that much. But I was invited to the grouping ... which was nice.

No true idea on how I feel today. With the recent TIPS, and doing the prep clean-out for the colonoscopy, I am not quite sure where I sit with just my regular meds and all. I'm not feeling bad, just not 100% myself.

And with that, I am out of here. I need to wake the Wife and we will head out in about 45 minutes.

PeacE

Wednesday, August 19

Talk About Not Wanting To Drink

 I am on Day 5 of the week countdown before the colonoscopy. You know what that means ... things are about to get really busy here soon. I have been drinking the Miralax stuff the past couple of days (stool softener) and yesterday when I had my regular BM, I thought I was done, but a whole 'nother round came out of equal amount. Surely the tubes are clean! I know they are not, completely. But here I am am whining to you, and drinking this morning's cocktail. At least it is unflavored - even if two years ago I liked the lightly flavored orange (I think it was) version.

Met the new PCP yesterday. I think I like this guy. I gave them an update medication and dosage spreadsheet I have, so they could update their file. I explained Mayo is pretty much in charge right now. He agreed to step back and let them go. He took a lot of notes while asking me questions. After about 10 minutes, he looked me in the eye, says you are more informed about your situation and what is going to happen than any patient I have seen in quite awhile. How about we go 6 months and touch base then? I was like Sure! And I was done. I do go back 10/19 for the last two vaccine shots still though.

After that it was finding something for breakfast low-fiber, and soft. I opted for a couple burritos from a 'Berto Bros. - what? Chorizo, egg, potatoes, and cheese is soft! I barely ate one. I have the other to eat half of for breakfast (more like lunch) today. Have my drug screening labs to do today. Hoping for test results by end of week, to see if that Nicotine is Negative... Followed with a paracentesis next door at 9am. I think they'll drain 5-7 L today. New doc's orders to be turned in as well.

Okay, I have to do my quiet time and then leave. Y'all have a good 'un, ya hear?

PeacE

Tuesday, August 18

... and So I Beat Them Up.

 I really did. I beat both the Youngest and the Wife up from bed this morning. Not hard when one seems to sleep most of the day, and the other doesn't need to be up for work this early. I woke at 4:30am, right on the money. I laid there, trying to go back to sleep, to no avail. Got to thinking about what appointments I have this week, etc. and decided I might as well get up and shower, then get the day started.

Only have an early PCP visit today. Some new doctor that NOAH has assigned to me. Evidently they think I need to update them on what's going on. I'm taking in a list of my current medications and dosages, then telling them if they want lab results, to contact Mayo. I made it so my PCP has access to my file. I don't want to do lab/blood/urine workups twice a month for the same things. Plus, there isn't much my PCP is able to do at this point. I do have an appointment in October to get the third and final vaccine shots for Hep A & B. I think I should go to Walgreens here soon and get the flu shot as well.

The VFW Riders. Sigh. I was told last month that there were to be elections this month. And that was it. No clue-in, nothing. So we started out with that last night. Our President needs to step down due to online schooling he has going on until December, and possibly next semester as well. Okay - so the Vice moves up, and we elect a new Vice Pres. No, because someone holding a position now, may want a position we elect. So our Sargent-At-Arms became our President, the Pres. leaving office moved to Vice, and we had a new Rider join up that got the Treasurer position. With the new bylaws and procedures, we also needed to elect an Auditor, that quarterly goes over the accounts with the Treasure, plus will travel to another Chapter to check their records. Similar to a Trustee. Well, no one jumped at it, so they wanted to leave it blank with a future election to come when we have someone that wants it. No, I said. I'll do. I'm a Trustee for the Aux, so am learning how to do all this anyways. Plus, it prevents problems later, and if nothing else, has me as a place-holder until someone takes it over. The Treasurer and I are going to learn the Treasurer position together, as National gets things going...or when they do. So I now have yet another title. Sigh.

I received a message yesterday about some lab work being needed for Mayo. This is the monthly drug screening basically. I looked at the Doctor orders and see that the usual one for alcohol is on there. Then, written in gold filigree, was the word, NICOTINE. So we finally get a test of it, and hopefully it will come back Negative so we are able to move on. The lab is tomorrow, so will be end of week before I see results.

And that's all I got today.

PeacE

Monday, August 17

There Was A Time ...

 ... when all that is going on in my life would have put me on a different stage than the one I am on now. I may not have quit drinking. I may not have sought medical treatment. I never rekindled my relationship with God, got support from others. I would have been a bear to live with so I probably would have lost my Wife and my family. Ugh! It's like sticky slime sticking to me just wasting the time to think about it.

But I didn't make those choices or many others that could have negative impacts on my life. I'm happy (inside more than out) to expand the relationships I took for granted, and return the love given. I'm slowly getting better - even pre-transplant - and we know that is important. I'm doing my baby-walk with God, again, as I re-learn how to follow Him.

Not much to share today. I had an episode about midday yesterday where I suddenly got the shills, sweats, nausea and "shakes". I immediately went to food, and just a small bit got rid of the nausea, but the other signs were there. I went to the bedroom and left the Wife know what I was feeling. Then I laid down. Ended up napping for a couple hours versus just resting. I did feel much better though. After thoughts are the worst, but we did check my BP, which was way low (After my nap) so we attached that that was probably the issue that started things. Next time I need to remember to check the BP and Glucose.

Today starts my "Shit Week", in other words, colonoscopy preparation. I've had the meds for about a month now. I sat down yesterday and went through the instructions - Whew! They have like five or six different ones based on what meds you can take, can't take, etc. Mine seems quite regular (regular ... ha ha). Colonoscopy is next Monday. Have the Ultrasound on Friday to check the TIPS area, and some bloodwork.

I have the Riders meeting tonight. I need to get the Agenda out today. I admit, I have not touched it at all, mostly because there are some things going on I don't have the info for. Supposed election for a new Director because ours is stepping down? Sigh. This group is becoming more of a problem than I thought it would two years ago.

Alright, I got to get something actually done.

PeacE

Sunday, August 16

What I Want versus What Really Happens

 Sunday Morning Comin' Down .... oh, now I got to post a music vid....


Okay, I hope that earworm is gone for the day. But it is Sunday, and I woke early, but I feel pretty well rested. I did nothing yesterday but play games on the computer, then lay down for awhile (not sleeping), and repeat. Today is my pillbox refill for the week, and there are some fairly big changes. I went through it all, and updated my spreadsheet so I can print it out for the new PC I see on Tuesday. I'd rather not, as he is getting nothing but an update. But it is a "new doctor" at the location I go to, so it is what it is.

So seeing how this is kind of the first day of making sure my dosages are right with the changes that were done, will need to watch how I feel. Of course, everyone is supposed to watch me signs of HE (Encephalopathy) as it is possible to increase after the TIPS. General signs are confusion, lack of focus, altered character ... just to name a few. Supposed to watch for jaundice as well, but that has been watched for since day one.

Though I feel mentally fresh and awake, inside I still feel a bit fatigued - not sure why. Could be the body adjusting to the changes. If not gone in a couple days I will contact Mayo to check about it. 

For all of you that read here (all two of you) thanks for the prayers and support. Keep them coming until this whole transplant thing is done.

I'm off to do my quiet time.

PeacE

Saturday, August 15

Well, Mark That Off the To-Do List

 It is Saturday and I am home. I actually came home yesterday, after the one night of observation as planned, I was just too tired to do much. I put my phone on do not disturb and had some naps, a little computer time, more naps, dinner, then bed. Slept good being in my own bed/pillows, and no waking up every couple of hours for BP check or whatever. Doctors said the procedure went very well, and was able to be done without any complications. The results of the procedure will take longer to see, as it has to do with the ascites build-up in the abdomen. They did drain 7L while I was under anesthesia, so am "starting dry". Two days is a bit early to tell if it is building up again as fast as before... I do have new Dr. orders to be able to get a para when I need one. 

It is just one of my characteristics that probably needs to change, but I am getting irritated at the Wife. A little. The seemingly constant question "Are you feeling ok?" or "Do you need anything?" is driving me nuts. I have restrictions - not to lift more than 10 pounds for 2-4 weeks, but no others that I know of. I'm not invalid. And I don't mind her asking, but it seems more frequent than it needs to be. Like I said, it's probably just me.

So that being said, I am going to be napping a bit this weekend, to rest up. Monday I start the cleansing procedure for a colonoscopy. I may need a good dinner this weekend. Where would I choose? Hmmmm....

No joke today...I'm too tired.

PeacE

Wednesday, August 12

T-Minus 24-Hours

 At this time tomorrow morning, I should be called back beyond those doors that block off the waiting area and lead into the workings of the hospital. Nothing I haven't done before (going through the door) for blood draws, CTs, MRIs, consults, and on and on. But this one is a little more involved. I am sure it will be wheelchair to a room, change into a gown, and from then on I am in a bed. Who doesn't want to lay in bed all day? Me ...

The first part of the procedure is going to be a normal routine for me. They will do a paracentesis to drain any excess abdominal ascites prior to the procedure. At some point after that, not sure of the timing, I'll be wheeled into an OR and knocked out. Then they insert a catheter through a vein in my neck, and guide it to the liver. They will create a channel between the Hepatic and Portal veins, with a mesh stent to keep it open. If things go fine, that's generally about it. 24-48 hours observation, then home. Average time of procedure: 2-3 hours. Once home I am on restrictions for lifting. I also have to watch out for further signs of Hepatic Encephalopathy, skin turning yellow (jaundice) and swollen legs. Since I have HE already, the medication I am on may cause it to not worsen.

So, sounds easy-peasy, right? I would think anyone gets a bit nervous though when they have to have a medical procedure done. I know I "accepted" whatever comes with this whole transplant process, and to do my best to meet demands of healthcare staff. But I can feel some anxiety starting already this morning. There will be lots of little prayers today, I am sure.

RM & PT are headed out of town today, through the weekend. With RM's birthday this past Sunday, and their anniversary coming up the 14th, PT *ALWAYS* wants to go somewhere out of town, just to do basically the same thing they do at home. My opinion, and not too far off mark, I am sure. I pray for their safe travels. Rm has asked at least twice about pushing their trip date off to another time, so she is able to be at Mayo for my procedure, and both times I told her no, to go. I do expect her at the actual transplant though.

My Older Sister called me yesterday. She wanted to apologize for not being able to make it for the procedure (she is in NM). I wasn't even expecting that ... even said so. She stated she will be here for my transplant though. She offered up prayers, which I gladly asked her to continue.

RM sent a BIM package home with my Wife yesterday. BIM is Because I'm Mom. She had mentioned something about it in her blog, but I had no idea what to expect. The jar of salsa was for the Youngest. But RM sent a box of some beef jerky (mmmm) and another box. I instantly went on alert. What would she send me that needs to be in a box? Well, I was busy when I got home last night (had Aux meeting) and forgot to even look in the box until this  morning. Now I believe it was last week, RM had sent me home with a study bible to help me work on my getting into the scripture and studying. It was one she had used before, but was not her favorite choice. I honestly have not had a chance to use it. Well, in this box she sent, it has a brand new, leather Jerimiah Study Bible. This one is her current favorite to use. As I read the daily devotional (she had sent that home last week as well) I followed up the verse in this study bible, just to see what it offers. I am impressed! I think this will be a great tool in my walk with God, and I am able to still use the other if I need clarification or something. Of course, RM included a personal, hand-written note, which made me tear up (but not cry!). Thanks Mom!

Well, today will be a bit busier than usual for me. I am getting a haircut, need to fuel up the car, need to wash said car (in and out), and have lunch. I think I am going to go to JTs Gyros over on 35th Ave & Greenway. I love their shwarma. Other than that, I'll just be grabbing a few things to put in a backpack to take. Tablet, phone, chargers, medical journal, note journal. Think I will forego the bibles for this trip.

And that's it...

I'm looking into essential oils. Which one is it that calms other people down? Chloroform? It's Chloroform isn't it?

PeacE

Tuesday, August 11

We Interrupt This Blog Post ...

 ... to take a pause and get some other things done. I have my CT today at about 12:50pm, which being in the middle of the day, really ruins things. I'll have time for my AA meeting at least. This morning I need to work on the minutes I have been putting off. So let's pause here until after the CT.

That was a lengthy pause. After the CT yesterday, the blog had slipped my mind completely. I think it has to do with doing it in the mornings and all. Either way ... CT went fine as far as I could tell. Lasted about an hour. I have the test results, but don't understand the mumbo-jumbo - even with the 'patient friendly' version. I wasn't whisked off anywhere, and they haven't told me anything negative, so that means I am good to go for Thursday. I swear they track me! I was home barely 10 minutes from Mayo when they called and went over the time schedule for food/water for Thursday. I'm going to be hungry coming out of it, but don't know what type of food I will eat (soup or solids). I think I'm okay with regular food as long as I feel up to it.

General VFW meeting tonight, but it is a special one for me. The Youngest finally okayed joining the Auxiliary!! Mainly it is to drive me to meetings, and be able to sit in the meeting versus out in the car. Besides, it might lead him to do some volunteering. At least he will get to see a portion of what I do for my "jobs" with the Post. I'm paying for his first year, as it is not terrible ($45). I printed off the app and my Dad's DD-214 last night to turn in with it all (I joined under my brother). Youngest will probably not go with me tonight, but will have to next month just to be inducted and receive his podium book.

Posting is going to be sporadic this week since I have the procedure on Thursday. Hopefully will be back on track by Saturday.

"When someone says "Stop!" I never know if it is in the name of love, Hammer Time, or if I am to collaborate and listen.

PeacE

Sunday, August 9

I'm Tired

 Yesterday started off nicely. I woke, did my routine, felt fine to drive the 30 minutes to a VFW Post for our District meeting/training. I headed out with plenty of time. When I got there, I was getting my stuff from the car: put on my VFW Riders cut, which I haven't worn in awhile, grabbed my traveling office bag and locked up. I started to put the keys in the inner pocket on my vest, and found something: a pack of cigarettes, with three left in it. I guess I hadn't worn the cut in awhile! I had no strong craving/urge to smoke, and they would have been 'stale-tasting' I am sure. But I put it back in the pocket, so share the tale with RM and the Wife later. 

I guess I misunderstood a bit about these new trainings we are doing at District meetings. We still do our regular spilt Aux/Post meeting, then break for lunch, then start the training. I had plans and let my Aux Leader know I couldn't stay for the training part. My plans were to run by RM's, drop off her birthday present, visit a little, and head home with dinner at Olive Garden at 5pm. Well, I-10 runs within a quarter-mile of the Post, and unbeknownst to me, they closed Eastbound at like 8am (after I was at the Post). So traffic was terrible. Between the freeway detour, and the street I was one being one of the closest E-W through-streets, it was going to be a pain. In the first hour, I made it a quarter mile, but had managed to change streets to the one I wanted at least. This one ran N-S, but every mile is a through-street, and they were all backed up as everyone had the same idea to go over and catch another freeway. I decided to just stay on this street, as I believed it would go up to RM's. Of course not. But by then O was able to hop over to the 101 and head to RM's like normal. One hour, forty-five minutes it took to go about 16 miles. I could be at the Daughter's house in Tucson in that amount of time!

Well, I gave RM her present, visited for a bit, had my iced tea. I love how she always has iced available for me. I think it was about 3 when I headed home. Went to dinner at 5 with the birthday boy from yesterday (Middle Son). Youngest Son came as well. Oldest Son met us there. And of course, Doc, my grandson, was there. Reminds me I got a couple pics to send to RM, not good ones, as I hate doing pics. By the time we got home, I was almost falling sleep on my feet from being so worn-out. Between the traffic, sitting in the heat (even with a/c), and just stuff in general, I was wasted. So bad, I slept until almost 9a today. I know I needed it.

Welp, I gotta get out of here and get stuff done.

Don't be ashamed of who you are - that's your parents job.

PeacE

Saturday, August 8

Racing the Clock ...

 That's a bit how I feel this morning. Woke up an hour earlier than usual (unintentionally) to start getting ready. I have a VFW District 3 training to attend today. It is all the way down in Tolleson. That sounds far, but by freeway it should only take about 30 minutes. It starts at 9am, and had it in my notes it ends about 1pm, but have seen other things that say 2pm. Either way, I am there all morning.

Yesterday was the Middle Son's 24th birthday. The Wife had the day off work (low census) and we invited him and the family to lunch at Seafood Harbor - my favorite Chinese buffet place close to home. He turned us down (the audacity!). Last night the Wife asked about inviting Middle Son again for tonight for an early dinner somewhere of his choosing. We are inviting the Oldest son and his GF as well. I'll hear updates from the Wife today about it all.

The Wife and Youngest have an appointment today with the Bank. I know we have been slow about it, and he has not pushed about it, and he doesn't have paychecks to deposit, so we never got around to setting up a bank account for him. Normally he could go anywhere, anytime to set one up, but he, like his brothers, want it linked to our account - in the way that the Wife (Not even I) can see the account, mainly in case we need to help them with some cash or something, it is easier to transfer the monies. Plus in this day and age, with everything starting to go cashless, he needs a card with money in an account. He is leaving for Cali in about a week and a half - ya never know ...

And with that, I need to get off here and do my quiet time before heading to the training.

PeacE

Friday, August 7

End of Week Rambles

 I'm a bit scatterbrained this morning. I slept well, even if I did wake about an hour early. I started my day: measured blood pressure (114/62) Beats/Min 75 Glucose 103) then took my medications for the morning. I got comfortable (in an office chair) and started to read today's chapter in this book. It started into 'forgiveness' and how it helps us, versus solves the problem. We don't have to forget the reasons we are giving/receiving forgiveness, but to truly forgive means counting it as resolved in our minds, and we shouldn't let those hurts/grievances affect us anymore. HE even leads into the next chapter to go more in-depth, by simply asking: Who do you need to forgive?

Yeah. I just zoned out for like 20 minutes. I wonder if it is the encephalopathy messing with me today.

So I think that is going to cut this short today. I actually shared on social media yesterday. I had to shout out to myself. It's not the bad kind of pride to want your achievements mentioned. Yesterday marked 11 months sobriety. I also stopped smoking over a month ago. I have lost about 100 pounds since September. Do I want any of that back? Heck no! So I am working on keeping it, and making it more of a lifestyle than a habit. Aside from all the medical, I do feel better as a body.

With that, I am out. I sat here zoning for too long...

"Do not touch" has to be one of the scariest things to read in braille.

PeacE

Thursday, August 6

To The Guy That Discovered Milk ...

 ... What were you thinking at the time?

Even my mind doesn't want to delve into that line any further. But don't we all reflect at some point point, and ask that questions: What was I thinking? This role-reversal I am going through, from being so much of a pessimist to being an optimist more often, has me asking that question so much, I try to just put it out of my head when it stops by. I promptly say to myself, 'Self. Too bad. What's done is done'.

I'm running a bit later than my usual this morning (considering I slept until the alarm went off). I don't know where I got behind ... my quiet time? I'd like to think so, but truthfully I do not know. I do know I am quite tired today. The previous night I had mentioned I felt like I only napped. This smart ring actually told me it recorded no sleep pattern. So it must have registered the night as naps. So up at 4am yesterday.

Had the paracentesis at 9am. They did me dry at 9.8L. When I got home I weighed myself for a true weight, and I am down to 243 lbs. Then I ate a 5-meat Italian sub from Subway. The Wife had made meatloaf (with mashed potatoes on the side) the night before, and there was plenty of leftovers. I had some more of it last night for dinner. There's enough for lunch today as well. I forgot how much I love meatloaf!! I have ordered at restaurants, but theirs is usually tasteless, some kind of grey color, and just not good. But home-made? MMM, MMM, GOOD.

Like last month, the para brought on some muscle cramping. Particularly on my sides, just above my hips, and it HURTS! Way worse than a leg cramp (which one can sometimes walk off) as I cannot get it to stop until it wants to do so. Walking out of the hospital it hit, and thankfully there were some chairs at that part of the lobby. I had to sit about 10 minutes for it to go away. Now I look like an old man, hunched over, free hand grabbing my side, almost shuffling with a cane as I exit. Through in some tears that might have fallen, I probably looked like I should go back in! But I got the car (thank goodness for valet), picked up a prescription and lancets, my sub, and headed home. The rest of the day I stayed in, dealing with twinges of cramps, and the 'readjustment of organs' that always happens.

Nothing on the calendar today. Well, except bragging it is my 11th month of sobriety!! Hard to believe it has been almost a year. Even harder to imagine that I truly have not had more than a couple cravings for drink in all this time. I'm also over a month of no smoking. Those urges still visit me daily, but I am getting really good at getting rid of them.

This past week or so, I have started texting RM every morning. Before, I hardly ever called or text on my own. But it feels good to just text how she is like a ray of sunshine, and then I share an affirmation - my 'Today's Tidbit' which is usually some little funny. I type in Love you Mom while thinking of giving her a hug, and send it. She says she loves getting the texts, though I think it is more that she hears from me, because before I hardly communicated. Well, I was going through some of the few notebooks I have stacked up in here, mostly from the IOP, and came across my Funnies book. I had unofficially the sharer of the day's funny at the end of group each day. So I would scour the internet looking for decent, clean one liners or affirmations we could relate to, and wrote them down. So I thin k I will close out each day (for awhile anyways) with one each day here...

My doctor told me I was going deaf. It was hard to hear.

PeacE

Wednesday, August 5

Acceptance - The Sequel

 Tuesday in my AA Home Group a speaker usually joins us and shares their story (about 15 minutes) and either from their experiences or whatever, they pick a topic that we bounce around the group in discussion. Today's follows my previous post ... Usually it is something like 'acceptance of your faults', etc. but today it was just the word 'acceptance'.

The problem with being in a group you frequently see, you get 'tagged' from others in the group to talk. I have noticed a trend that most regulars will call only on other regulars. Personally, I try to bring in someone that is fairly new (to AA or to our group) but not like this is their first day new. Well, I don't know how my brain works, but when I wrote about acceptance, I think it was more situated around the medical/death scenario. By 11:30am, it was in a new place. I got tagged, of course.

Acceptance. For us it has a wide field of coverage throughout our lives. Acceptance of our drinking problem. Acceptance of a Higher Power. Acceptance of our faults. Acceptance in group - never been to an AA meeting I did not feel accepted. Except a couple times years ago (another story, another time). The list just goes on.

Some of it is hard to get through. Like me, I am working on issues with my acceptance of a Higher Power (God). I have accepted my drinking problem. I have accepted the wrongness of actions while I was drinking. I have accepted I may be attending meetings for the rest of my life ... needed or not. And I try to be accepting to others. Greeting people (even in zoom), thanking them for sharing (if they did). I try to never speak out in irritation because of a difference of opinion, or exclude/snub others even online.

I'm going to let that all marinate there for the rest of the day and night. Maybe I'll add more in the morning.

Welcome to the pre-morning, when the sun has yet to peek its bright self over the mountaintop, and scorch the Valley into a mild version of Hell. Yeah, I am up early. I woke around 4am and just could not go back to sleep. So did my quiet time, and now am getting the day started. I had even set an alarm for 30 minutes prior to my usual time, to allow me time to sit with God, since I have a paracentesis this morning. At least the time isn't being wasted.

Ended out yesterday with the House/Entertainment committee meetings. I have a couple days before I need to be sure the minutes are done and into our Adjutant, as there are points to bring up to the general Post meeting next Tuesday. I spoke to our Commander (who is also Treasurer for the Riders) about the voting that was to take place at National Convention, making the Riders a separate VSO (Veteran Service Organization) like the Auxiliary are. Verbally, unofficially, he said yes it passed. He had a picture of what the new unified patch will look like, too. I need to reach out to our state leadership to find out what is the next step we need to do to get all this started. State may be waiting instruction from National. I emailed out to the Riders the basic 'unofficial' information, the pic of the new patch, and listed details for a dinner the Riders are doing this month. No, RM, it is not a regular Riders Dinner. On 8/15 the Aux. had to cancel their steak fry due to members being at the MIT conference that weekend. The Riders are jumping in this one night to at least have some food available. It's just hotdogs/hamburgers with an added twist: I won't be there. I informed them all. I gave the info of who has signed up to help, who is bringing some food, a list of things we probably still need (cheese slices maybe, condiments depending on what is in the fridge at the Post). Then 2 days later is the Riders meeting, which I will need to try to attend. Hopefully I will be able. The TIPS is being done 8/13.

The Wife had meatloaf going when I got home. I haven't meatloaf in forever it seems, and this of course did not disappoint. She even added a layer of mozzarella cheese to the middle. Side of mashed potatoes...mmm, mmm good! Then she also added some of the juices from the pain on the mashed potatoes.... It was soooo good! I saw how much was leftover, and glad to see I might get two days out of it - as long as no one else touches it.

I got to nap a bit in the night, and here I am. Hope you have a great day!

PeacE

Tuesday, August 4

Acceptance

 One the definitions of 'acceptance' is: the mental state of taking reality as it is. Reality, and how it is. Almost a year ago, I started learning more about acceptance. When I was diagnosed in early September that I had a diseased liver, and if I didn't stop drinking, it could kill me literally at any moment. The percentage of my liver that was still able to function (and not destroyed by cirrhosis) was pulling some major overtime, which was not helping anything at all. The staff in the ER that first visit gently said I should contact my PCP, and get appointments with a GI, and a liver specialist. When I saw the PCP, she added on a general surgeon, as I had an umbilical hernia already going on as well.

All of that was pretty much in the first two weeks. I have been thinking hard about what was going on; what are my percentages of dying if I do nothing; what will I go through if I do nothing, or yet, if I do start with orders from the doctors. Yes, the morbid thoughts of dying were forefront in my mind. I had stopped drinking voluntarily back when the basic diagnosis came in, and actually a few days before that, because I wasn't feeling good. What if I didn't stop? I knew that if I had one, it would turn into a hundred. The only time I said no to alcohol was when I ran out cash on me, or closing time, it seemed.

Though I have joked for years with bar buddies about being a drunk, because Alcoholics go to meetings, I started thinking about that. Doctors were asking if am going to join, if I was going to stop drinking. I had to tell them honestly that I did not know. I was contemplating my life, and realizing how bad I had lived mine for around 35 years. It's literally sobering. I didn't want to be going to meetings (had a bad couple encounters at AA before - story for another time), so I decided I would do it on my own. By this time, I was seeing doctors, starting a medication regime (to stop symptoms so they could find the true problem). I did not need the surgery for the hernia - as long as it wasn't leaking fluid, and caused no pain, that Dr. said they would fix it during my transplant.

That was the first definitive time I heard anything about a transplant. Before, I was under the impression with decent medical care, I may not need that extreme. I also was STILL waiting to see the liver specialist. When I finally saw him (in December - 4 months later) more medication was added to my list. I returned for a follow-up in January, and though some things had improved, others had not. HE adjusted a dosage of the medication he had prescribed. In February, the specialist admitted it was time to call in the big guns. He reached out to Banner's transplant facility, for them to call/evaluate me for transplant. Banner called, and denied the opportunity as the costs related to the procedure and years of after-care would be extensive and financially draining to me (they were not on my plan - but their hospitals are - the transplant works separately of hospitals and has it's own rules I guess). I became depressed. What do I do? A few days pass, and I get a call from Mayo Clinic and they complete a basic phone medical history. They needed to pull reports on my ER visits, and all the doctors I had been seeing. They stated I need to stop drinking (still had not drank since 9/6) and to stop taking the THC gummy I did at night to help me get to sleep. In March, they took me on as a patient for the transplant procedure. 

In one of those early consults with a doctor on my transplant team, they went over the odds both ways, of having versus not having, the transplant. We discussed basic life with after-care. Again, reminder to not drink, stop taking the gummies (no probs) and since I was a light smoker, they said I may be able to get through it all without having to quit (that turned out to be false). It was at this time that a decision had to be made to do the transplant route, suffer through symptoms and live out my days, limited though they would be, or do nothing and die at an undetermined time.

Death does not scare me by any means. But what does is my family and how they would go on without me. How much hurt and pain I would cause with my death. I had young grandchildren ... I wanted to see them grow up. I didn't want to leave my Wife alone. I thought long and hard, then decided to toss in the proverbial towel, and follow the transplant route - NO MATTER WHAT.

A couple requirements were needing to be completed prior to even being considered for the waiting list, was an Intensive Outpatient Program (IOP) minimum of 8 weeks. The next day I had found a place, and started the next day. Another was I had to attend an AA Meeting a minimum of one time per week, for the next three years minimum. I went to AA, found out there are Zoom meetings now versus in-person (though they still do those as well). I threw my attitude into the trash, and went to a meeting (online) three days after being informed of the requirement.

Where am I going? Well, I accepted it all. Accepted the chances of dying. The chance of recovery (better than the dying ones). Lowered my walls and accepted the IOP. By the end of my 8 weeks, the fellowship of group had felt so good, and I learned quite a bit while attending. I had been attending one AA meeting a little more than others, and started joining more often, then asked to join as my Home Group. I know go an average of 5 days a week for learning, experience sharing, fellowship. Though I don't cravings, and really have not had any since I quit in September, I still am supposed to follow the program steps.

So many other things I have had to learn to accept: How I wronged others in my drinking years. How bad did it destroy my body, other than my liver. This is ALL going to be Lifetime Changes, and there is no turning back, just failure and death. I accepted it all. And now I am working hard at accepting Christ again (my Higher Power). I lost faith and now am filled with doubts about me and God. I'm reading help books, I am trying to glean knowledge from the Bible. I'm praying. Many in AA said that their Sponsors would tell them of their struggles, to 'fake it until you make it'. I'm not doing that with my relationship with God. I'm trying to correct ME to be the person I should have been all these years I wasn't.

Wow, that was a bit more than I wanted to throw out there, but I guess I felt the need. I am not worried about people knowing about this medical stuff. I've accepted it, they can too!

And with that, I am out of here before I ramble more ...

PeacE

Monday, August 3

I Almost Done Forgot ...

 ... to write in here today. I was going through the morning routine but when I got to the part where I write a post, I didn't even think about it and went on with whatever I do next. I was like, 'Whoa!'. So I backtracked and here we are. Sitting and staring at the screens between us, waiting for me to come up with some significant ramble to entertain you.

I mentioned yesterday I think, that at the birthday party on Saturday, my Brother and I caught up a bit. While we were talking about my medical stuff (I believe it was the TIPS), I had said something along the lines of '...and eventually get rid of this lump' and he sort of pointedly looked at my stomach. So I lifted the edge of my shirt and showed him the umbilical hernia I have going on. He about freaked at first, then he whips out his phone and begs me to show it again so he can get a picture. I asked why he would want a picture of my 'inside-out' belly button, and his reply ... that thing has a nipple on it! SMH. I tried to explain it isn't a nipple, but the actual bottom of the belly button being pushed out. HE wouldn't see it any other way though and kept on about the "nipple". Needless to say, I don't know how many beers he was in, and he never did get a picture. My Brother is an idiot at times ....

This week is not too crazy. House/Ent Comm. meeting on Tuesday. Para on Wednesday, Middle Son's birthday on Friday, and a Dist 3 training meeting on Saturday (VFW). Next week will be the busy one with a CT, and the tips procedure.

I did finally get the minutes for the Riders done, and the Agenda for the House/Ent Comm. yesterday morning. It only took me like 4 hours. Sigh. But it is done and out of the way.

Looks like I need to place an order at the grocery. I am out of soda. I'd prefer to get like a gallon of tea, but the fridge is too full to support two gallons, plus the milk. Sodas I can counter after opening. I think the Youngest is out as well.

The Wife made a quick stew last night, and I even admitted to her, it had to be one of the best renditions she has made. The potatoes and carrots were cooked to perfection - nice and soft, yet firm enough to stay in shape. I think she used one of the smaller pork tenderloins for meat, so nice chunks there. It was spiced wonderfully (even if I do add more, and hotter, after a try a few bites. I suppose I need to get off my butt and do a dinner again. I was trying for once a week, but this past week I have been fatigued for some reason. That started about Thursday, and still lingers. I think itis just yet another symptom of the medical stuff going on, or worsening. I don't know. 

I did message Mayo regarding the standing doctor's orders I have at Banner Hospital for my paracentesis. I could schedule my own as need for therapeutic reasons, but limited to the 10L max drain. It expires 8/20/26. So I asked if it needs to be extended, could it be extended, what are we going to do? The reduction of fluid build-up to is supposed to decrease, does not happen miraculously overnight, and I may need to do some paras for a bit afterwards - hoping that the length of time between increases, and the drainage amount decreases. I hope to have an answer today.

Yet another prescription to get today. I have one other I am waiting to be filled, and that will be all of them this month. I also need to get some more lancets for the glucose testing. Maybe after I pick up my store order.

PeacE

Sunday, August 2

Geez ... Pick Something Already!

 I have started recently to do a 'quiet time' for reflection, meditation, and time with God. Why? Well, because I see others doing, or claiming to, it and how much it helps them. RM has been doing her morning time with God for years now, and I think that is what pushed me into doing something of the same. I haven't done Discipleship training. I don't have a daily devotional to study a passage of the Bible each day. Right now I read a chapter (they're short) in this book RM recommended, followed with bringing my Bible out. Most days I am turn about reading the Bible. I have argued with myself that the best place to start is at the beginning. But part of me rebels, and would prefer a more methodical, devotional, teaching way of doing this. So I would just randomly open it up, and read some of the passages from that page and maybe a page or two further. Do I always make sense of it? Not a chance! Sometimes do I get 'lucky'? Sure! Even a blind squirrel is able to find a nut every now and then.

This morning I decided I would focus on reading a book of the bible. Doesn't matter how much of a chapter(s) I read, but that I do it. I decided on Psalms. In the process of finding and placing my Faith, I thought this might be a good starting spot to learn how to lift God up, share his praises, and still learn. As I started this morning, I felt better - more focused, more in-tune with what I was reading, able to apply myself to it better (I think). Then lastly comes Prayer.

Is there a perfect outline/formula for prayer? If there is, I don't know of it. I give praise, for what I have seen and what I have not seen. I ask for guidance to do His will. I ask for forgiveness for my wrongdoings, and the help to "forget" them when given up. That one is hard. Relinquishing control over things is just hard for me. I think it is a carry-over from when I was a narcissist (my drinking days) of having/keeping control. 

Somewhere in all this, I started texting RM each morning. I toss out a GM!, a daily affirmation, or positive vibe, and an I love you Mom! It's good I stay in touch better. Especially when I have questions of a spiritual nature, RM is near at hand. Plus, I think she likes the attention (smirk).

Went to a birthday party for a good friend yesterday and even the Wife went with me (finally talked her into it). Tons of food! Smoked brisket, shredded pork, chicken, ribs... and that was just the meat! we ate, and visited briefly one on one with the Hosts. After a couple hours, both of us were ready to go. There was just too many people. Every room was crowded and standing room only, plus between the heat, and something I had ate, was making me nauseous. The Wife's social meter was buried in the red she told me on the way home ... where I did get sick, but felt better after. My Brother and SIL were there, so I visited a bit with him. We haven't seen each other in a while, so he caught me up on his kids' issues, and about the granddaughter living with them. Then actually asked about how I was doing, so I shared where I was at with my medical. I may need to use him for a colonoscopy appt. later this month, if the Youngest doesn't make it back from his trip in time. We briefly talked about phone habits - he prefers calling people to update them on things, and just talk. I hate talking on the phone. You have me on the phone, it's going to be short, with info that I needed quickly. Otherwise text me, and I'll get back you in some form. So my Brother tells my Sister he doesn't talk to me because I am mean on the phone. Eyeroll. What made him think that? (Duh!)

After I finish this it is a work day. I need to do the Riders minutes, and the Agenda for the House Comm. I did hear last night, unofficially still, that the Riders did have a positive vote to become a separate entity/sister organization to the VFW. Still nothing from leadership at the State or National level have sent anything to me. The website does not reflect any changes. I know it was just last weekend, but still. Sigh what can ya do?

With that I am out of here!

PeacE

Saturday, August 1

Mired in Muck

 Personally, I have been struggling these past few months with the whole 'Higher Power' issue that is part of some steps in the AA process. We are to recognize our Higher Power - It can be anything we are told. But I think the belief they want you to establish is that there is a something else there that controls things, and not some idealistic Big Bang theory. They have said your Higher Power could be anything, you just have to believe in it. Well, based on how I was raised, I knew there was God and his opposite, Satan. Though I have not followed, worshipped, or practiced any religion since my younger teen years, I wanted to get to this second step of admitting my powerlessness with alcohol to a Higher Power. But I held back (maybe am holding back) because I feel something isn't right.

I'm sure that anyone that has attended any basic Christian church, knows that John 3:16 verse that everyone throws around. 'Stone Cold' Steve Austin made it a big thing in his wrestling career. It covers everything in one verse - God's love for us that he gave his son, and if we believe in him, we will have eternal life (salvation). But what if you carry so much doubt, so much that you, to the core, believe that God could not accept you back after things you have done. That placing Faith (not seen) which is Trust, to an entity that is supposed to help mold you into their form (attitude, etc.). I used to call myself Agnostic - would only believe it if I saw it. This went from miracles to rare occurrences. In this day and age of cell phones, we see too much of it, as well as probably ten times worse stuff (the Devil has media in his pocket).It's easy to NOT to want to blindly place faith in/on an intangible. But I used to do so. Why can't I now?

I know questions roll through my mind about it several times a day. I'm not good enough. How do I know He wants me back? Do I just drop back in where I left off? I'm an adult now and it has been many years, how does this affect things? So many questions that lean to self-doubt. In a sense, I am scared to release control of all things, and let something I cannot see guide me. I have other thoughts of what I remember as parts of the Bible having read before, but even RM has not been able to find a reference to what I am thinking - is it really there? Or am I being manipulated by the Devil, to increase the self-doubt issues I am having currently.

In several shares of other AA members, I have heard that many of their Sponsors told them to 'fake it 'til you make it' when it comes to a Higher Power. I have done that for jobs, but never on something like this. I don't want to be a fake Christian. I want to be able to completely give myself to God, but I don't want to give up the control. 

My. I am going to stop there. Seems I have more issue than one in regards to this. In the meantime, I will read any book that I think will help me understand the type of person I am, and what I need to do. I will read passages from the Bible. And yes, though I am not oral about praying, I do pray as well. May he guide me to His will for me today.

PeacE

Friday, July 31

If The DEA Knew ...

 ... about the amount of drugs (prescriptions) I have picked up (legally) this week, I am sure I would be border-line arrestable. Well, maybe that isn't totally true, but I feel like it. I have already been up to the pharmacy twice, and have yet another order ready for me to pick up. I am not complaining by any means. I 'need' these per Mayo, to get by until the transplant. I trust them, as I have no choice, really. I have no knowledge that would lead to a different route. I recall this past Wednesday, while with the nurses as they prepped my albumin drip, they had asked my plans. I said I was getting a burrito from Al Pollo Loco, then picking up some drugs - I got a hard look. 'You mean prescriptions, right?' they asked. I convinced her that yes, I meant prescriptions ... then when she turned away I rolled my eyes. This nurse wasn't one of the ones you could joke with, and I had not seen her before. Oh well, such is life.

I was left home yesterday evening, unsupervised, and you know that isn't always a good thing. But I tried to make it one. I found another online AA meeting and decided to attend. It doesn't hurt to get out there and try different groups. I wasn't too sure about this one. I did know two people there, as they are in my home group, but otherwise, knew no one. I wasn't really 'welcomed' in, though that doesn't matter to me. Just an observation. There was a good topic of discussion on Faith and Acceptance, and I heard some good shares, but overall, the group mentality to me just wasn't clicking. I may try this group again another time, and see if it, or I, have changed.

Yesterday evening I was teasing with RM. I had some notifications go off on my phone, and I went to check them. I accidently opened up the Circle 360 app that RM and I share a circle on. I noticed it said she was not at home... Curious, I looked on the map as to where she was. She had been sitting at this location for 22 minutes, in a neighborhood area that has many shops and restaurants. Thinking she had recently finished her workday, PT must have wanted to go out to eat. From the map in this app I could not tell what restaurant they were at, but texted her anyways: 'Oooo, what restaurant are you eating at?'. No reply came. I shrugged my shoulders and figured she may not have heard my text, or was busy and would get to it later, which she did about an hour later. Turns out it was Denny's, so I had pretty much guessed correctly.

Nothing really planned today. Meeting at the usual time. Yesterday I went to Mayo's Transplant support group. They had a couple in-hospital pharmacists there to answer medication questions (of their capability). It was interesting, and I learned the names and some side effects of the anti-rejection pills I could be taking for the rest of my life. They briefly explained how at each medication change, they review our labs, what we take currently, how the new dose/medicine could react with those. Overall it was interesting. I took some notes, but I am not sure they will do me much good - I'll get what they give me.

And with that, I think I will close this off today. Remember, having a shitty day does not make you a shitty person.

PeacE

Thursday, July 30

'is A Slippery Slope ...'

 Back when I was in the IOP, I was told that by another patient. We were in "group" and I forget what the actual topic was, but I had mentioned that I still occasionally went to the bar to visit friends. This other patient was about my age, had some experience in psycho-therapy (as a therapist/counselor). He believed that all I was doing was tempting fate, that I would fall back into the drinking habit just because I was around alcohol. I politely sat through his verbal opinion about me, then promptly ignored it. Alcohol does not define me. I wouldn't go if I could not handle myself and I refuse to let it define me.

Defining oneself ... there's a topic! In fact, it was the chapter I read today. I'll be thinking on this one for awhile. What does define me? Am I in the process of changing that with all the other changes I am making? If it does, or even if it doesn't, what does define me? A lot of time for self-reflection on this one I think, plus conversation with God.

I feel better! Did the Para yesterday afternoon. Drained 4.7L, and from the u/s looks like they got pretty much all the fluid that was there. I "felt" like I was more drained. Of course I am now going through the couple days of letting the organs re-adjust to where they should be and unflatten themselves. It hurts a bit at times, and I tend to walk hunched over in the middle, but it is only for a couple days. I need to check with Mayo about the Dr. orders on file at Banner. Seems they only go through until later this month. I know with the TIPS, the lessening of fluid won't be instantaneous, but I believe I need the orders to even set an appointment. I got the lab results from the screening I had just over a week ago. I don't know how to read these things because of the names for stuff. I mean there are like 3-4 different cholesterol ones...etc. I didn't see any that specified nicotine. I did see a test result that I was NEG for alcohol (duh).

Today I have an extra Zoom meeting. It is one Mayo provides for transplantees, regardless of the organ. Most of us in there are for a combination of Liver, or liver and kidneys. Today they will have a guest speaker to field questions pertaining to medications related to all this, as they are a pharmacist there at the hospital. I might learn some useful stuff.

VFW National Convention was last weekend in Reno. I have not heard yet if it passed to make the Riders a 'sister' to the VFW (like the Auxiliary is) or not. Neither official word, or rumor. My Post Commander did a FB post that showed a back patch that read VFW RIDERS GROUP, and I know one of the factors involved was being able to create one Unity patch, instead of separate ones for POST/AUX. If I haven't heard anything by this weekend, I'll have to get the minutes out either way.

Don't give up. If the hair around your butthole can thrive in a challenging environment, so can you.

PeacE

Wednesday, July 29

I'm So Excited!

 If you cannot feel the sarcasm from that title, you don't know me. Today is "Hump Day", pr Wednesday as many know it. Which means I have a paracentesis scheduled. Today's is at 1pm. I pretty much already know what is going to happen: 10L of fluid will be drained, I'll get three bags of albumin IV'ed into me, and out the door I go until next week. Two weeks from tomorrow is the TIPS Procedure that will hopefully lessen these appointments, if not remove them completely.

Yesterday, the Older Sister sent some cryptic texts to family members. Her Son (my Nephew) is currently serving in the USAF, and is stationed over in New Mexico (I forget where). Allegedly he informed his Mom that something big is happening tonight [Tuesday] so everyone should top off their fuel tanks. I blew it off, as I don't feel he has enough rank/clearance to know something of this supposed level. This morning, I woke about 5:30am and remembered her text to me. I got up, and I have yet to see anything major on the networks. Iran did some surprise attacks last night on US Forces in the Middle East. US And Saudi Arabia attacked back. Russia supposedly hit a refinery or something in the Ukraine. Those are about the only ones I see that MAY Affect a need to top the tank. Maybe I am not looking at the future issues that may come from these events, but still...

The Family Drama going on with my family has settled somewhat. It is still there, and some things still need to be dealt with on a more immediate basis, but it is on hold for now. Still don't want to get into the details. As Patriarch of the family, I want to go in and bash heads together and force ultimatums, even though I know that is the worse way to do things. I have been trying to be the calm one, supporting and providing where needed. Sigh. It is so tiring for me, and being in this medical condition it just is not helping anything. But kudos to the Youngest, as he has stepped up and been helping quite a bit.

Had my quiet time this morning. This book I am reading ... it is weird for me. I can't remember the last time I read a book like this. I call it a self-help book, but it isn't really that. Nor is it a devotional of what I think one should be. IT got interesting, it lost my interest, it dragged me back, and losing interest again. It is like the author begins talking about something that I actually feel is important, then  - SQUIRREL - and the rest of the chapter is over. I'm only about a third of the way into the book. I will stick it out, but I inwardly grimace when I pick it up each day to read some. Not your fault RM, we all interpret things differently and I have a purpose while reading it, just as your did, though they are different.

Positive Affirmations and Daily Reflections. Back when I was going through my IOP, each day we would journal for five minutes, listing 3 things we're thankful for, 3 things we will accomplish that day, and a positive affirmation. These were not shared with group, unless one wanted to do so. I usually sat there and twiddled my thumbs, because by this time of the morning, I had already blogged (my journal so to speak) and as I waited to Join the Zoom meeting, I would do the 3/3/PA they wanted. Looking up affirmations on the Google is crap. It seemed that site after site pretty much just copied each other, and none of them moved me. Pinterest wasn't much help either, but I did find more interesting ones. I think I shall start texting RM one a day from my journal. There aren't many, some are crass (like me), and some are funny.

Welp, I think I have shared (over-shared) enough today. Four hours until meeting, so I need to go find something to do.

PeacE