Sunday, April 12

Sunday Rest Day

 I wore myself out yesterday, but it was a good thing. Went to the dentist for my 8am, and walked out after the exam with a very expensive list of things to get completed. Of course, this is all the things they think I need done. I'm all for extractions, but will have to see which teeth in particular need to be removed. 

Then it was off to Walgreens. They had one partial prescription in, and it didn't complete my pillbox for this week. Rest due in this week. As well as my others ones I needed. Plus the dentist called in a fluoride toothpaste he wants me to use. From there I grabbed some breakfast sandwiches, dropped the SSA Disability questionnaires in the mail, and headed home. Found an AA group that may be a second group I attend, and did a meeting. I folded and put away my laundry, and cleaned up my side of the room a bit. Got so exerted my hands were shaking. The Wife had me stop and sit for a bit. I decided I was done for the day with getting things done. Then up to the Post for a couple hours. Came home to a nice pork loin dinner.

Late getting to sleep last night, but I didn't want to take a pill. So I am a bit groggy this morning. Not sure what is on the agenda for today - other than finishing the minutes from Tuesday's meeting.

PeacE

Friday, April 10

Friday Afternoon Off

 After my 3-hour IOP this morning, I am free for the rest of the day. Plans were for the Youngest and I to head out to Peoria Discount and see what they have this time around for snacks and lunches for us. I dislike picking things out for him when he is not with, as I only know some of his likes. What if wants to try something new? So I told him I was free after noon, and he is yet still in bed. He's an adult. we talked about Discount last night, so he knew what time to get up and be ready. It's 2pm... I don't think we are going today. 

I may have mentioned before, but I did get the taxes filed online. I stopped at CVS and picked up my "special" medicine. Stopped at Walgreens. Explained I had heard from them in a week for prescriptions, so had her run through about 4 of them I know are ready for refill, or close, and one past that I need for next week. Today, they have one filled, two delayed, and I think it said it is too early for the 4th one. Of course the one I need for next week is a delayed one. Sigh. Insurance had "fought" the pharmacy on it, but finally okayed, they just don't have in stock.

Normally tonight would be the Riders Dinner at the Post, but we cancelled as this Bike Week AZ. In place they have the M.O.C. doing a spaghetti dinner. I don't think I will be up there at all today.

Tomorrow morning I have a dental cleaning and exam. I know I have at least two cavities, on molars, and rather than root canals and crowns, I'm just going to have them pulled. But that will be another appointment. I did look at the dental panoramic x-ray Mayo did, and it noted no gum disease and that it is noted dental work has been done before. Nothing about cavities being an infectious thing. SO do I need to have it done? Maybe not, but it is just going to start hurting at some point, and rather get it done now before the transplant.

In the mail today I received a letter from Mayo about the items the Transplant Council wanted completed prior to being on the Wait List. An MRI-Abdomen in June, treatment for Strongyloides (threadworm) and Cocci series, complete psychiatric and psychological consults in about 6 weeks, random drug testing until negative (from THC edibles I stopped in February),complete an IOP, Weekly AA meeting, and CT cardiac imaging to be reviewed by cardiologist. The Cocci and Strongyloides treatments I have already completed. I am in the IOP that should end early in June. Appointments made for the Psych consults. Drug testing is done monthly when I do blood work. I've been attending AA meetings, in fact, I need to do one probably today for the week. The CT cardio has been reviewed and at this time are not doing anything. I have a high calcium score, and some calcium build-up in the arteries. Deferment is for 3 months to get all this done (more than halfway there) then will re-evaluate with the Council.

Social Security Disability contacted me the other day and sent me some forms they need information on. One set was job history, the other was functional ability. Those are filled out and ready to go to the box at the P.O. 

Oh, and RM ... I got the two packages in for PT's birthday. I got him a book I thought he would enjoy (teach him to buy me a book) and a T-shirt that has Gibb's Rules listed from NCIS. I think I got a large, so not sure how it will fit. All their sizes tend to run on the lower side of a size.

Welp, I think I covered quite a bit today. How bored are you now?

PeacE


Thursday, April 9

What Have I Got Today?

 I'm still waking up a bit. I have been setting my alarm for 7am each day to get in the habit of rising from bed at that hour. Another tactic to try with my sleeping issues. To try setting a more regular wake/sleep times. Last night I was asleep by 10:30p and slept through the night wonderfully. So good, I'm a bit sluggish right now.

Nothing major in plans today. I have my 3-hour IOP at 9am. Afterwards I need to get over to Walmart as the Wife asked me to pick up cat food. Seems she stopped at a Frys (RM - over at 83rd Ave & Union Hills) last night after work. Well, she was wrapping up some shopping, had some really good deals on meat, plus some marked down specials (part of which was going to be supper), when over the speakers they asked everyone to evacuate the store. I mean, leave your groceries where they are, and git. So she had to leave the cart. Seems there was some sort of situation in the Deli area, no idea what, but the Wife saw the Fire Dept go in with some guys carrying fire extinguishers. Needless to say, she was tired and done shopping at that point and came home empty-handed - So we had to 'create our own' for dinner last night. Sigh.

I might head up to the Post after shopping. Not sure. I need to work on the minutes from Tuesday's meeting, and get those turned in before the meeting next week. Sigh. 

Welp, I am going to head out - got some things to do prior to my meeting.

PeacE

Wednesday, April 8

Oh Happy Hump Day

 Wednesday has arrived. Like the boring day it is, I am sure today will bring no excitement.

The Youngest has to do his Zoom meeting re: Caregiving, this morning about 9am. I got it all set up for him, and just need to tweak a couple final details when he gets up. Yesterday in my IOP, for some reason my camera was only doing close-ups, as sitting at the desk it was zoomed in so much, you could only see half my face. I think I fixed that to a wider view - at least I hope so.

At 2pm, I have a 30-minute weekly check-in with the gal running my IOP sessions. She does it each week with each of her attendees, to see how they are doing, and talk on a more personal level if we are having problems, etc. Boring crap, I am sure. But I must do it, so I shall. I also need to find an AA online meeting for this week - oh joy.

The rest of the day is mine! And I'll probably end up playing games on my tablet. So exciting.

PeacE

Tuesday, April 7

Busy Tuesday

 Today I have done nothing pretty much except sit on my butt in my office chair at the computer. But it is a productive butt-sitting!!

Had my IOP session from 9-12, and it went fine. Then I decided I needed to clear clutter from my desk, and see what it all is. I grabbed an accordion file from our "supply" cabinet, and got to work. Most of it is medical bills, EOBs, and miscellaneous medical. So I grouped mine together, transferred notes from the envelope of when I last paid, amount, etc. onto the bill (showing which ones are PIF). Then it was the medical EOBs, then Dental EOBs. We had transferred my medical from 2025 to a card through Banner. and it has it's own section. So now easier to locate if needed for taxes next year. I added in some extra stuff I had in the clutter: my IRA, my Stock Ownership from Spencer's, and Property Tax/Valuation notices. As I went through them, there were a couple that were ready to pay (Insurance already had) and I paid them off, or got on a short-term payment plan.

I completed our taxes. I tried Itemized (with all that medical) and filled in what I could based on what information I had (Property Tax, Charitable Donations, etc.). Did a comparison between Itemized and Standard, and my Itemization was way less than the given standard, so went Standard. We are getting some money back from Fed and State, as we should with all the medical that went on just for me last year alone. I'll go over the figures with the Wife tonight and eFile tomorrow.

I updated my Google Calendar with more appointments/meetings. Still nothing but two appointments with Mayo in May are my next ones. One is a video call, the other in person. Added in my IOP sessions, IOP Personal sessions, and One-on-one sessions. Cancelled the Paracentesis for tomorrow - I feel pretty good - no sloshing, no pressure. I do feel a small build up of fluid, but should easily go to next week for sure. I also scheduled a Para for 4/29. 

Youngest has the Caretaker video meeting tomorrow morning. I'll probably sit in on it, just to hear what they go over. Most will be the importance of their caregiving, and into my after-care, I am sure.

Today all I have left is a meeting at the Post. I did the Agenda and sent it out yesterday.

So, productive day? Even though I sat on my butt, I feel much got done, organized, and/or paid. That's counts as I see it. I see a bowl of ice cream as an award.

PeacE

Monday, April 6

Mayo Appointments For April - COMPLETED

 This morning I had a blood draw done, and since they scheduled it, and my preferences are for mornings, it was at 7:30am. That means leave my house by 7am. I didn't get to bed last night until after midnight. so I am  bit tired today.

According to my scheduling with Mayo, this morning is the last appointment I have in April. I do have two "sessions" scheduled in early May. I know they also re scheduling in June another MR of the abdomen. Which is all fine by me. Gives me time to complete my IOP and not have to worry about conflicts in the schedule.

The Wife and I went to Sierra Vista this weekend as a late celebration of our anniversary. We stopped in Tucson Saturday enroute to visit the Daughter and family. We haven't seen them since Christmas-time. The 1 yr old is saying/repeating some words, and is so cute as she can blow kisses and wave. She's about 15 months. She got lots of Papaw loves, because her Sister wasn't as huggy with me. She did give me hugs without complaining though all this weekend.

Went on down to Sierra Vista, and checked into the Comfort Inn. I have stayed at this chain before, and have had a nice stay. But Saturday night...ugh! Someone had some screaming toddler out in the hallway for at least 1/2 an hour just letting them throw their tantrum. What was so bad about that? It was after 11pm. Then around midnight, one of the two rooms across from us had people (I assume it was plural) knocking on the doors with the knocker, so it is loud in our room, with the door shut. Needless to say, I think it was after 2am before I was able to fall asleep.

Sunday our plans changed 'on the fly' all morning. We were going to go back to Benson and look at the painted murals they have all over. They have a guidebook for $5 that gives a background for each mural, artist info, and the murals contain a hidden item in the picture. The list is in the book, but doesn't say what thing to to what picture. Well, after the hot breakfast at Comfort Inn, I wasn't feeling up to walking that much, so we changed to going to Tombstone. As we drove through there, they don't have the 'old-fashioned' shops on the main road, and we didn't see any signs guiding us to the location. I admit, I did not research it very well, it was spur of the moment. So then we headed to Benson (had to to get back on the interstate) and stopped at the Visitor Center to get a guidebook. They are closed. We go online and see 4 other places in town that sell the book. One across the street (closed) an art gallery, and a feed store we had passed coming into town. It's Easter, and a Sunday, so no idea if these places are closed every Sunday, or just Easter, or both. So that was a bust. We started back towards Tucson, and I even stopped at a random Goodwill to cheer the Wife up. I found a nice T for $3, and she got a couple small things. As we left she said she was disappointed in the selection, as in there wasn't much. I dunno, so I only shrugged. Stopped at the Daughter's and stayed through to Easter Dinner. It was so good!

Got home a little after 11pm, and unloaded. Then it was into bed for me. I went out fast as I was just worn out from all the activity and driving. So that was my weekend. Today I got errands to run (sorry RM, none out that way). Another prescription to pick up, need to clean all the bug crap off my window and trash out of the car. Probably get a haircut, then head up to the Post around 4 - it is Bike Night (well, trying to get it started) and I'll work on my House Agenda there to send out tonight - meeting tomorrow.

That's all I got, as I gotta get going....


PeacE

Thursday, April 2

I Got the Call, Well, a Call Anyways

 Update from yesterday... My car appointment is for 5/26, not 5/2. Not that you care, but RM might.

Yesterday I did do a paracentesis. Drained 6L (two weeks accumulation - almost 13lbs). I am going to try to start going longer periods if I can, since I seem to not be producing the ascites as much as before. I still set my appointments for every week - just cancel a day or so before if I don't need.

Did the payment (all up front of course) for the IOP, and scheduled a virtual (online) Intake at 12pm today. I have already emailed them asking for my link to the appointment, and if I needed to download something more than Teams or Zoom. 8:30a and still not heard yet. I'll start calling at 10 if no email reply.

The camera I ordered came in yesterday evening. Took a bit to get working right, but according to my tests, the mic and picture are good, and I have the backdrop in program to "hide" the view behind me. I am ready for all my online stuff now (I hope). Since I am doing so much online, I spent a nice dollar on it. This morning I ordered a pill box/case. I know I needed a bigger one than the one I have here, as the after surgery meds will be numerous. This one is a week long, but each day is only split into 2 halves, is removable to carry if needed. I think it will work fine.

Still looking for a car. Never heard back from the best offer I have seen/heard yet. I wonder if it was sold already. Wife's co-worker is the one she has to go through to find out.

Til next time....

PeacE