I'm cutting it short in here today. I slept in a little, and I need to get to my quiet time. I have a couple issues that I am having a hard time holding back my anger on and I know will help me calm down, and take those problems from me. I just have to get there and ask.
Nothing special today. Auxiliary meeting at the Post that Youngest and I will be attending.
Other than that... another wonderful day (feel that sarcasm?) to get through.
PeacE
I mentioned briefly in the tidbit I send out each day, that our society has changed to thought of Monday into a negative thing. Comics showing hung-over people dreading going to the office, or just bad things happening - because it is Monday. I'm no exception, and I have no problem with it. Throw that challenge at me! All I am able to do is my best ... whether it is good enough or not.
First thing this morning we took the Youngest's vehicle down to the repair shop we use. A few weeks ago, he had noticed it dropping power while at idle, or low speed like in Reverse. We ran it up to Autozone and had them run their OBD on it. Came back with cylinder 3 misfiring. I told youngest, when he was ready we could take it up to the shop, but I only would go on certain days (not Friday, because you could be without your car all weekend, and Mondays are generally busy as they catch up from the weekend). It is a Monday, true, but a holiday (Columbus Day for those that don't know) so made exception to my rule. We planned it last Friday. Took it in, and just waiting the call that tells me how much I am boosting the economy. At least I am using a Mom & Pop place and not a corporation. I'm guessing $1500, but will see.
After dropping the car off, we headed to Walgreens to pick up a 'script for me. We were about 10 minutes early so sat there in the parking lot. Mayo calls. It was one of the nurses. I had had labs down on the 6th (last week) and one doctor had wanted retest on the THC count (the long one, not regular drug one). She said it has increased from the previous one. So she was calling is there any chance I had used prior to the 6th. I told her absolutely not. Haven't touched any form of it since February, and have not been around any secondhand smoke that I am aware. She said Ok, and that was it. But now I get to thinking... so the used the same urine sample for the re-test. It had sitting for at least 2-3 days. Could it sort of change, like a fermentation process? All I know is now I am starting to chomp at the bit (need to get in my prayer time) if they use this to defer me longer from getting on the list.
So, see? Even a "bad" Monday can happen to me...though, nothing bad has really happened. The car was planned. I don't have enough info regarding the Mayo incident.
... and that is it all started Officer.
PeacE
Everyone I know tends to use a Sunday to finish off the tasks they could/did not complete on Saturday. Many attend a church service of some kind, at some time usually convenient for them. Me? I do both. When I feel up to it, I try to make it to church. If not, or afterwards, I usually play games or watch a movie. Kinda like I will probably end up doing today. Except, I just remembered I need to do the minutes for the House Comm.
The Wife left just a short bit go for church. Most Sundays, she will pick something up somewhere for lunch when she comes homes. I gave her my best puppy dog eyes this morning, and asked for Chino Bandito's for lunch. It's not that the place is far, it's just east of our regular driving routes that we don't get there often. But, oh... the food is so good.
I have been sitting here for about ten minutes now, and nothing else comes to mind to write about, so enjoy your Sunday!
PeacE
Welcome to another Saturday and Ralphd00d edition of ...I ain't got nothing to write about.
VFW Riders dinner actually came off pretty good last night. More people brought in soups, that had not signed up or notified anyone, so there was a good variety. RM went out of her way by making some brownies and some cherry cobbler. Oh! And the cornbread, which disappeared rapidly. The Youngest didn't get multitude of compliments on his soup, but still heard a few say it was extremely good. After RM had left, I had heard several people talking about her Chicken Chili, as they had wanted more, but she had already gone (close to being over).
Last night was a reminder of my strength. I carried a full crockpot about 75 feet at the Post, nearly dropping it twice. When I was packing up to go, even with 1/2 - 2/3 gone, I still had a hard time carrying it to my car. My arm muscles have atrophied quite a bit from all the weight loss, and other medical. I had the Wife bring it in from my car because I was worried about dropping it.
The last 2-3 days have been busy with quite a bite of fluid release. After the 7.4L drain on Wednesday, the TIPS procedure might be kicking in finally. I have been urinating frequently, and even having to sit down a lot, releasing more fluid. I have a Para scheduled Wednesday, and will see how I feel come Tuesday.
And I think that is all I have today.
PeacE
It is Friday, and to most people that work M-F it is their "celebratory" day to announce the end of their work week. To me, it usually isn't much, unless I am planning to visit RM. Today, it includes the VFW Riders soup dinner night. Due to low number of volunteers, and those that were doing it all the time, we had voted from once a month to once per quarter, and this is the first one. I have three (yes, only 3) people that are in the Riders group offer to help with anything (making soup). Not. One. More. I had to reach out to my Son and RM to at least have 5 different types of soup.
Well, I overslept this morning. The alarm went off at 7am, and I thought, 'I'll just stay in bed until the Wife's goes off at about 8'. Well, somewhere down the line, that got messed up. The Wife jumped up out of bed this morning, started rushing around. I checked my phone and realized it was just after 9am...she was late, and I overslept. I had a pick-up at Fry's to do between 9-10am, so I needed to get up and moving as well.
Got the Wife off to work. I finished getting ready and headed up to the store. Came home, Youngest was still up and helped carry in the bags. I had carried 4 bags, not much in them, but one did have 4-2L bottles, and I can still feel the strain on my muscle, particularly the pecs. I hate being so weak.
Youngest is frying up his bacon for the soup, and we will crockpot it for about 3-4 hours. I already checked RM's blog and she remembered I had asked her to make something.
Debating doing my meeting this morning - just feeling like it. But that's when you should go they say, so I have about 30 minutes to decide.
I think that is all I have today to comment about.
PeacE
The beginning of this month has been somewhat exciting for me. Mayo called. Wanted to move my appointments to the 6th so my case could go to the Selection Committee on the 7th, instead of being later in the month. But yesterday came and went, no call giving me a yes or no answer. I checked the patient portal, and found some clinical notes from yesterday, basically saying something like my SC was relocated to 10/14. Which to read my case review with Selection Committee was moved from the 7th to the 14th. Too many cases? Not enough time? I don't know the reason. I messaged the nurse to verify I was reading it correctly.
So that leaves me sitting here feeling let-down that another week will have to go by that I am not eligible for a liver every doctor there has said I need replaced. I'm also angry that I have to wait another week.
I haven't had my quiet time this morning, as I slept in an extra hour. That day after being drained (7.4 liters by the way) is tiring usually for me, though not nearly as bad today due to the lower amount I think. Maybe that TIPS procedure is finally starting to work? But I need to get my quiet time in, to talk to God and let him take control of the whole review thing.
Fairly slow day today. AA Meeting at 11, Mayo Transplant Support at 12, and nothing on the afternoon except to schedule a Fry's pick-up for tomorrow for the Youngest's food supply for making his soup. Tomorrow is the Rider Soup Dinner. We are not talking about it... I already gave that to God.
So enjoy your day!
PeacE
Just a few things I have experienced over the past couple days. Sunday night, my mind was racing about the consults on Tuesday, and the Case Review on Wednesday. I really hope I make the List this time. Well, between all that running through the headspace, everything was beginning to hurt more than usual: the back, the knees, the pressure on the abdomen, my sides if I laid on either one... I am sure there are other things I could add to that list, but continuing the story.... I decided to take on of my sleeping pills - faster to sleep, and kinda sleep through the pain. I took it later than I should have. I woke at 1pm'ish on Monday. Yeah, nothing else was waking me. I had plans to try to get out to RM's as my Sister was in town, as well as her son and his family. The first text I saw was Sis asking if I was coming for lunch.
Well, I was groggy as usual after a night of taking the pill, so I was just going to cancel. I began to type out a text that I wasn't feeling good enough to drive over there. Then I felt like a slap on the back of the head. I re-thought it real quick. I deleted the text and called Sis. I told her give me about 30 mins and I will be there. I still didn't really want to go, but I now had committed. So threw on some clothes and headed to RM's.
I got to spend some time talking with Sis, her son and wife. S, Sis's husband, was napping with the baby. Of course PT was there (erase, erase). Sis and Hubby had to leave for an appt, and the Nephew was going to go do something with his family. That left it down to RM, PT and myself. I thought, just for a while longer. That turned into everyone going to Dennys for supper. I called the Wife, but she had too much paperwork to do and couldn't make it, but I did go. We had a nice supper, then everyone kind of went their own way. The Niece that lives here and her family were at dinner, as the nephew's family were still out doing whatever. I headed home with half my desert (apple crips with a scoop of vanilla and caramel dribbled over it) that I gave to the Wife. She couldn't believe I brought it home for her.
After that, the night was long and quiet. The soft squeak of the bedsprings ringing loudly int he quiet as I tossed and turned ALL NIGHT LONG! I think I slept in so late, it screwed up my sleep cycle. So today I am going to try to get through the whole day with no naps. I should good tonight then. I do have labs, a nurse, and a doctor consult this afternoon. I've been praying the past several days that nothing odd catches their eye, and the lab report doesn't show anything that would make them consider holding from the list again. I keep telling my self I put it in God's hands, but I can't help myself. It's a major life thing.
One thing that was extremely surprising, and very heartfelt, was Sis she had a present for me. I tried and couldn't imagine what shoe would be bring from NM for me. It was an afghan that she had made herself. The story she told went something like, when she started it, some people would ask her who it was for. She would answer 'I don't know. God hasn't told me yet.' Well, when she reached a certain part (was it about halfway?) my name kept repeating as she praying and working on the afghan. So she decided it was for me. As she handed it to me, she mentioned that hospitals get cold and chilly and I was to use it. It's almost a lap blanket than a full size, so it should cover my feet and come up to about mid-chest - perfect for after the transplant.
And that is how my week has been...
PeacE
