Today starts a fresh round of Life. Well, at least that is how I am looking at it. I may share too much on here at times, but when it comes to my liver transplant, maybe someone else going through similar will take inspiration from my words - as if I had any readers.
Tuesday I met with the IR for a consult at Mayo. This was specifically to go over the TIPS procedure, the pros/cons of it. After discussion with the IR doctor, and a few questions, I opted to do the procedure. The Wife and I had talked about this back in November, to look at as possible assistance. Basically, it is a bypass to take the pressure of backed up blood flow that the liver cannot handle and redirect it. It is supposed to reduce, if not eliminate, the build-up of the ascites in the abdomen. In my support groups, I have heard some guys say it greatly decreased the number of times they had to do paracentesis and others said they didn't have to do any at all while they waited for their transplant. I'm not aiming high but I would truly like being able to not do a para every week. If I could get it to once a month or longer, it would be much easier to deal with. Either way, the TIPS stays in until the transplant. I have a CT of the Abdomen, then a couple days later the procedure. Oh, and finally scheduled the colonoscopy for late August (like you wanted to know that crap - see what I did there). Oh! And they drained 10L plus said there was still some fluid in there. Sigh.
Brand new day. Brand new start. It's Day One. I smoked the last cigarette I had last night. No longer are there any here at home, or in my car. All I need to do is not buy them. Today I have nothing on my calendar and told the Wife I was not going ANYWHERE today, to reduce the want to stop and get more. She says she has a couple prescriptions to be picked up. Sigh. I probably have yet another one to get as well. But I can use the drive-thru pick up versus going inside. Even if I went inside, I usually pay at the pharmacy, so do not even have to go to the front counter (and see cigarettes).
Friday is our last VFW Riders dinner for awhile. We voted to go quarterly now, as the same 6 or so people were the ones doing it all, all the time. We are getting burned out. So it will be shredded chicken or pork sandwich, Cole slaw, and I am thinking of getting a couple tubs of southern style potato salad.
Last night as the Wife and I lay in bed doing our phone/tablet or whatevers, I turned to her and asked, I'm supposed to tell you if I am feeling things (in regards to medical especially). She said of course, so I did. I felt ... off. I know when I have a para done, that for a couple days at least I do go through an adjustment: organs adjusting to where they should be, feeling some fatigue and other tiredness, even sometimes a lack of desire to do anything that involves moving around. But this was different. It started early evening, and went through at least until I fell asleep. Still not sure what it was, but at least she knew about it in case something worse happened. I have got to get better at communicating when I do not feel right, or well. This morning I was up at 5:10a and as far as I can tell, feel normal. Whatever I felt last night is gone. I was going to be a bit worried if it persisted through a sleep cycle.
Alrighty then. I think I over-shared too much today. Oh well. May it live forever on in the internet universe.
PeacE