Is She Qualified?

 The Wife came home tonight, a bit later than normal, but that's a whole 'nother story. But she was asking how I was feeling today, my confusion and etc. Of course, I answered truthfully, because in a small way, I am worried about the encephalopathy thing. I don't know if I mentioned, I have given up my keys pretty much now. The Youngest or Wife will have to drive me any where I want or need to go. I do feel like my head has cleared up more, and the Wife I looked 'brighter' - like I was more in touch with my consciousness and everything. I told her I had followed the medication as indicated, and again I was reminded to ask the pharmacist next time if it is able to be flavored. A cherry would be wonderful. In the meantime, it is sort of like drinking sugar mixed with water in a thick mixture. Ugh.

Tonight the Post is having a Taco Night for proceeds to go to the NYE party. I want to go. I did say I knew my friend S made them, and she makes them good. It is like 3 for $8, or a combo with beans and rice for $10. I would invite people from my AA group, but the Post has a canteen, so probably would not go well for some people.

It's now about 2:30a, and I am awake. I just could not sleep with the air pressure pump called my anus, pumped 10-second farts that reek. Trust me, the pooping part will come later in the morning. For now, I have spent the past afternoons and evenings just ripping one after another off in the office. Youngest says he doesn't smell them. Small favor!! Wife has been a bit sick (coughing/chest/throat) and says the same. So I am the lucky one that gets to smell them all night until I sleep, as well as all afternoon. With the medication dosage increased, they want to see me going at least 4-5 times per day, the texture, the color. Just really involved with my excrement.

Thursday marks two weeks since the started the insurance verification for me. Another transplant patient I know, said they like to stretch it to the last day (today). So will I hear anything? Here's hoping!

And I am out of here..... because I am still not sure the Wife is qualified for the medical questions she asks, since she is a PT.

PeacE

... And I'm Feeling ... Good

 A little video prompting of what song this is....

I really like this version!

Anyways, I'm feeling better ... slowly, but surely. Yesterday I was less confused, was able to type and write without too many errors. The Youngest and I did a run to CVS and Walgreens for medicines, swung through the car wash, and finally down to Great Clips, where I got my hair cut. Feels so much better! We came back home for about an hour, then back out for a run to Fry's Food for an order I placed. Soda, Juice, some chips. Been craving soda for a bit now, at home. The cranberry juice or mix is just for something different.

I had said I gave up my keys several weeks ago, but it was more, gave them up at my leisure. Now I have given them up completely. I would hate to have one of these confusion spells while driving. I think this is what they meant... So now if I want to go anywhere, I have to talk to the Son to see if he would be willing to take or drop me off. This Friday they are doing a Taco Night at the Post - for the NYE party proceeds I presume - can't remember. I mentioned I would like to go, and the So said maybe he did, too. I know they are homemade by by friend S, and I have had them before....they are good!!

Welp, I am going to get out of here and see what I got going today. I know an AA meeting at 11am, followed by the Mayo transplant support group. Not sure what else. Tomorrow - stayed tuned for Christmas presents.

PeacE

Went On A Trip

 My spelling is bad this morning, but better than the past 2 mornings. Seems Sunday night my encephalopathy showed up. Confusion ran rampant in my head. I was misplacing items, unable to understand simple topics ... I couldn't type/write unless it looked like a monkey did it. I know RM, but this IS your monkey. It was bad enough Monday the transplant team said if it worsens to get to the ER. I did Tuesday. I had the impression at first that they were going to put me in a room, but nope! Sent me home. After stopping for food (hadn't ate all day) made it home about 10:45p.

Still this morning I am feeling groggy. They upped the medication dosage to treat this (Lactulolose) which is a sickening sweet taste (without  flavor). So kinda...ugh. I did the Favorite Son and made sure RM knew what was going on.

Gotta go. Meeting at 10a and I need to put together a shopping list.

PeacE

This post was read through several times for errors.

A Mere Blurb

 Short post today. I am headed out to RM's to visit this morning, and take care of some computer issue(s). Taking the Little Debbie Christmas Cake creamer I got as well to see if RM likes it. I'll probably end up giving it to her, as still, coffee does not appeal to my of a morning.

Still waiting for me card. The last two days we have not had any mail, but I have not noticed any funny stuff on the account. If not today, then I will be calling them.

My Sister texted yesterday a couple places to check out regarding cost of the new prescription. I will have to check them out at some point to see if it is advantageous. Need my card so I can start it. Well, I could have the Wife pick it up for me, but that will be tomorrow anyways. Will see if I need to do that.

...and that's all I got for now.

PeacE

A Bit More ...

 ... about Saturday. As I mentioned we got home near midnight. Sunday I just basically did little things around the house, until about 9pm. Then I realized something. I grabbed my phone/wallet, and sure enough - no debit card. I had given it to the SIL on Saturday to verify the pizza order, then forgot to ask for it back, and he didn't remember about it. I called the Daughter. Yep, SIL still had it in his wallet. The Middle Son had already been down and gone picking up Doc, so she mentioned meeting up 1/2 way (about Casa Grand for us) but I didn't want to waste the gar or time to do so really. Online I requested a new card with same number as a damage replacement, and should have within 3-5 days. I let Daughter know. She will hold it until I get the new one, then at my call, will cut up that old one. I was hoping it would be here yesterday, but there was no mail for us yesterday. So again, I hope today. I did do some Christmas shopping yesterday online, but had to just save everything because I am not sure if the old card is good until the new one is used, or what.

Tuesday night, I forced myself to go to the Entertainment/House Comm. meeting at the Post. I was not on taking notes for minutes or anything, but ended up doing so. They did find someone to replace me while I am on LOA, and I did the notes, and will do the minutes probably tomorrow. That way he will see the basic format I use, and how to put items in the different sections (they are never discussed in a proper order). Then I am done for a bit.

It's Thursday. There are a couple tings I do differently on this day. I have the Mayo transplant support group meeting at noon I usually attend. The other one would be getting my card in the mail and getting somethings ordered. I sit here enjoying my vanilla protein shake whilst I think about it. You know, maybe tomorrow I will go over to RM's in the morning. I need to do PT's computer back-up of "very sensitive stuff", and would have a little time to visit (depending on how much work she has. I had picked up 2 bottles of Little Debbie Christmas Cake flavored creamer, and may take that out. I have been wanting to try it, but each morning when I think about having a coffee, my body disagrees with me. I can do tea, water, and juices, but much else to drink just makes me feel ...ugh. RM had mentioned she may have used some creamer recently - maybe she could use if she liked it. I sent the other bottle with the Wife to her work to share. I wonder how that went over starting yesterday.

Welp, that's all I got today.

PeacE

Did You Get Your Tally In?

 Yesterday was mid-term elections, and I will be honest - I really detest having to research and pick the better of two evils for every position. Sure, I could not vote. I could skew the numbers a micro-fraction and do write-ins like Mickey Mouse. But I have always been a firm believer, even before I could vote, that one must voice one's opinion in matters such as these, in the way the government wants done. Also, If you don't vote, you cannot gripe/complain, or cheer, at who actually wins. No vote - no whining. I did drop into our local spot to vote, and dropped off the Wife's and mine mail-in ballot. Yeah, we never seem to get them back in the mail on time, so I do the little run. They had something new this year, and I do not know if it was in limited locations or what, but they could tabulate my mail-in right there if I wished them to do so. I show my (Gov't) ID, and open my envelope, they have the machine that tabulates it, and you go on. I said no, I didn't want to waste time (I was on a time constraint to get to Walgreens before their lunch break).

So, I went to Walgreens to find out what sort of problem we are having between our insurance and the GLP-1 my doctor prescribed. I need to back up a bit. I started receiving disability checks a few months ago. They have been a God send for helping us. I have managed to pay down all the medical from last year and this year to around $1500 to go. In theory, that should leave me some open monies for future medical, etc., which I consider this prescription to be. Why? It is $500/month after insurance. Out of all my other meds, the most I pay is like $20 on about 3 of them. The rest are covered by insurance completely. Now all of a sudden I have a $500/mo prescription?!? I said read further on the Dr. notes, I thought he listed an alternate as well. Yes, he did. It brought the cost down to $299/mo. Better, but I want more off. I came home and went to the manufacturer site (Eli Lilly) to see if I could qualify for some kind of addition MFG break. Nope. It still calculated me down to the $299. I called my Sister who is on something similar, and though her situation is different than mine, she could think of no loophole or additional resources to try to get the payment lower. So my first expensive drug has started. Or will start here in a couple days. It is a Kwikpen, pre-charged with 4 doses. I read you have to get needles for it for each week, so need to check the cost of those as well.

Still waiting to hear from Mayo that the insurance verification is completed and I am good to go. That will put me ACTIVE on the waiting list. Though I will sit here twiddling my thumbs, at least it is somewhat of a countdown, and I am available. Prior I could not be considered. It should bein the next day or two, as it was just a week ago I was approved for the list.

Had a great time in Tucson Saturday even if it started out rough. I was driving, and ended up having to stop about 45 minutes south of Phoenix. My head was getting all weird feeling. Youngest rode down with us, so he finished the drive there, and drove us back that night. It was to be overcast, with very low chance of rain, but God fooled the weathermen again. I got an extra surprise as well! The Grandson had been dropped off there a couple days prior, so ALL the grandkids were there!! They played in the rain in the back yard, we got some pics. I even got Doc to finally come to me and give me a quick hug - first one! Into Dusk, the kids dressed up and everyone except me went out to hit the neighborhood. It was raining. About 30 minutes later, it was raining harder, and the crew came back, soaked. I ordered Barro's Pizza, a favorite of all of us, and I guess due to location, they needed whomever picking up the order to show the card it was ordered on - cardholder need not be there. So I gave the SIL my card. Had some good pizza: Mega meat, Pepperoni, and I got some mango habanero and medium buffalo wings. It all tasted "off to me, so I didn't eat much. We were home just before midnight, and I was worn out!

Monday was a day of recovery for me. I rested, napped, and played on the computer.

PeacE

Just Leaving It Here ....

 It's Election day. Go Vote.

PeacE