Mr. Bladder woke me at 1:05am this morning. This is a normal occurrence, at least the getting up a couple times in the night. But today is a bit different.
Having the Para yesterday does wear me out a bit, and last night, as we were doing pre-bed routine (which means me on my tablet playing a game or two) I started nodding off a bit early. I gave up fighting it and crashed - and woke at 1am wide awake. I figure if I watch an hour or so of dumb videos or something, I'll get tired again (which I will at any point) and then return to bed. Overall, right now I feel a bit worn out still, but otherwise fine.
I try to update the people that need to know, about my medical stuff. Usually it just a quick test to my family chat group, and to my Sister, Brother and RM chat group. Just quick things like yesterday's paracentesis - how much drained, my weight, etc. I think it was back in December or so, That RM mentioned my Uncle L (her side of the family) had been asking about how I was doing, and I decided to create a basic document that I add updates to about monthly. This I send out to other family (more distant family (uncles/aunts, etc.) after thinking about it. Aside from my blog here, I don't share on any social platform my medical stuff. I figure I will tell who needs to know, and who don't need to know, well, the are SOL. My point is, this morning (already!) I had a reply from my Uncle L (whom I email the updates at RM's request) just saying they are thinking good thoughts for me, and are behind me in this stage of my life. It was kind of just a generic one-liner, but coming from him, it meant a bit more. We were never 'close' as I grew up - living with my Dad prevented a lot of that with RM's family. So even despite that 'gap' he has always inquired after us kids when he talks to RM. Don't know where I am going with this now, but just know it was sort of touching for me. I gave a quick reply to acknowledge it, that he will probably see in just a couple hours (he's back in Indiana).
Need to call today and set a couple more Para appointments to cover the time before getting the TIPS done. Next week, or the week after, I'll call for 2-3 weeks appointments after the TIPS, just in case it isn't working as well. It will take a bit of time to see any changes that are going to last. Here's hoping for the scenario where I don't have to do Paras at all! But I ain't holding my breath. It's one of those Serenity Prayer things - like many other things right now. 'Accept the things I cannot change, Courage to change the things I can, and the Wisdom to know the difference'.
Okay, well, I ran out of anything in my head to ramble about, so have a nice day.
PeacE
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