It has been quite a stressful past few days for me. Aside from most of the past 4 days feeling quite a bit of nausea, I think I am almost back to what would be considered normal at this time, I guess.
At 10:15am I was scheduled to have a video conference call for an Educational Visit with Mayo. I had given up and was going to use my phone (no camera on the desktop), then remembered my laptop may have one. I checked and it did. I got that set up and did the conference call. It was mostly a PowerPoint show about the Liver, how it works, types of causes of failure, types of transplants - then a Q&A session after. I was in with about 6 other patients, so we weren't to ask specific questions to our case, just about the info provided or general questions. I didn't have any, and the few I heard asked I already knew the answer to, so I ended it. I realized, that my camera doesn't like low lighting. All the rooms in our house are dim, so I needed somewhere brighter. They specifically stated not to do the appointments in public places, or somewhere with other background noise/people that can distract whom I am talking to. So I called my Mama, and RM was happy to have me come out and hook up there.
Out I go, and realize once there, the afternoon appointment is phone call only - no video needed. I didn't need to be there. Oh well. I stayed and visited a bit. Did the appointment. Then worked some emails and other VFW related. I got quite a bit done. Then stayed for just a small fraction of chicken chili soup. I was still getting over several days of nausea, but this seemed to be okay. I took the leftovers home, where Wife had a bowl last night, and I will finish off this afternoon. It is mostly broth now, and for some reason, that sounds better than solid food right now. Then evening came and I had to go. Stopped and picked up 'scripts, and milk, then home to bed.
I had my first two conferences with Mayo yesterday. The first was an Educational one, and lasted about an hour. Most of that hour was a 45-minute PowerPoint show about what the liver does, causes of failure or decay, types of transplants, etc. When I asked afterwards if it was available in PDF from our patient portal, I was told no. They felt it isn't needed, as 99% of the information within will be reiterated over and over as I go through my week of tests, procedures, and consults, that we will probably get tired of hearing it. The second one was the Finance Call. Ugh. I was dreading this one, and of course it is almost before any other thing is done. Best news ever! According to them checking with my insurance, it is confirmed deductible and out of pocket amounts have been met, so all appointments/tests/procedures, the transplant itself and all related needs/services should be covered 100% (or at least no cost to me). Whew! I was worried about with a transplant the insurance would still make me pay certain things as it it is not a normal type thing.
I had shared what is going on with my health with a number of people. Most of whom I considered close friends, but I haven't been shoving it down everyone's throats that I am sick and this happening - poor me!!. Well, yesterday I wrote the Post Commander, Auxiliary Secretary, Riders Director, and House Chair about my medical. I did not go into great detail, just that at some point in the future I need a couple months off my appointed duties, and wanted them to be aware to help find someone to take notes at meetings for me. I can still get minutes and agendas done with notes, and the rest via email or calls. Plus, I would like to retain the position, so return to it once I am able. Two have already responded to just concentrate on getting well, and we will get done what we need to get done for my notes etc.
I also had a document I had adding to since December. It just basically explains what happened, what's going on, what the next steps are: I did this for family and friends so I don't have to type it out all the time, plus there are some I just don't communicate much with, that I felt should know. That went out yesterday. Haven't checked my email this morning - it's the next stop.
It's a Para Day! Headed out in an hour to get drained. Hoping numbers are down.
Can't think of anything else today. I did have to go back and add somethings, so there may be some repeating in this post.
PeacE
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