Did The Weekly ....

 Sounds like a chore of sorts, don't it? Well, it is beginning to feel like more of one as well. Having to go to the hospital for paracentesis whether it is scheduled, or through the ER ...just should not be happening this much. I know, I know, that that is what the doctor needs to find out. Sigh. I just hate being the patient.

So I did make it out of there prior to noon. Had the Youngest swing through Arby's as I was hungry. Had a a basic sandwich, fries and coke, then settled into bed for a nap. Got up and decided to head to the Post for a bit, as I was feeling "better". Back home by shortly after 6pm. In bed by 8:30pm for sleep, but it eludes me.  I spent some of that "falling asleep" time thinking about this disability claim, how to start, where to go, who to talk to, etc. It's a bit overwhelming to me. I decided to get paperwork ready for in the morning to start the process, and started hitting the 'patient portals' to get whatever report copies, notes, etc. I can so submit with my claim. There was quite a few downloads.

I had to put another hole in her. My belt took yet another hit for the team today. While walking out of the ER department, I noticed the shorts had drooped a bit, so I went to "hitch" them back up and realized there was no open slot to tighten the belt. I that was done at some point this afternoon as well. I did weigh myself, but it was several hours after the Paracentesis (i had eaten and had some tea) so I weighed in at 273.8 pounds I believe it was.  I don't recommend this weight-loss system though....

As our own mortality starts to show itself to us, I guess one mental status can go a bit haywire. I know my head has been wracking the whole 'what if I die" scenarios, and now I get ones about what if the Wife, what if this, what if that. Some of it is interesting, like imagining you won the Lotto (and a couple billion bucks) and could afford to go out and do/buy things for people, yourself, whatever. What would you do? Buy? Frivolously waste it on? Oh the things I could start doing if I could get started on this hoarder hotel....

Anyways, so that is where I am at 1:55am in the morning. Not tired at all, though I should be. I have been not taking the edibles lately, so to try to not mess with any other medicinal stuff my body is trying to do, but it sure makes it harder to sleep. It's nice to have a "bite of candy" and 30 minutes later you are just warm and snug under that blanket on the bed. It's a good feeling.

PeacE

Another Week of Catch-Up

 With all the medical appointments, blood draws, doctor appointments, VFW meetings, and all the other goings on for the holiday, I feel like I missed some days. I know I didn't - those were the days I was not feeling well. 

After the first week with the dosage changes on two of my medicines, I started to get hopeful as I had three days I woke up feeling better then normal. I know, it is too early to get my hopes up. I have to do this 'roller coaster' so the Docs can figure what what does my body react to, and able to withstand if we need to increase a bit. So for about 4 days there before Christmas, I was feeling bad, on top of the Santa Run at the top of the list.

So, needless to say, yes, in the last 2 1/2 weeks I have noticed changes I expect to be medicinal in nature, and probably will see more changes after the Liver Specialist appointment around the 15th.

Tomorrow I will be getting dropped off at the ER again. Time for the weekly paracentesis, though this will be the last one I get paid for the year. Deductible resets 1/1. Oh Boy. I was talking with the Wife at our dinner date tonight (Texas Roadhouse as we hadn't eaten here in quite awhile) about how I am nor short of breath like previous weeks, and I don't feel the uncomfortable pressure in the abdomen as badly, do I need to still go tomorrow. Wife says yes. Said Doctor ordered once a week until we control how to figure to get the amount being drained down (I think it supposed to be way under 10L). I'm just going. Even with the Wife at half of my appointments, half of what I hear goes to the wayside anyways.

So, basically, I'm floating. Starting to move in a positive direction, just not as fast as I want to go.

Christmas' went well. Thursday we met at the Middle Son's apartment and did our exchanges. The Oldest Son dot times/dates confused, so was not able to make it, but he made it to RM's yesterday where we finished up exchanges. I had a good time considering I a) was not feeling good and b) had to tolerate PT. I swear, I could have recorded every conversation he had with me, prior to even going to RM's. What he will ask, how he will ask it, how he will respond. Sigh.And it never changes.

I loved all my gifts I got this year. My pickle stuff, my beef jerky stuff, lotsa snack food. Couple shirts, PJs and clothes. Needless to say, I don't think I will finish all the snack food before February like most years. There is a lot! And with my decreased appetite.... Oh hey, that's good news! After the draining last week, my weight is down to 165.8 lbs. That is about 65 pounds since last April. As I found out tonight though, still need to lose more to fit behind them tiny restaurant tables though (that don't move).

All right, well, it is Sunday night, and I am wrapping up stuff and headed to bed. Tomorrow will be spent trying to start my Disability claim. Oh Joy.

PeacE

Let's Close Out the Weekend ....

  Saturday night was the 7th Annual Santa Run I have led, planned, etc. and am in the process of turning over to someone new to do it. That meant some changes to things, which I particularly didn't care for, but I am not doing this after this year, so why should I care? We had a total of 8 people show up. We had close to 32 on the original list, and winnowed down those that couldn't make it, to about 20. We needed about 16 to make back the money spent on the bus. Eight showed up. There were at least 3-4 that had pre-paid that didn't bother to show, and several were last minute "I'm not going to make it". So the 8 of went out still. At the final bar, we didn't even go in. it was about 12:15am, and we had the bus for another hour, but I said I was taking a Lyft. I was done. Nauseous, the whole abdomen pressure thing ... I was done. And sober. It was decided we just call it a night and all took the bus back, where I went straight home.

Around 8:30am, I had the Wife drop me off at the ER for a draining. She stayed about an hour, but I told her to go, as we both know it will take a bit to get through ER and services, no since both of us wasting our day. Drained out 14.1 liters this time (last drain was exactly 2 weeks ago). No fluid in chest cavity, so no need to hold me longer. Wife picked me up around 2 or so.

We did dinner tonight as a belated birthday one for the Wife. She chose Olive Garden. My taste buds and everything have been off during this whole liver thing, and tonight it was a bit worse. Everything I ate (salad, tour of Italy, breadstick) all tasted "off" in some manner. But the Wife enjoyed, and the Youngest came with us.

I have one last Riders meeting this month, tomorrow night. I'll head there after going out to visit the Sister. She was finally removed from the hospital to a rehab facility as of today. I missed being discharged from the ER and visiting her at the same hospital by about an hour. She has a supposed stay at the rehab of two weeks - hoping for faster recovery, and it is shorter, with the holiday coming up and all.

This week will consist of the final presents being bought (read: gift cards) and the start of the wrapping. Since the Wife does most of the shopping, I only have a handful of things to wrap. Too bad I have no clue who gets what, otherwise I would get stuck wrapping more.

Youngest's new computer arrived today. Right now he is just opening it up and hooking  things up and preparing to download his games/programs/services.

Guess that does pretty much round out the weekend. Til next time...

PeacE

I Feel ... Productive

 Not quite noon, and I feel like I have accomplished quite a bit this morning (for me). Picked up the Youngest's dead computer from Data Doctors. They quoted $1300 for replacement of compatible parts. At Walmart, I found a system that would work for him (verified) and for only $899. It is to be shipped and arriving tomorrow. Christmas is definitely done for that kid this year!

Our Riders dinner wasn't as good last night. I think we did like 14 sales versus our usual 20+. I know it is December, and that limits, but truly was hoping for more. RM and PT came by. At one point I about smacked PT upside the head. We were in the canteen area prior to dinner, and he asks, out load, 'Have you decided to quit your Secretary position in the Riders'? Well, the Director was right behind him, so I muttered a quick 'I don't want to talk about it' and hoped the Director didn't overhear. I don't think he did. But PT is just getting worse with the dementia/mindset stuff. Just blurts out whatever, even if he already asked it. Does things like above, without a thought. Makes me want to be around him less, if that is possible from what I already feel.

So, dead computer picked up, new one ordered, picked up "breakfast" at McDs for the family, and started to pull out all my Santa gear. I need to see if I threw away the suit I had been using for the Santa Runs. It is stained, and whatnot, but I did find it, so no worries of dirtying up my nicer one I use for gigs. Some electrical tape repair to the belt, a quick lint remover roll and should be good to go for tonight. Oh, I need to get a hat for it. I didn't see one when I found the rest of the suit. Good suit is pretty much ready to go for the 19th as well.

I think I have decided that I am going to go to the ER tomorrow for a paracentesis. This morning I woke, again not feeling the pressure as bad, so am beginning to think the change in meds has starting a positive impact now. But I still need this drainage done as it is uncomfortable. I'm packing my backpack tonight just in case. Couple changes of underwear, socks and PJs, laptop, tablet and chargers. Just in case they keep me over night (or longer).

VFW Riders meeting Monday night for me, if I am discharged in time. Looks like we might do a spaghetti, garlic bread and salad for our January dinner. Director and I talked last night, the Hall has a rental that night after our dinner, so I am sure we will pick up some extra meal sales. A good reason to go with spaghetti! Cheap to make lots of it.

Okay, well, I still have stuff to finish prior to the Santa Run tonight. We should call it "The Myth, the Beard, the Legend ... Last Run with Santa". I am the only one from seven years ago, that will be at tonight's Run, and the last of the Original Guard. Really wish Oldest Son could make tonight (he has 6 years of going) but I understand Life happens.

Yesterday I worked on a spreadsheet for my medical stuff. One page is medications, amounts, times/day, followed by a second workbook page of the Doctors, and who they are to me (PCP, AZ Liver, etc.). Printed out a handful of copies to carry with my medical journal, because everyone always asks for the medicine info. Second page is in case they need contact numbers, etc. I think it turned out pretty good, considering I am self-taught and learning. My buddy that is "taking over the Santa Run" did a spreadsheet for those going, who has paid, who confirmed, etc. that I also modified up this morning. Adjusted it so those that need to pay still are at the top and easy to find on the list. We need about 8 more that committed to go, to show up and pay to cover the bus costs. I'm hoping the SIL doesn't go, as my Brother said her money will pay for my spot if she doesn't go. I like free.

Anyways, I wasting time now, so need to get off here.

PeacE

It's Easy To Get Lost ....

 ... in the seemingly notes/paperwork/discharges/follow-ups from doctors and hospitals, to find out the important things, like, what exactly are the meds/dosages? Is that a blood draw at the Liver Dr office, or is that not until January when he scheduled our next appointment? I have been trying my best to keep a journal of "all the experiences" of this joyride, as well as what reports I can print from patient portals for any doctors I see. I try to keep an accurate spreadsheet on my meds, dosages, how often to take. In fact, I need to call the Liver Spec. to confirm a couple things: do I have a blood draw on Monday, even though the appointment isn't until January? What were the changes he made to the two prescriptions? One I got cleared through the pharmacy already, as it was an increase in dosage and times to take. The other one, not sure...he said something about increasing it (I was already at 2xday per the hospital docs) but did he increase the dosage as well? Pharmacy is holding that one as I just filled that dosage strength a couple weeks ago, and the insurance wouldn't want me to have dangerous pills around, I guess. Gonna be a bit busy in the morning.....

Saturday, the Youngest was cleaning up some of his accumulated trash (empty sodas, sunflower seed packs, etc.) and accidently tipped a cup of water into the top of his computer casing. He was able to shut every thing down in seconds, but not sure how bad. He dismantled and dried out everything he could, and left it out and open to dry more. Sunday he tried powering it up, but only 2 (of 4 fans came on, and it was like the power wanted to come on, but wouldn't. Not knowing any computer-savvy people for this job, we took it up to Best Buy for their Geek Squad. 

I was angry! Without even looking at it, they charged me $180.00 ($16 and change tax) to purchase a coverage plan for this one item, that I don't even know if it is worth repairing. Then another $80 for diagnostic charge. Not happy! But Son needs it, and it needs to be found out. They guy hooks it up to a power source and turns it on, sees the same results we did, and said they wouldn't be able to look at it until the next day (it was evening). The next day, no call, no text from Geek Squad. Youngest and I go up, and I demand it back. A different person told me the coverage was required no matter what to have service there. I responded they didn't service it at all. He said when water spills are the cause they have to let it set 2 days before even looking at it. I demanded my refund, of the coverage and the diagnostic fee. He caved right away, when I added that his "associate" had fired it up the night we brought it in, and now it could be damaged more by their negligence of their own company policy. And Shouldn't I go speak to the manager right now?

So home we go with a computer that still doesn't work. The next day I took it into Data Doctors, who charged me $50 up front to look at it, said they had to wait the 1-2 days as well, and life went on. Today is that second day, and no call/text, so I told the Son we will call and check on it in the morning. Hopefully they found something fast, easy and cheap. I can't afford another whole computer right now.

My sister fell and fractured her pelvis this past weekend. She has been in the hospital (same one I go to) waiting to find a rehab facility that will take her insurance (Thanks Obama Affordable Care) and have a room available. Hoping tomorrow. I spent a little time with her yesterday and today. With her somewhat loopy from the pain meds, it's just too easy to get those sibling love jokes out of the way. I did promise no pictures though. Told her if she stayed until Sunday, we could be roomies. As I plan to go to the ER on Sunday for a draining, and any possible overnights they might need. At least my calendar is fairly free next week.

Getting close on my book goal. I have 2 reviews I have been lax about doing, and I think it leaves me one short, which I am working on reading now. Just with all this medical and whatnot, the desire to read like I did before has gone to the side as I just can't concentrate as well. Maybe when things start getting in better control.

PeacE

"... and I squealed with glee, as I knew the long awaited day had finally arrived ...."

 ... and then it shit on me.

The Liver Specialist was the longest awaited doctor appointment I have had over these past few months. Monday was the day! The Wife was off work to help be decipher all the medical jargon, and help me answer the correct questions with the correct answers instead of tearing off on tangents about ... whatever. Usually about the crap I went through at the hospital, etc. Either way, the appointment wasn't overly long. They wanted to do an U/S but as it had been a week, I was "re-filling" and there was too much fluid for them to really see what they were wanting to see. So, they sparked an appointment for January now (with fasting prior to). They ordered a full menu of bloodwork. Of the two 'laxatives' I take (to drain the water - which obviously is not working - I actually told the Doctor that I peed more prior to September regularly than I do now with pills to make me do it. It's like it just takes water from my body and throws it in the abdominal cavity. So, new pills, with taking multiple times a day versus once as before. The Doctor did ask one correct question: How much are they draining when I go in? I explained if I can get in at like 2 weeks, it's about 11+L, but over that time period it goes higher. I mean, 16.6L the last time I was in the hospital at that was at 2 1/2 weeks. He said that is a no-no. He set me up standing orders for therapeutic draining no more than once a week (as needed). Today I called the hospital - they are booked solid through December - no way to get an appointment. I explained that I would have to use the ER then, and the Scheduler agreed with me, saying 'Do what you need to do to help you'. And then I booked the four Tuesdays in January, in case I need them. I can cancel a couple days before if I don't need them. 

So all this happened prior to noon even. And it is the Wife's birthday. So, as she wanted, we went home and took a nap. She had some things to do in the afternoon, and I think it was about 6:30pm when I asked her if she wanted to go out on her birthday, or move it to the weekend. She commented that I am limited to what I can eat, I said I can do salad anywhere. Finally she said no, as it was getting late enough, with waiting on crowds, just not worth it. So I guess will will try this weekend.

Youngest Son has had a problem the past few days, but I think I will save that for tomorrow for fodder.

Friday is our VFW Riders meal - lasagna, garlic bread and salad. I signed up for the salad and dressings. Am going to try to make the dinner, as RM And PT will be there, but will depend on how I feel. Saturday morning is our Riders Toy Drive I should make an appearance out, but again, depends on how I feel. With the pressure I am feeling right now, I have a strong idea I will be entering the ER around 9am Sunday morning, and sending the Wife on her way. Nothing on my calendar until the 19th, so if the hospital keeps me a couple days again, I am okay. I'm packing a bit better this time too, just in case. Birthday dinner will have to be Saturday I guess.

Monday, after the appointment, I put my phone on do not disturb until today. Several friends and family tried reaching out for an update, but I just didn't have one. I also was feeling a bit in the dumps with how the whole thing went, and just needed to wrap my head around some things. It's getting hard to not just quit some days. I am in no way shape or form saying I am suicidal, or delusions of death, etc. I'm just tired.... of not seeing positive reactions/results, feeling like I am being not told all the info when it comes to my treatment and care. It is frustrating for me. Just as I am sure I am frustrating to my family at times with my shortness of breath, fatigue, tiredness, and any other ailment that hits me.

Sigh. One day at a time, they say. Well, I'm impatient.

PeacE

Let's See What Happens ....

 I last updated this past Saturday morning. Saturday itself wasn't a bad day, but at 12:15am that night, it started me on a ride I did not care for. I woke the Wife (who had just fallen asleep) and informed her we needed to go to the ER. Once again, the pressure on the abdomen was just too much, plus this time, I was actually getting some pain spikes throughout. My next normal appointment for paracentesis is on the 4th - five days away, and still over two weeks from the last one.

Spent most of Sunday in a room in the ER. They did perform a paracentesis and drained approximate 14.4 Liters of fluid (the highest yet from me, though that may not be an EXACT amount). Chest x-rays followed as per the norm, and sure enough, fluid in the lung cavity again as well. That meant an overnight stay, as they refuse to do two procedures on a patient (unless life/death threatening). I'm still not happy.

They switch me up to a room under observation, and my thoracentesis is going to be scheduled sometime the next day. Sure enough, 8:15am, I am off to get it done! I'm happy, thinking, like last time, there will be a couple hours observation afterwards, and they send me home. Nope. Here's a grenade, go lay on it over there and see what happens. For 2/3 of the day I am arguing with nurses and other staff as to why they are not releasing me - sodium too low, this isn't right, that isn't right, potassium is low. I told them half of that is because when they bring around your prescriptions you are to take, they gave me only 3 of the 8 I take, potassium being one of them. I was ready to scream for am AMA to leave, but the Wife talked me out of it. I finally gave up. Let the hospital keep me forever and kill me.

I am moved again to an actual inpatient room, where I spent the night (again awake all night). I saw Hospital Doctors on call, Nephrologists, Pulmonologists, too many nurses, over the course of my stay, and some would say I was good to go, then someone else would countermand that. Finally, Tuesday late morning, the Hospital Doctor discharged me. Longest hospital stay of my life with a bunch of what I feel were incompetents. I went home and crashed for a couple hours, and still made it to the House Comm meeting at the Post.

Wednesday I had to return to the hospital for the endoscopy. Aside from them running a little behind, it went fine. Glad they knock me out. I did get the report from it, and everything seems fine on that front, and I have the report for the Live Dr on Monday. Which is my next big appointment. This is the moment I have been waiting over three months for - to finally get some real answers as to what is going on, how bad is it, what are we going to do. Basically, what could very well be a life-changing moment.

The docs in the hospital did ask me to drop my fluid intakes to 40oz/day (down from 60oz, which a rarely was able to do) and I just shook my head and said sure. I know I need to, it is just hard.

Welp, I feel the need to release some bowel pressure, so need to go....

PeacE

Counting Down the Days ....

 Thanksgiving was a nice day. I was awake off and on the whole night before, anxiously awaiting the time to get up and moving so I could get down there to see my kids, and of course, the Grands. I cared not for the thoughts of glorious foods, desserts and ice cream. I just wanted some cuddle time with the little ones, and the joy it brings me to see all the grown kids together, joking around and whatnot, as if they had never left home.

Well, I finally just gave up around 7am I think it was, and with my "noises" I was making throughout the house, the Wife didn't get to sleep in to 8am. We were on the road by 8:45am. Youngest had left way early that morning, driving himself down. His first solo trip there, as well as the longest solo trip I think he has made since learning to drive.

We arrived, and only were waiting on the Oldest Son to get there. Unfortunately, his girlfriend could not make it. Their cat has been sick and requires timed medication I guess. The gal they had asked to take care of the cat for the day, wanted to take the cat over to her house, of which they were promptly like No. So she had to stay home and care for it. Food prep started, and I sat out of the way at the table, taking turns holding the two smaller Grands, and catching up with the kids as I could.

Dinner was extravagant. The SIL smoked a turkey, as well as deep-fried one. His skills are honed in now, and both turned out wonderfully juicy all the way through.. and the taste! Mmm-mmm good. I was able to get a few things on my plate that didn't make me nauseous, and was able to get them down. Mostly a little turkey, mashed potatoes, corn, deviled eggs, and some giblet gravy that the Daughter did for me from RM's recipe. OF course, this one is different, as they used drippings from the smoked turkey in it as well, so had that smoky taste to it, which I rather liked.

All the older kids had brought/made desserts, so there were plenty. I skipped on making my Cherry Delight (which they did gripe about) as there was going to be so much. I even had to bring some of a couple desserts home as I could not eat them there. We finally headed home around 8pm, the Oldest Son following. Youngest stayed the night, and the Middle Son and family had already headed back as he had to work that night. All made it home safe, except for the Youngest. As of last night, he seems to have caught the "bug" Daughter and family had earlier in the week. Lots of vomiting and sit-down time in the reading room. Hopefully he will feel well enough to travel home today.

Saturday is here, and this last week has been wonderful as my calendar has had nothing of importance on it, and is clear now through Tuesday night (VFW House meeting). Wednesday is my Endoscopy. Thursday is another paracentesis. And FINALLY, on the 8th is the Specialist appointment. Right now I am just over two weeks without being drained, and though the pressure is definitely there, yesterday, and so far today, I actually feel somewhat normal still. Keep it going for 5 more days....

Candy Canes came in for the Santa Run on the 13th. As did my new boots for my outfit. I also pretty much completed "my" shopping for everyone (Thank you Amazon) and am only down to gift cards now. Waiting for Fry's/Kroger to do their 4x fuel points (or 2x if at all) before I get them. RM and I joked a bit the other day about Christmas shopping and how Amazon is our friend, and keeps us out of the brick and mortar stores. I dislike crowds so much....

And I think that about does it for today. I have a couple things to adjust on the Agenda for Tuesday's meeting and send that out, then I am probably going to the Post later. I know, exciting, right? Oh, and RM.... next Riders dinner is 12/12 doing lasagna, garlic bread, and salad - $10/plate, usual time. Off to check the BP and Glucose....

PeacE

Happy Turkey Day

 Nothing like being woken up at 4:30am by the bladder.

I still have 4 hours until I told the Wife I wanted to be on the road.

I am not tired to lay back down.

I am over-excited as I get to see all the kids today.

PeacE

I'll Take All I Can ....

 So I left you yesterday with bated breath, as I sat on hold with scheduling for my next paracentesis. Yeah, I know. About as fun as having one. Anyways, after being on hold about 15 minutes, she came back and asked if she could work on it and call me back. We verified my callback number, and I hung up, thinking 'She ain't going this far out of her way for me. They do scheduling for all their facilities in the Valley (a number of them). 'Round about this time, I get a text from Walgreens saying my diabetic pill is in, and also three others ready for refill, would I like them yo refill. Duh, yes! Then I sit there.

After a bit, I see it is about 11:30am, and I am already just done mentally for the day. I feel off-balance inside, as it has been three days since my last diabetic pill, and though my morning glucose check was only a bit higher than usual, I still feel some of the effect of not taking it. Practice run I guess, as I have to stop taking it for three days prior to the endoscopy coming up soon anyways. I decide to head down to the Post. 

A couple hours later, I get a call from that scheduler - herself. She was able to get me in on 12/4 at 11am. I am in shock. Of course I take it. When I let the Wife know, she griped it was still over two weeks away, but if they were nearly into next year, and no open slots, I'll take this one. Worst case is an ER visit (again). I am just hoping I can get through to the 3rd, for the endoscopy, without major issues breathing, as they may reschedule. Want to keep it this year, so insurance covers it.

Over the course of the afternoon, through texts, I see three of my prescriptions are ready, one being my diabetic. I decide to stop there on the way home. As I am sitting there in front of the store, re-reading the text, checking their link, I see they want to charge me $300 for the month. No, I did a 3-month discount from the manufacturer just last month. So I go into the manufacturer website, and through the text feature ( I was already signed up) I was able to get a copy of the discount code. Then I went in. Yup. As she rang up the three scrips, the one came to $300. I gave her the code, and through some long and about way, she was able to finally get it to ring-up properly at $10. I grabbed the bag, threw money and ran.

Sometimes things do work out right even after a few days of frustration. RM would say it is God at work. I don't care what it is, as long as it is in my favor.

So I get to start out today, relaxed with the para appointment set, have all my scrips current, and maybe some plans today. I had a hard time getting to sleep last night (I blame it on too much tea yesterday) and the first event today at the Post is the AZ Confederation of Motorcycle Clubs. This is the top 2 leadership in each MC in AZ that meet once a quarter on neutral ground (our Post) to work out differences, etc. Tomorrow is their 'Member Appreciation' breakfast and toy run. I like to go to these events, not because my Chapter is a member (we are not, as the VFW Riders Group is never an MC) but just to get our patch seen, and meet some of the leaders across AZ, and their chapters. But after the hard time getting to sleep, I may just sleep in a bit more.

Second event is a Celebration of Life, at the Post as well in the afternoon. I had helped a friend get the hall rental for it, as his roommate passed a few short months ago. I told him I would stay for a bit for support for him (I didn't know the roomie). Then it will be home I guess.

The Daughter sent out a list of Thanksgiving day food we had the last time we did it at their place, to our family chat earlier this week. I added she needs to add vanilla ice cream to it, and that I was going to bring a small salad (for me) just in case the food does not agree with me. This has been a daily struggle for me and eating. I can eat it one day, the next it makes me nauseous. The Sons have chipped in that one is bringing a couple desserts and some thing else. Another is bringing stuff to make truffles (I have never had them that I recall). Either way, I am anxious for Thursday just to see all the grandkids, family, and their spouses/girlfriends. 

The Daughter tell the Wife a couple days back, that their youngest (Widget - 9 months) was sick and throwing up all over (literally). After a day or two, with trying different liquids, she seemed to finally snap out of it, but not before it spread. As of last night, Daughter, SIL and even Doodad (Age 8yrs) were sick. I hope they shuck it in a couple days and Turkey Day still happens. The Wife is sure things will be fine, but I worry.

Thursday I went over the final plans with my buddy, for the Santa Run. He is booking the bus. I ordered the candy canes ... and a new pair of Santa boots. This is how these look:

Cool, right? Kinda pirate-y, yet personalized for the Christmas Cookie Monster...with bells. The reviews some stated that the bells weren't that loud, which is fine. A couple years back I had bought a pair that were the plain black, with like a 2" white trim around the top of the boot. I think they might fit the oldest Son, in case he wants to go on the Run this year. He hasn't made up his mind yet.

Welp, since my bladder and bowels woke me at 5:15am this morning, I guess you got a lengthy post from me. RM will be happy.

PeacE

I Dislike Some Things ....

 ... in this digital era. 

Yesterday I did go up to Walgreens to check on the status of my diabtetic 'script. Turns out they had cancelled it. WHAT?!? When asked why, they said they tried to contact me (no phone calls, and the "update texts" just say 'pending') and since I didn't contact them, they cancelled it. I explained I was already two days off of it, and I needed it. The closest store was 8+ miles away, so I told them to just order it in. I cannot believe they didn't pick up the damn phone and try calling before cancelling a medical prescription!!!

This morning I am on hold with scheduling, trying to set up the next paracentesis. Right now they have no openings prior to 12/22 (and maybe further out). I told he no. I needed within 2 weeks or I was using the ER again (at cost to them, thankfully). So now I have her on the line calling to bump someone else a bit or squeeze me in prior to the 8th (which is when I see the specialist). While waiting, I figure she will come back with the 3rd, which is when I have an endoscopy. Just watch....

It is Friday, and I have no plans today. I might head up to the Post, but there are a couple events going on there tomorrow I want to be there for, and not sure if I want to spend most of today up there. I did get caught up on my reviews pretty much this week. Working on the last book now, then it and another review and I am done for now.

Welp, I am still on hold, so I'll have to let you know how this drama plays out later....

PeacE

Working Another Project ....

 Yesterday was something. There was a nice rain front that moved through the Valley, and the adverse weather, plus the other medical stuff I had done earlier in the week, most of all concentrated on me. I woke around 10:45a, but only was up about an hour before I found myself asleep once again. I woke closer to 6pm, and the storm was just rolling in good, and it poured for a bit. By 7p, I was back in bed, playing a couple crosswords before off went the light, and I was out again. Explains why I am up at 6am today.

I was supposed to go up yesterday and find out, but with sleeping, I never made it. So today I need to get up to Walgreens and find out what is going on with one of my diabetic meds. They said they got the refill info, but there is a pending problem. This is the same drug I had issues with last month as well. I swear the insurance company just wants me to die so they quit spending all this money on me. In the meantime, this is day 2 of not taking the major diabetic pill. Glucose was at 135 this morning.

This afternoon I will meet up with a buddy of mine that is taking over the annual Santa Run. I have been showing him how we have done it the last several years, and whether he does it his own way next year, or whatever, I don't care. I do have the money from a couple riders, and need to confirm the list of people I contacted and the going or nots, and who has paid. Another project I am giving away.

Not much else coms to mind this morning.

PeacE

I Can't Even Quit Right ....

 I didn't get done all the things I (said) had on my plans to get done yesterday. Went to the PCP, and played the update game with her. Basically, I gave her all my discharges since I last saw her in September, brought to attention any new medications the hospital quacks added, and asked when she wants me to come in again. Literally, it was about that short. She made copies of the reports, and is requesting any lab work done at the hospital, just to go over and make sure it looks good to her (and I trust her more than those quacks at the hospital, just saying). Let he know of my upcoming Endoscopy (12/3) and of course, the long-awaited visit to the actual Liver Specialist (12/8). We spoke briefly about how many times I have had to go in for the paracentesis, and I explained the Thoracentesis issue, and why I go more often now. She concurred with me (see why I like her?) and said keep doing what I am doing.

Afterwards, I had figured I would go up to my regular watering hole, and have some cran/water and do some computer work. I purposefully took my laptop and all just for this. But of course, once there, I didn't feel like writing the reviews I needed to do. OR much of anything to be honest. I did get some reading in, and that helps.

Riders meeting went better than I expected. Sometimes, it is nice to know you are appreciated, even if it takes health issues to hear it. So I have "stepped down" as Secretary, and may end up taking it back up come February or so. I told them I needed time to see this Specialist, get on his regime for me, allow a couple months or so to acclimate to it, and then see if I am able to do the job again. Fair enough, right? And, I don't lose 'status' with removal of the Secretary patch I wear. We decided to create/vote/and appoint an Assistant Secretary position last night, who will maintain the monthly paperwork interim until I come back, then continue in that position for in case I cannot make a meeting, etc. Yeah, it was all my idea, and they ate it up. So I am still an Officer....not that it gets me anything but headaches.

Now to do that again for the House Committee in two weeks. I don't think they are going to react the same.

So what to do with my day? I think I may try to finish what I was going to do yesterday - after my appointment of course. And lunch. I am hungry today, and it will be nice to be able to eat something of quantity and quality versus just a few bites and cannot eat more.

PeacE

I'm a Quitter

 I sent out an email this morning to my Riders Chapter. Sure, it had much needed information they need (the Agenda for tonight's meeting) but it also held my resignation. I have debated internally over the last couple of weeks, regarding the two Secretary "jobs" I hold, my health issues, and, let's just put it out there, some of my extreme irritation at the Riders current Director. Finally, this morning, I just typed out the words, and it felt right, so I am going with it. I do admit, I feel let down, and a bit saddened, as I was hoping this group would be different, but I guess there are assholes everywhere (I should know, I am one).

Today should be a moderately busy one for me, if I can stay on track. It's easy to give up and go lie down for a nap, especially when I Am distended as I Am right now. One more day - the draining is tomorrow. But today, I have a PCP follow-up in about an hour. I also have three book reviews I need to get written up and posted. RM asked about my Goodreads reading goal yesterday, and I admitted, I might not make this years. These past few months with the health stuff, I just can't seem to focus on the reading like I was able to do.

So, PCP visit, book reviews...what else? Oh yeah. Riders Meeting tonight (the one I just resigned from). That shall be interesting. I guess I will gather all the paper documents I have, to give back to the Director, and email him the digital stuff I have. Tomorrow is a paracentesis, and I am guessing we are going to drain about 10.5-11.5 Liters, from the way I feel.

The Daughter sent out a list of food stuffs we did for the last Thanksgiving at her place, and asks what we want to change/add/delete. The only thing I saw to add was salad, but since I am generally the only one eating it, I'll just bring my own. Being of the health I am, this list of food just looks like waste to me, as there is no way I could even do a sampler plate of it all.

For RM, I have started the Christmas Date negotiations. Justin was open to doing Christmas the Saturday following - I still have yet to check with the boys. 

I think that this is about all I want to share this morning....

PeacE

Sunday Morning, and Back to Bed

 Spent part of Friday up at the Post. I did not stay late, as chest was hurting, and I still was not able to draw 'deep' breathes without the flare-up. Saturday was a filled day. Veterans from the Veterans Home here in Phoenix were invited to our Post (again) for a lunch in support of Veterans Day. Our Riders chapter, and the open invite for any motorcycle riders, were providing an escort. Not I, though, since I don't "ride". But I was there to spend some time with the Vets. They were so happy to be out of the Home even if only for a couple hours, and to have someone listen to them, or even just they listen to us. I sure would not want to live in a home like this if I get that old and bad, but many do not have family to help care for them, or provide living space.

Afterwards it was a waiting game. We had Farmers Insurance and Operation BBQ Relief throwing a buffet-style dinner that evening at the Post as well. Open to the public, for Vets, First Responders, and the community. A local food place (Little Miss BBQ) provided the food and all. We have eaten at this place before, and it is extremely good! So I stuck around. C'mon, free food, BBQ at that?!? Well, no BBQ, but had some smoked turkey and pork loin. There were some sides, but nothing to write home about - no cole slaw though (pout). I did have seconds, though later I regretted it. Had to purge a bit from over-eating (stomach couldn't handle that much food). Talked to my Brother a little bit, and I was home by about 8pm.

Today is a "free" day, where I do not have anything going on in my calendar. So that means I need to catch up on my VFW reports/minutes/etc. That's the plan anyways. As of yesterday, the pain in the chest had receded quite a bit, and I was able to breather deeper, and relax more. This morning it still feels good. While at the hospital this past week, they did prescribe a new medicine, Midodrine, I believe it is to help keep my heart rate down. They gave it to me that night at the hospital, but my BP was so low, it wouldn't do anything (BP was like 90/57 and my heart rate was like 157). I hate that it is a three times/day with food, but at this point, anything to get this done with and feeling good until I see that specialist.

Tomorrow is the Marine Corps 250th birthday, and they are doing a little thing at the Post. Pot-luck dinner with a cake. My Brother mentioned a mutual friend was in town (finalizing on packing the house as they moved to Virginia) and he is planning on coming up to the Post, so I am making a visit there tomorrow. Tuesday, the Post is putting on three flag raising ceremonies, starting at 8am, but I am only going to the one at the Post (at 10am. I invited the Youngest to join me, as he has once or twice before. I suppose I will get his answer tomorrow. Wednesday is our re-scheduled General meetings (usually Tuesday - but holiday). Friday is the Riders dinner. I am not going. I sent out an email last week telling the Riders we needed volunteers to bring a side, and a dessert (one of each) and they needed to figure it out. Getting tired of feeling like I have to volunteer my time/money for every meal we do, as one wants to step up and help. Well, I am forcing their hand now. If it is a bad dinner, they'll know why. Besides, I am not big on meatball subs....

That's my upcoming week pretty much. I do have a blood draw for the Kidney Dr on Thursday I think, but no other appointments this week. Let's hope I feel as good as I do right now (or better) through the rest of the week.

PeacE

I Did Get My Ice Cream...

 Wednesday turned into a very long 2-day stint, that I am "paying for" now. Around midday, I was hurting bad. The Wife finally convinced me to go to the ER again, as I could not make it the 5 extra days for the paracentesis draining. This is the second time I have had to use the ER as they schedule me out so far. I ask for two weeks, they give me three plus... I can't win. So off to the hospital we go.

Once there, things explained, it went fairly smooth. Got the paracentesis done, felt a bit better for that. Then the ER doc wanted me to have a chest CT Scan done. I was against it, but the Wife has gotten good with her glares. That one said, do what the Doctor wants, or else. So I did. It came back with I have fluid in my chest cavity now. That lead into an overnight stay, with a Thoracentesis to be done at 8:00am. I'm still short of breath, my abdomen is 'sore' and still adjusting to the removal of 10.7 Liters of fluid. I'm in the hospital, so you know I did not get much sleep. RM did bring a McD's sweet tea (at my asking) but was unable to come up and visit that night.

Morning rolls around, and of course everything is late. I don't get to do to Ultrasound for the Thoracentesis until almost 9:30am, and let me just say, there is a HUGE difference between draining the abdomen, and draining a chest cavity. For the chest, I had to face the wall, holding a table between my frontal and the wall. Then the catheter is inserted from the back. They have to go between ribs, and the very unpleasantness of  pushing it through the chest cavity lining. I didn't yell, or cry crocodile tears, but the thoughts sure passed my mind. They drained another 2.7 Liters from there (for a hospital stay of 13.4!) and sent me back to the room.

So now I have an 'unadjusted' abdomen, a spot on my mid-left-back that feels like someone took a baseball bat to it, shortness of breath, as I cannot draw a deep one with the thoracentesis. Anyways, things came around and the doctor that day said I would be released in couple hours (by noonish). I so I called up RM, and let her know (she was thinking of bringing me lunch and an iced tea) that she shouldn't as I would be home soon. It was closer to 2pm before I got out of there, with a new prescription (sigh). We got home, and I literally, passed out in the bed. Slept until 7pm. Back in bed by 10pm, and out until 8am. Good sleep that I am sure my body needs.

My abdomen is basically back to normal today, with just some tenderness if I do something odd. The chest, well, I have never been shot with an arrow, but if I had been, it would feel like one from the back through the front of the chest, and it aches every time I move. Has to be muscle related. No large deep breaths this morning, but hopefully by tomorrow or the next day. Overall I feel much better for now. I do need to call and reschedule the paracentesis (that was to have been on Monday) to the 18th. And I am going to be an asshole about it. I can't hardly get pass the 14 day mark, without it getting bad, and now that it can slip into my chest cavity is a big no-no. So going to have to be firm about it.

Not sure what the rest of the day will bring. A nap I am sure. Though about going to the Post, but o major event tonight, and I should rest if I want to be up there tomorrow for some of the Veteran activities going on tomorrow.

But at least you are updated now....

PeacE

I'm Swamped With Stuff to Do ...

 ... but I'm bored.

Sure, I have a zillion little things that need to get done around here, at some point, on some given day. But I think that day is not today. Still got the pressure building up in the abdomen. Still have to catch my breath every seeming 20 steps or so. The Youngest and I were tentatively planning to go to the the grocery today, to get us some needed items (milk, juice) and a few unneeded items (soda, ice cream). I may just send a list with the Wife. Seems she is "flexed off" from work today. I guessing it means the same as low census - they just have too much staff and not enough patients. I just know, I could really use some soda, juice and ice cream about now.....

Huh. I ran out of things.

PeacE

It's Always the Little Things ....

 ... that make you wonder why are you even alive at times. Like, for instance, this little thing called breathing, that most people like to do. I found out I quite enjoy it, until it is taken away from me. Yeah, I have been quite short of breath the past few days. My next paracentesis isn't until Monday the 10th, so trying to hold out until then. Not wanting to do the 6-hour ER Room experience again.

So yeah, it's after Halloween and here I am playing the Stay-Puff Marshmallow man (or I feel like it). I think if I make it through to Monday, they are going to drain 13+Liters. I'm that distended. Oh, and eating? What's that? Over the past three days I have been able to get about 10-15 bites of food down at a time. I think I am mostly surviving on vanilla shakes right now. Seems to be the only thing I can get down and feel like I actually got something in my stomach.

So enough about me and my medical. 

I feel the eggshells under my feet crackle as I gingerly step around anything to do with the Post. This past weekend is going to have a few repercussions. Being Phoenix, and the last week of Nascar Racing, many of the Post members went to the race (they had campers, etc.). Needless to say, it included enough of the leadership staff, and working staff of the Canteen and Post, that some tings did not get done. The worst one being Saturday Night's Post dinner. No one showed up to cook anything, and it was not cancelled. I know the Commander is going to be livid, as this is the 2nd month in a row this has happened. Tonight is the House & Entertainment Committee meetings, and I am leery as to if the Commander will be there tonight. Normally these comms do not deal with the Post Dinner, but seeing as how many are part of the crew that helps on them.....who knows. I know I did my job(s) and I ain't in the line of fire.

Welp, ain't gonna do no one no good to sit here and gripe about it.

PeacE

The Seventh Annual Royal Order of The Santa Runners....

 ...oh geez. Seven years ago, my buddy Jeff and I started the "Santa Run", well, let's say introduced it to our area of town. Over the years I have seen similar groups (but none) as fun as ours. Anyways, Jeff moved back to North Dakota back in August, and the that left me as the only one in charge of the event this year. Which I pretty much was last year as well, now that I think about it.

Several weeks ago, a couple of my pub buds had asked if I Was going to keep it going. I said I don't know. I didn't have the money to up-front rent the bus, and the whole hassle with getting enough people to show up, and get their money...to me just wasn't worth it. So these two offered up that they would cover the bus, but I needed to send the message out to the contacts.

I kinda blew it off. With my VFW stuff, and the medical going on, I just didn't take the time to sit down and do any of this Santa Run stuff. Well, it came to a head yesterday while I was at the pub. Talk about working under pressure.... In 15 minutes, I had the message with details typed out, approved, and sent. Nearly 10 have responded positively. Of course, we changed it up this year. Previously it was 'Guys Only'. But the Pub Buds want 'women' to ride with us as well, so we just combined the Mrs. Clause run (previously ran by Jeff's GF) in with ours. I tried to be a stick a bit, and say guys had to wear Santa hat, coat and pants, but the girls basically have no dress code. And my buddies just don't care.

I don't even either. I think this is the last year I am doing it. Hanging out with a bunch of drunks for 5 hours, when I can't drink...no bueno. The Oldest Son loves to go on these with me, as it was time for us to hang out, but he understands how I feel about things now, and says he won't go if I don't. One last year....no drinking. Oh boy.

It is Halloween, not that I have cared since I was like 5. Was invited to several parties being put on at some of the pubs, but I think I will pass. Not in the mood for crowds. Probably end up down at the Post. They have nothing planned. I think I need to look at the Agenda due for Tuesday and make sure I didn't miss anything.

PeacE

I'm Inked

 Usually, that means the person has some tattoos (which I do) but this time it means I ordered some more ink for my printer. I did some shopping around prior to getting low, and found some high-yield cartridges (off-brand) for my Canon. Instead of the approximate 100 pages of B&W, each cartridge is supposed to yield up to 400. I would be happy with 200 off each, as it is still a deal at the price.

I got most of my VFW stuff done yesterday. Sent out the Riders Minutes. Prepped the House Agenda, though won't send until this weekend. Had a friend with a much better printer than mine, print out 7 copies of the House Policy I amended. Tuesday I will present a physical copy and a digital copy to each Member for them to preview to be voted on in December. 

The Wife took today off (low census again) so no idea what my plans are. I can't escape to the VFW As they are closed. I may have to do something around the house....

PeacE