Over the weekend I hopped into the patient portal for Mayo just to see if there was anything new I had missed a notification for. There was. And there was a flashing red dot under appointments, so I look there, and find there are 24 appointments scheduled for me. What?!? I wasn't called for any of this - oh wait. This is the week of testing I bet. Sure enough, one of the emails included a download of the Patient Schedule for the week of the 23rd.
Mayo has two campuses here in the Valley. One is about 10 miles, the other (main) is about 20-25 miles, from my house. The appts are split up between the two campuses, though only one day I have to go to both campuses. Looks like most of the easier stuff like bloodwork, consults, etc are done at the one, and the more medical like CTs, MRI, etc are at the main campus. Either way, this :pamphlet" was 50 pages printed out! But it is detailed for time, date, location, and for some appts, estimated time of appt.
It's just a lot of stuff, crammed into a short time. It's making me feel like an anxiety attack is coming on.
After that week, I find out how bad things are, how severe the damage is to the liver, and where I will be placed at on the transplant list (assuming I am that bad). Then it's a waiting game for the an available liver that meets certain criteria. Could be months - years even. If that's the case, I have a feeling we will be looking at a TIPPS procedure in the meantime. That's the one that a device is put in that bypasses some of the blood going to the liver, to ease up the pressure it has to work under. It'd be removed with a transplant, and the thought is it would help with the fluid build-up.
Been staring at the screen for a half hour now, so I guess I should wrap it up ...
PeacE
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